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X-WR-CALDESC:Events for The Myositis Association
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261016T180000
DTEND;TZID=America/Chicago:20261016T210000
DTSTAMP:20260203T175852Z
CREATED:20260203T162726Z
LAST-MODIFIED:20260203T175852Z
UID:10003027-1792173600-1792184400@300.myositis.org
SUMMARY:Third Annual Meredith C. Thomas Trivia Night Fundraiser (in-person event)
DESCRIPTION:Registration details coming soon! \nIn partnership with the Thomas family\, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship\, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and passed away at age 33 in November 2023. In her honor\, her family created Meredith’s Legacy. \n Learn more and donate now!
URL:https://300.myositis.org/event/third-annual-meredith-c-thomas-trivia-night-fundraiser/
LOCATION:Butterfield Country Club\, 2800 Midwest Rd\, Oak Brook\, IL\, 60523\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-03-115426.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260613T110000
DTEND;TZID=America/Chicago:20260613T140000
DTSTAMP:20260519T220450Z
CREATED:20260519T135033Z
LAST-MODIFIED:20260519T220450Z
UID:10003435-1781348400-1781359200@300.myositis.org
SUMMARY:Munch for Myositis Fundraiser (in-person\, Bennington\, NE)
DESCRIPTION:Join Us for a Myositis Awareness Fundraiser at Runza! \nTMA Nebraska Myositis Support Group is hosting a special fundraiser at Runza\, and we’d love for you to stop by! A huge thank you to our incredible group leader\, Laura Deardoff\, for making this happen. \nCome enjoy a great meal while supporting a great cause — 10% of proceeds will go directly to myositis research. Stop by our awareness table to pick up goodies courtesy of The Myositis Association\, grab one of the handmade bracelets our group crafted at our April meeting\, and drop a donation in our jar. Every little bit helps us raise awareness and fund research for this rare disease. \nWhether you’re part of our community or just curious about myositis\, we welcome you to join us. Let’s eat\, connect\, and make a difference — one meal at a time!
URL:https://300.myositis.org/event/munch-for-myositis-fundraiser-in-person-bennington-ne/
LOCATION:Runza\, 15757 Center West Hadan Dr\, Bennington\, NE\, 68007\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/05/Runza-Myositis-event-2.0-scaled.jpg
ORGANIZER;CN="Laura Deardoff":MAILTO:Deardoff@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260529T190000
DTEND;TZID=America/New_York:20260529T210000
DTSTAMP:20260519T220736Z
CREATED:20260314T221340Z
LAST-MODIFIED:20260519T220736Z
UID:10003292-1780081200-1780088400@300.myositis.org
SUMMARY:MiLB First Pitch for Myositis Awareness (Columbia\, SC)
DESCRIPTION:Join Us at the Ballpark! ⚾ \nGrab your peanuts and rally cap — we’re heading to a Minor League Baseball game! Join fellow myositis community members for a fun night out at Segra Park in Columbia\, SC as the Columbia Fireflies take on the Charleston RiverDogs on Thursday\, May 29 at 7:00 PM ET. \nThis in-person meetup is a great chance to connect with others who truly understand the myositis journey — no agenda\, just good company and great baseball. \nOrganized by TMA Board Treasurer Chip Galloway — if you’d like to show your appreciation for Chip’s efforts in making this happen\, consider making a donation in his honor. \nWe hope to see you there!
URL:https://300.myositis.org/event/milb-first-pitch-for-myositis-awareness-columbia-sc/
LOCATION:Segra Park\, 1640 Freed St\, Columbia\, SC\, 29201\, United States
CATEGORIES:Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Fireflies-2026.png
ORGANIZER;CN="Chip Galloway":MAILTO:Galloway@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260517T150000
DTEND;TZID=America/New_York:20260517T200000
DTSTAMP:20260420T165618Z
CREATED:20260420T165618Z
LAST-MODIFIED:20260420T165618Z
UID:10003428-1779030000-1779048000@300.myositis.org
SUMMARY:C. Potter Memorial Classic In-person Event (Alexandria\, VA)
DESCRIPTION:Please join us for the third annual C Potter Classic with kids and adults softball game\, stadium food/pizza\, tailgating\, beers\, and fun. All in honor of our lovely Carolyn. All proceeds to The Myositis Association.
