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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20261009T120000
DTEND;TZID=America/New_York:20261009T130000
DTSTAMP:20260612T141017Z
CREATED:20260612T141017Z
LAST-MODIFIED:20260612T141017Z
UID:10002041-1791547200-1791550800@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\n \nThank you to our sponsor Bristol Myers Squibb. \n \nRegister Here
URL:https://300.myositis.org/event/tma-new-member-orientation-3/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Oct-10-2025-2.png
LOCATION:https://300.myositis.org/event/tma-new-member-orientation-3/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260710T120000
DTEND;TZID=America/New_York:20260710T130000
DTSTAMP:20260612T140744Z
CREATED:20260612T140743Z
LAST-MODIFIED:20260612T140744Z
UID:10002040-1783684800-1783688400@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\n \nThank you to our sponsor Bristol Myers Squibb. \n \nRegister Here
URL:https://300.myositis.org/event/tma-new-member-orientation-2/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Oct-10-2025-1.png
LOCATION:https://300.myositis.org/event/tma-new-member-orientation-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260612T120000
DTEND;TZID=America/New_York:20260612T130000
DTSTAMP:20260611T162659Z
CREATED:20260519T153109Z
LAST-MODIFIED:20260611T162659Z
UID:10003437-1781265600-1781269200@300.myositis.org
SUMMARY:Meet & Greet Leadership Series: MyoCon 2026 Edition
DESCRIPTION:Get ready for something special! Join us for an exciting edition of The Myositis Association’s Meet & Greet Leadership Series — this time\, we’re turning the spotlight on MyoCon 2026! \nHosted by TMA Executive Director Paula Eichenbrenner\, this can’t-miss event goes beyond your typical Q&A. We’re bringing in special guests who will share their unique perspectives on what makes MyoCon the most anticipated gathering in the myositis community — from the programming that informs to the moments that inspire. \nHave questions about the conference? Bring them! We’re committed to answering every single one\, and we want you to leave this session more excited than ever about what’s ahead in St. Louis this September. \nWhether you’re a first-time attendee or a MyoCon veteran\, this is your chance to connect with TMA leadership\, hear directly from our guests\, and get a front-row preview of what promises to be our best conference yet. The energy is building — and we want you to be part of it! \nWe can’t wait to see you there. 🎉 \nRegister Here
URL:https://300.myositis.org/event/meet-greet-leadership-series-myocon-2026-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/MyoCon-MG-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/CqWkosk9QPedWdUi1ZiD4A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260529T190000
DTEND;TZID=America/New_York:20260529T210000
DTSTAMP:20260519T220736Z
CREATED:20260314T221340Z
LAST-MODIFIED:20260519T220736Z
UID:10003292-1780081200-1780088400@300.myositis.org
SUMMARY:MiLB First Pitch for Myositis Awareness (Columbia\, SC)
DESCRIPTION:Join Us at the Ballpark! ⚾ \nGrab your peanuts and rally cap — we’re heading to a Minor League Baseball game! Join fellow myositis community members for a fun night out at Segra Park in Columbia\, SC as the Columbia Fireflies take on the Charleston RiverDogs on Thursday\, May 29 at 7:00 PM ET. \nThis in-person meetup is a great chance to connect with others who truly understand the myositis journey — no agenda\, just good company and great baseball. \nOrganized by TMA Board Treasurer Chip Galloway — if you’d like to show your appreciation for Chip’s efforts in making this happen\, consider making a donation in his honor. \nWe hope to see you there!
