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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260410T120000
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LAST-MODIFIED:20260225T165830Z
UID:10002039-1775822400-1775826000@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nRegister Here
URL:https://300.myositis.org/event/tma-new-member-orientation/2026-04-10/
LOCATION:https://300.myositis.org/event/tma-new-member-orientation/2026-04-10/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/06/Generic-NMO-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260326T180000
DTEND;TZID=America/New_York:20260326T190000
DTSTAMP:20260325T203435Z
CREATED:20260316T185618Z
LAST-MODIFIED:20260325T203435Z
UID:10003293-1774548000-1774551600@300.myositis.org
SUMMARY:Proclamation50 Office Hours
DESCRIPTION:Learn more about TMA’s Proclamation50 Initiative\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding\, diagnosing\, and supporting those affected by these rare diseases.  \nOn March 26 at 6 pm ET\, Jamie Batiste\, our Proclamation50 director\, will be hosting Proclamation 50 Office Hours where you can learn more about this initiative and ask any questions. \nRegister Here \nJamie can also be reached at proclamations@myositis.org.
URL:https://300.myositis.org/event/proclamation50-office-hours-2/
LOCATION:https://us02web.zoom.us/j/89300037319
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-06-161539.png
ORGANIZER;CN="Jamie Batiste":MAILTO:Proclamations@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260211T180000
DTEND;TZID=America/New_York:20260211T200000
DTSTAMP:20260206T211813Z
CREATED:20260206T211813Z
LAST-MODIFIED:20260206T211813Z
UID:10003034-1770832800-1770840000@300.myositis.org
SUMMARY:Proclamation50 Office Hours
DESCRIPTION:Learn more about TMA’s Proclamation50 Initiative\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! A proclamation is an official declaration by a government recognizing the importance of understanding\, diagnosing\, and supporting those affected by these rare diseases.  \nOn February 11th at 6 pm ET\, Jamie Batiste\, our Proclamation50 director\, will be hosting Proclamation 50 Office Hours where you can learn more about this initiative and ask any questions. \nRegister Here \nJamie can also be reached at proclamations@myositis.org.
URL:https://300.myositis.org/event/proclamation50-office-hours/
LOCATION:https://us02web.zoom.us/meeting/register/iwbt_gGIStqwzMm2GQXngQ
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-06-161539.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T120000
DTEND;TZID=America/New_York:20260122T130000
DTSTAMP:20251209T234535Z
CREATED:20251120T180137Z
LAST-MODIFIED:20251209T234535Z
UID:10002059-1769083200-1769086800@300.myositis.org
SUMMARY:Mindfulness and Self-Compassion for Chronic Illness and Pain
DESCRIPTION:Register Here \n\n\n\nIn this 60-minute session\, we will define and explore what Mindfulness and Self-Compassion are and how they can reduce pain and discomfort\, reduce stress\, and enhance our ability to live a life beyond simply struggling with our illness and pain.  The workshop will include an overview of the subject matter\, guided meditation\, and time for Q&A.\nBy the end of the time\, participants will be able to:\n1. Define what Mindfulness is and what Self-Compassion is\n2. Describe and engage in practices to grow these qualities\n3. Be able to apply these skills to daily life\n\n\n\nThis event is in Zoom meeting style format\, but camera is optional.
URL:https://300.myositis.org/event/mindfulness-and-compassion-for-chronic-illness-and-pain/
LOCATION:https://us02web.zoom.us/meeting/register/AKTZ9pMyRWaI4oxbdnyDHw
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Mindfullness-Jan-2026.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260116T120000
DTEND;TZID=America/New_York:20260116T130000
DTSTAMP:20251229T002240Z
CREATED:20250605T143735Z
LAST-MODIFIED:20251229T002240Z
UID:10002018-1768564800-1768568400@300.myositis.org
SUMMARY:TMA New Member Orientation
DESCRIPTION:Open to all regardless how long ago you joined TMA! Living with myositis can be challenging\, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know\, understand\, and share your new normal. Connect with people like you\, connect with resources you need\, connect with global myositis experts – connect with TMA!\nRegister Here
URL:https://300.myositis.org/event/new-member-orientation-8/
LOCATION:https://300.myositis.org/event/new-member-orientation-8/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/06/Generic-NMO-.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260108T190000
DTEND;TZID=America/New_York:20260108T200000
DTSTAMP:20260105T173644Z
CREATED:20260105T173644Z
LAST-MODIFIED:20260105T173644Z
UID:10002757-1767898800-1767902400@300.myositis.org
SUMMARY:Proclamation50 Information Session
DESCRIPTION:TMA has launched Proclamation50 for 2026\, our aspiration to spur proclamations in all 50 states in the US for Myositis Awareness Month in May! You can use this handy guide to drafting and requesting this official designation of Myositis Awareness Month from your city\, county\, or state. This is a small-time commitment for a very vital cause! Please sign up to be one of our Proclamation50 participants! \nTake the TMA Volunteer Information Form 2026 Survey! \nAdditionally\, we are going to be hosting a Proclamation50 informational Zoom session on Thursday\, January 8\, at 4 pm PT/7 pm ET\, where Jamie will share more about this opportunity and be able to answer any questions. \nRegister Here \n 
URL:https://300.myositis.org/event/proclamation50-information-session/
LOCATION:https://us02web.zoom.us/meeting/register/0syqguLQQpS36YDwNRcoug#/registration
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Screenshot-2026-01-05-123541.png
ORGANIZER;CN="Proclamations":MAILTO:Proclamations@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251003T120000
DTEND;TZID=America/New_York:20251003T133000
DTSTAMP:20251001T162817Z
CREATED:20250809T000612Z
LAST-MODIFIED:20251001T162817Z
UID:10001880-1759492800-1759498200@300.myositis.org
SUMMARY:TMA Meet & Greet Leadership Series: From MyoCon to MyoCommunity
DESCRIPTION:Register Here \nJoin us for a special MyoCon Reunion edition of TMA’s Meet & Greet Leadership Series. Meet & Greet sessions let you meet some of the important people behind the scenes at TMA. These are fun\, low-key interactive conversations that connect you more closely with the organization and our mission. This time\, we’ll reconnect with MyoCon friends and stay acquainted through breakout rooms organized by diagnosis.
URL:https://300.myositis.org/event/tma-meet-greet-leadership-series-from-myocon-to-myocommunity/
LOCATION:https://us02web.zoom.us/meeting/register/bTE-z2vFTmKHChG_Holvag
CATEGORIES:Community Meetups
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