URL:https://300.myositis.org/event/c-potter-memorial-classic-in-person-event-alexandria-va/
LOCATION:McNaughton Fields\, 5300 Pole Rd\, Alexandra\, 22309\, United States
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/04/Image-12.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260509T090000
DTEND;TZID=America/Chicago:20260509T130000
DTSTAMP:20260410T132438Z
CREATED:20260309T074906Z
LAST-MODIFIED:20260410T132438Z
UID:10003254-1778317200-1778331600@300.myositis.org
SUMMARY:Jumpin' Joe's Myositis Marathon (In-person & Virtual Disc Golf Fundraiser)
DESCRIPTION:Join us in supporting a true legend of the disc (Frisbee) golf world — Jumpin’ Joe Feidt — as he leads a fundraiser for The Myositis Association (TMA) on May 9 in Inver Grove Heights\, Minnesota. Whether you register to play the Innova-sponsored PDGA-sanctioned tournament or support virtually through Joe’s fundraising campaign\, your contribution makes a real difference. \nWho is Joe Feidt? Since 1977\, Joe has been Minnesota’s first disc golf mover and shaker\, the founder of major state tournaments and the longtime editor of DiscGolfer magazine. He was honored to be inducted into the World Disc Golf Hall of Fame in 2011 and Minnesota Disc Sports Hall of Fame in 2006. \nBut Joe’s story goes beyond the sport. In 2014\, he was diagnosed with inclusion body myositis (IBM)\, a rare neuromuscular disease that causes progressive muscle weakness. Rather than step away\, Joe has continued playing\, advocating\, and raising awareness for disc golf and IBM. Now living with IBM for over a decade\, he credits staying active — walking\, strength training\, daily movement\, and keeping a positive outlook as keys to maintaining his quality of life. \nWhy support TMA? IBM currently has no approved treatment or cure\, and research funding is critical. By participating or donating through Joe’s campaign\, you’re backing the organization working hardest to change that. \nPlay a round on May 9 or support Joe from wherever you are. Help him reach his goal of $5\,000. Every dollar counts\, and Joe plans to match dollar for dollar up to $500! Thank you!🥏 \nRegistration open!
URL:https://300.myositis.org/event/jjs-myositis-marathon-in-person-virtual-disc-golf-fundraiser/
LOCATION:First Calvary Baptist Church\, 5495 S Robert Trail\, Inver Grove Heights\, MN\, 55077\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Jumpin-Joe-Fundraiser-QR-Code-2.png
ORGANIZER;CN="Joe Feidt":MAILTO:jfeidt1@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260501T080000
DTEND;TZID=America/New_York:20260501T150000
DTSTAMP:20260421T193948Z
CREATED:20251021T194332Z
LAST-MODIFIED:20260421T193948Z
UID:10001899-1777622400-1777647600@300.myositis.org
SUMMARY:TMA Open - Tee it up during Myositis Awareness Month\, supporting myositis research and patient well-being!
DESCRIPTION:Chip in for a great cause during Myositis Awareness Month at our TMA Open!\nRegister Now! \nSupport myositis research and patient well-being on Friday\, May 1 at 9:00 AM (check-in 8:00 AM) at Blue Ridge Shadows Golf Course in Front Royal\, VA. \n\nFormat: Captain’s Choice\nPrice: Teams $500 | Individual $150 | Virtual golfers welcome!\nAwards: 1st\, 2nd\, and 3rd Place Teams; Longest Drive; Closest to the Pin\nAll golfers eligible to win high-value prizes: Golf prizes include brand-new Titleist Vokey wedge with 60-degree loft\, Callaway Micro Pro laser rangefinder\, and Shadows Club membership! Additional prizes include a special Avon gift basket\, plus ticket packages from the Washington Wizards (NBA)\, Washington Nationals (MLB)\, DC United (MLS)\, and more.\nSponsorships: Hole Sponsorship with tee box signage for $500 or Tournament Sponsorship including foursome with premium tee box signage\, club house signage\, and digital ad for $1\,500\nRegistrations due: By 4/25/2026 and payments due: By 4/30/2026\nRemit: Register and donate securely online with credit card or PayPal payment\, or via Venmo: @themyositisassociation.\n\nIncludes golf\, cart\, range balls\, lunch plus team and individual prizes. On course games\, 50/50\, and mulligans for sale! \nJoin Us! \n \n \nThank you to our sponsor\, Peake Technologies. Questions? Contact Ike Eichenbrenner: eichenbren@gmail.com | 703-599-4345 \n“Golfweek Magazine” ranked #3 Best Public Course in Virginia!
URL:https://300.myositis.org/event/tma-open-2026/
LOCATION:Blue Ridge Shadows Golf Club\, 456 Shadows Drive\, Front Royal\, VA\, 22630\, United States
CATEGORIES:Commemorative,Community Meetups,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Tee-off-for-TMA-2026-220-x-220-px.png
ORGANIZER;CN="Ike Eichenbrenner":MAILTO:eichenbren@gmail.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260508T005750Z
CREATED:20260420T171242Z
LAST-MODIFIED:20260508T005750Z
UID:10003429-1777593600-1780271999@300.myositis.org
SUMMARY:CartoonGems Myositis Awareness Month Fundraiser
DESCRIPTION:Honey Dee – May is “Myositis Awareness” Month and I am here to help get the word out for all of those affected by this rare disease.\n\n\nWatch for merchandise available in the CartoonGems online store to show your support for those affected. During the month of May ALL proceeds from “Myositis Awareness” merchandise will be split between The Myositis Association and Myositis Support and Understanding.\n\n\n\n\n\n\n#cartoongems #HoneyDee #myositis #myositisawareness #raredisease #merchandise #themyositisassociation
URL:https://300.myositis.org/event/cartoongems-myositis-fundraiser/
LOCATION:https://cartoongems-shop.fourthwall.com/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/04/Rumpf-Fundraising-image.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003166-1777593600-1780271999@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2026-05-01/
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260422
DTEND;VALUE=DATE:20260509
DTSTAMP:20260421T204240Z
CREATED:20260421T204240Z
LAST-MODIFIED:20260421T204240Z
UID:10003432-1776816000-1778284799@300.myositis.org
SUMMARY:Myositis Awareness Month 2026 Merch - Raise Awareness Year-round!