URL:https://300.myositis.org/event/milb-first-pitch-for-myositis-awareness-columbia-sc/
LOCATION:Segra Park\, 1640 Freed St\, Columbia\, SC\, 29201\, United States
CATEGORIES:Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Fireflies-2026.png
ORGANIZER;CN="Chip Galloway":MAILTO:Galloway@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T133000
DTEND;TZID=America/New_York:20260527T143000
DTSTAMP:20260527T004047Z
CREATED:20260326T135822Z
LAST-MODIFIED:20260527T004047Z
UID:10003184-1779888600-1779892200@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat IBM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IBM here—we get it. This program will be hosted by TMA board member Alicia Polak. Many thanks to our sponsor Abcuro for supporting IBM Diagnosis Day. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-ibm/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Cafe-Chat-IBM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/SXvOv9fPSTCxpjgciKj0Cw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T160000
DTEND;TZID=America/New_York:20260526T164500
DTSTAMP:20260526T112301Z
CREATED:20260519T211614Z
LAST-MODIFIED:20260526T112301Z
UID:10003440-1779811200-1779813900@300.myositis.org
SUMMARY:Diagnosis Denied - Community Screening: What Veterans with IBM Want You to Know
DESCRIPTION:Join us for a special community screening of Diagnosis Denied\, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country\, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast\, the series uncovers patterns in claim denials\, gaps in disease recognition\, and the real human cost borne by veterans fighting for the care and support they’ve earned. \nThis event is open to everyone — patients\, caregivers\, advocates\, and community members — not just veterans or those living with IBM. After the screening\, join us for a community conversation and Q&A with reporters including Jennifer Titus\, Rebecca Lindstrom\, Heather Crawford and Ciara Bríd Frisbie\, who will share insight into the reporting process and what they hope this series will change. \nWe are deeply grateful to the entire Diagnosis Denied news team for the heart\, rigor\, and dedication they brought to shining a light on this issue — including producers Ciara Bríd Frisbie and Elizabeth Hendren\, and reporters Jennifer Titus\, Rebecca Lindstrom\, Chris Vanderveen\, Heather Crawford\, and Kyle Iboshi. \nCome watch. Come learn. Come be part of the conversation. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-denied-diagnosis-denied-community-screening-what-veterans-with-ibm-want-you-to-know/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/Diagnosis-Denied-Screening-Banner1920-x-608-px.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_k_5QhlpRTlWmjthZ-i1W4w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T133000
DTEND;TZID=America/New_York:20260520T143000
DTSTAMP:20260506T175027Z
CREATED:20260227T010411Z
LAST-MODIFIED:20260506T175027Z
UID:10003181-1779283800-1779287400@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat PM & OM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed\, informal gathering is a space to connect with others who truly understand your myositis journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Holly Jones. A special thanks to Myositis Awareness Month sponsor argenx for supporting Diagnosis Day IMNM! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-pm-om/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-PM-OM-argenx.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/lT7MKBctS0CBOyKEfJtmFA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T133000
DTEND;TZID=America/New_York:20260513T143000
DTSTAMP:20260505T194825Z
CREATED:20260203T222701Z
LAST-MODIFIED:20260505T194825Z
UID:10003032-1778679000-1778682600@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Dermatomyositis (DM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed\, informal gathering is a space to connect with others who truly understand the DM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain DM here—we get it. This program will be hosted by TMA volunteer Krystal Harris. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-dermatomyositis-dm-edition/
CATEGORIES:Commemorative,Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-DM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/zPb9VnJQSOK4TGRMLakgcQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260508T110000
DTEND;TZID=America/New_York:20260508T140000
DTSTAMP:20260504T192628Z
CREATED:20260203T215922Z
LAST-MODIFIED:20260504T192628Z
UID:10003031-1778238000-1778248800@300.myositis.org
SUMMARY:MyoLive! TMA Open House (in-person event & FB livestream)
DESCRIPTION:In celebration of Myositis Awareness Month\, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an “Ask the Expert” session along with an informal luncheon and open networking in TMA’s office. Don’t miss your chance to view TMA history\, mingle with other families affected by myositis\, and increase public awareness of myositis!   \nIf you are in the DC/Baltimore area\, please join us for this in-person event. RSVPs are requested by Wednesday\, May 6. \nRegister Now! \nOur guest speaker is Iago Pinal-Fernandez\, MD\, PhD\, a Staff Clinician in the Muscle Disease Unit of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health\, and an Adjunct Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine. Dr. Pinal-Fernandez focuses on understanding the pathogenesis of inflammatory muscle diseases and on improving the diagnosis\, prognosis\, and treatment of patients with these conditions. \nSchedule \n\n11:00 Check-in\n11:30 Luncheon\n12:00 Program: Ask the Expert with Dr. Iago Pinal-Fernandez\n1:00 Open House: Special Myositis Awareness Swag\n\nThe educational portion of the Open House will be streamed on a live video broadcast. Advance registration is not necessary for the Facebook livestream. Simply tune in online on May 8 at TMA’s Facebook page. \nThank you to TMA Corporate Advisory Council member Abcuro and to Pharma Fusion for sponsoring our Ask the Expert\, Luncheon\, and Open House. \n \n 
URL:https://300.myositis.org/event/save-the-date-tma-open-house-in-person-event-fb-livestream/
LOCATION:TMA Office\, 6950 Columbia Gateway Drive Suite 370\, Columbia\, MD\, 21046\, United States
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Open-House-May-8-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T133000
DTEND;TZID=America/New_York:20260506T143000
DTSTAMP:20260506T173737Z
CREATED:20260203T223456Z
LAST-MODIFIED:20260506T173737Z
UID:10003033-1778074200-1778077800@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Immune-mediated Necrotizing Myopathy (IMNM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Debbie Armstrong. A special thanks to Myositis Awareness Month sponsor argenx. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-immune-mediated-necrotizing-myopathy-imnm-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Cafe-Chat-IMNM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/Pn_OnOBEQSqqTSgR8amFiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T150000
DTSTAMP:20260421T193948Z
CREATED:20251021T194332Z
LAST-MODIFIED:20260421T193948Z
UID:10001899-1777622400-1777647600@300.myositis.org
SUMMARY:TMA Open - Tee it up during Myositis Awareness Month\, supporting myositis research and patient well-being!
DESCRIPTION:Chip in for a great cause during Myositis Awareness Month at our TMA Open!\nRegister Now! \nSupport myositis research and patient well-being on Friday\, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal\, VA. \n\nFormat: Captain’s Choice\nPrice: Teams $500 | Individual $150 | Virtual golfers welcome!\nAwards: 1st\, 2nd\, and 3rd Place Teams; Longest Drive; Closest to the Pin\nAll golfers eligible to win high-value prizes: Golf prizes include brand-new Titleist Vokey wedge with 60-degree loft\, Callaway Micro Pro laser rangefinder\, and Shadows Club membership! Additional prizes include a special Avon gift basket\, plus ticket packages from the Washington Wizards (NBA)\, Washington Nationals (MLB)\, DC United (MLS)\, and more.\nSponsorships: Hole Sponsorship with tee box signage for $500 or Tournament Sponsorship including foursome with premium tee box signage\, club house signage\, and digital ad for $1\,500\nRegistrations due: By 4/25/2026 and payments due: By 4/30/2026\nRemit: Register and donate securely online with credit card or PayPal payment\, or via Venmo: @themyositisassociation.\n\nIncludes golf\, cart\, range balls\, lunch plus team and individual prizes. On course games\, 50/50\, and mulligans for sale! \nJoin Us! \n \n \nThank you to our sponsor\, Peake Technologies. Questions? Contact Ike Eichenbrenner: eichenbren@gmail.com | 703-599-4345 \n“Golfweek Magazine” ranked #3 Best Public Course in Virginia!
URL:https://300.myositis.org/event/tma-open-2026/
LOCATION:Blue Ridge Shadows Golf Club\, 456 Shadows Drive\, Front Royal\, VA\, 22630\, United States
CATEGORIES:Commemorative,Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Tee-off-for-TMA-2026-220-x-220-px.png
ORGANIZER;CN="Ike Eichenbrenner":MAILTO:eichenbren@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T120000
DTEND;TZID=America/New_York:20260424T130000
DTSTAMP:20260409T182921Z
CREATED:20260309T080842Z
LAST-MODIFIED:20260409T182921Z
UID:10003255-1777032000-1777035600@300.myositis.org
SUMMARY:TMA Meet & Greet Leadership Series: Meet the New Board Chair!
DESCRIPTION:Join us for a special edition of The Myositis Association’s (TMA) Meet & Greet Leadership Series. Hosted by TMA Executive Director Paula Eichenbrenner and featuring TMA Board Chair Rich DeAugustinis\, this engaging event is designed to bring our community together in a spirit of connection. Don’t miss this opportunity to connect with TMA leadership and fellow community members\, We look forward to seeing you there! \nRegister Here
URL:https://300.myositis.org/event/tma-meet-greet-leadership-series-meet-the-new-board-chair/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Myositis-Awareness-Month-April-2026-April-2025-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/0kQeZGFyTO6TutGzj6368A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260410T120000
DTEND;TZID=America/New_York:20260410T130000
DTSTAMP:20260225T165830Z
CREATED:20251120T003930Z
LAST-MODIFIED:20260225T165830Z
UID:10002039-1775822400-1775826000@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nRegister Here
URL:https://300.myositis.org/event/tma-new-member-orientation/2026-04-10/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/06/Generic-NMO-.png
LOCATION:https://300.myositis.org/event/tma-new-member-orientation/2026-04-10/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260326T180000
DTEND;TZID=America/New_York:20260326T190000
DTSTAMP:20260325T203435Z
CREATED:20260316T185618Z
LAST-MODIFIED:20260325T203435Z
UID:10003293-1774548000-1774551600@300.myositis.org
SUMMARY:Proclamation50 Office Hours
DESCRIPTION:Learn more about TMA’s Proclamation50 Initiative\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding\, diagnosing\, and supporting those affected by these rare diseases.  \nOn March 26 at 6 pm ET\, Jamie Batiste\, our Proclamation50 director\, will be hosting Proclamation 50 Office Hours where you can learn more about this initiative and ask any questions. \nRegister Here \nJamie can also be reached at proclamations@myositis.org.