DESCRIPTION:Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! \nOrder deadline is May 8\, 2026. Eight designs are available with multiple styles\, colors\, and sizes. Your order will ship directly to you at the end of May from Custom Ink. \nWe’d love to be tagged on social media in photos of you\, your friends\, your family\, and your pets rocking TMA apparel. \nSupport TMA Here \n 
URL:https://300.myositis.org/event/myositis-awareness-month-2026-merch-raise-awareness-year-round/
LOCATION:https://www.customink.com/fundraising/MAM2026
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/04/2026-Merch.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260422
DTEND;VALUE=DATE:20260506
DTSTAMP:20260422T134221Z
CREATED:20260421T201009Z
LAST-MODIFIED:20260422T134221Z
UID:10003431-1776816000-1778025599@300.myositis.org
SUMMARY:AVON Supports Myositis Awareness
DESCRIPTION:Shop for makeup\, skin care\, fragrance\, and more — while supporting TMA’s important mission during Myositis Awareness Month! \n Support TMA \n  \nThe Avon Fundraising program helps charities like TMA connect with an Avon Ambassador to raise money for a worthy cause. Kathy Eichenbrenner\, an Avon Ambassador in Charlotte\, NC\, is promoting this Avon fundraiser for Myositis Awareness Month! The Avon fundraiser extends until May 5\, 2026\, and coincides with the TMA Open golf tournament\, which also benefits TMA’s efforts increase myositis awareness among the public. \n100% of Kathy’s Avon profits raised during this two-week Avon campaign will go towards TMA. A donation goal of $500 has been set. Please help us reach this goal!
URL:https://300.myositis.org/event/avon-supports-myositis-awareness/
LOCATION:https://www.avon.com/fundraiser/TMA?rep=keichenbrenner 
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/04/AVON-Fundraiser-MAM-2026-1600-x-500-220-x-220-px.png
ORGANIZER;CN="Kathy Eichenbrenner":MAILTO:kathyforavon@att.net
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T120000
DTEND;TZID=America/New_York:20260416T120000
DTSTAMP:20260316T185415Z
CREATED:20260219T174644Z
LAST-MODIFIED:20260316T185415Z
UID:10003165-1776254400-1776340800@300.myositis.org
SUMMARY:2026 Giving Challenge
DESCRIPTION:TMA has a wonderful opportunity to be part of the Giving Challenge\, a special day of giving hosted by the Community Foundation of Sarasota County. This one-day event starting April 15 will double your generosity to TMA! Donations made online during a 24-hour period will be matched by The Patterson Foundation (up to $100 per donor). Some of the proceeds will go to support TMA’s Southwest Florida KIT\, which supports hundreds of myositis patients and connected this amazing local opportunity to TMA. From noon on April 15 to noon on April 16\, Eastern Time\, please visit GivingChallenge.org and make an online donation to TMA. Your generous gift will be multiplied to help TMA provide information\, support\, advocacy\, connectivity\, and research to support those affected by myositis. \nDonate here!
URL:https://300.myositis.org/event/2026-giving-challenge/
LOCATION:https://www.givingchallenge.org/organizations/themyositisassociation
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-123918.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260221
DTEND;VALUE=DATE:20260301
DTSTAMP:20260219T173456Z
CREATED:20260217T161945Z
LAST-MODIFIED:20260219T173456Z
UID:10003163-1771632000-1772323199@300.myositis.org
SUMMARY:Rare Disease Week MyoCon 2026 Scholarship Fundraiser
DESCRIPTION:Help Us Raise $5\,000 for TMA’s Patient Conference Scholarship Fund \nAttending MyoCon: TMA’s Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families\, providing education\, support\, and a sense of community. This year\, for Rare Disease Week\, February 23-27\, 2026\, our goal is to bring together 50 donors and raise $5\,000 to provide conference scholarships. Your donation\, no matter the size\, helps bring hope and connection to patients who need it most. Give today and help us reach our goal.
URL:https://300.myositis.org/event/rare-disease-week-myocon-2026-scholarship-fundraiser/
LOCATION:https://www.myositis.org/scholarships/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-111652.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
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