URL:https://300.myositis.org/event/proclamation50-office-hours-2/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-06-161539.png
ORGANIZER;CN="Jamie Batiste":MAILTO:Proclamations@myositis.org
LOCATION:https://us02web.zoom.us/j/89300037319
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T180000
DTEND;TZID=America/New_York:20260211T200000
DTSTAMP:20260206T211813Z
CREATED:20260206T211813Z
LAST-MODIFIED:20260206T211813Z
UID:10003034-1770832800-1770840000@300.myositis.org
SUMMARY:Proclamation50 Office Hours
DESCRIPTION:Learn more about TMA’s Proclamation50 Initiative\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding\, diagnosing\, and supporting those affected by these rare diseases.  \nOn February 11th at 6 pm ET\, Jamie Batiste\, our Proclamation50 director\, will be hosting Proclamation 50 Office Hours where you can learn more about this initiative and ask any questions. \nRegister Here \nJamie can also be reached at proclamations@myositis.org.
URL:https://300.myositis.org/event/proclamation50-office-hours/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-06-161539.png
LOCATION:https://us02web.zoom.us/meeting/register/iwbt_gGIStqwzMm2GQXngQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T120000
DTEND;TZID=America/New_York:20260122T130000
DTSTAMP:20251209T234535Z
CREATED:20251120T180137Z
LAST-MODIFIED:20251209T234535Z
UID:10002059-1769083200-1769086800@300.myositis.org
SUMMARY:Mindfulness and Self-Compassion for Chronic Illness and Pain
DESCRIPTION:Register Here \n\n\n\nIn this 60-minute session\, we will define and explore what Mindfulness and Self-Compassion are and how they can reduce pain and discomfort\, reduce stress\, and enhance our ability to live a life beyond simply struggling with our illness and pain.  The workshop will include an overview of the subject matter\, guided meditation\, and time for Q&A.\nBy the end of the time\, participants will be able to:\n1. Define what Mindfulness is and what Self-Compassion is\n2. Describe and engage in practices to grow these qualities\n3. Be able to apply these skills to daily life\n\n\n\nThis event is in Zoom meeting style format\, but camera is optional.
URL:https://300.myositis.org/event/mindfulness-and-compassion-for-chronic-illness-and-pain/
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Mindfullness-Jan-2026.png
LOCATION:https://us02web.zoom.us/meeting/register/AKTZ9pMyRWaI4oxbdnyDHw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260116T120000
DTEND;TZID=America/New_York:20260116T130000
DTSTAMP:20251229T002240Z
CREATED:20250605T143735Z
LAST-MODIFIED:20251229T002240Z
UID:10002018-1768564800-1768568400@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nRegister Here
URL:https://300.myositis.org/event/new-member-orientation-8/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/06/Generic-NMO-.png
LOCATION:https://300.myositis.org/event/new-member-orientation-8/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T190000
DTEND;TZID=America/New_York:20260108T200000
DTSTAMP:20260105T173644Z
CREATED:20260105T173644Z
LAST-MODIFIED:20260105T173644Z
UID:10002757-1767898800-1767902400@300.myositis.org
SUMMARY:Proclamation50 Information Session
DESCRIPTION:TMA has launched Proclamation50 for 2026\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! You can use this handy guide to drafting and requesting this official designation of Myositis Awareness Month from your city\, county\, or state. This is a small-time commitment for a very vital cause! Please sign up to be one of our Proclamation50 participants! \nTake the TMA Volunteer Information Form 2026 Survey! \nAdditionally\, we are going to be hosting a Proclamation50 informational Zoom session on Thursday\, January 8\, at 4 pm PT/7 pm ET\, where Jamie will share more about this opportunity and be able to answer any questions. \nRegister Here \n 
URL:https://300.myositis.org/event/proclamation50-information-session/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Screenshot-2026-01-05-123541.png
ORGANIZER;CN="Proclamations":MAILTO:Proclamations@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/0syqguLQQpS36YDwNRcoug#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251003T120000
DTEND;TZID=America/New_York:20251003T133000
DTSTAMP:20251001T162817Z
CREATED:20250809T000612Z
LAST-MODIFIED:20251001T162817Z
UID:10001880-1759492800-1759498200@300.myositis.org
SUMMARY:TMA Meet & Greet Leadership Series: From MyoCon to MyoCommunity
DESCRIPTION:Register Here \nJoin us for a special MyoCon Reunion edition of TMA’s Meet & Greet Leadership Series. Meet & Greet sessions let you meet some of the important people behind the scenes at TMA. These are fun\, low-key interactive conversations that connect you more closely with the organization and our mission. This time\, we’ll reconnect with MyoCon friends and stay acquainted through breakout rooms organized by diagnosis.
URL:https://300.myositis.org/event/tma-meet-greet-leadership-series-from-myocon-to-myocommunity/
CATEGORIES:Community Meetups
LOCATION:https://us02web.zoom.us/meeting/register/bTE-z2vFTmKHChG_Holvag
END:VEVENT
END:VCALENDAR