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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260504T113107Z
CREATED:20260223T160256Z
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UID:10003177-1777896000-1777899600@300.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://300.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260504T141427Z
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260508T110000
DTEND;TZID=America/New_York:20260508T140000
DTSTAMP:20260504T192628Z
CREATED:20260203T215922Z
LAST-MODIFIED:20260504T192628Z
UID:10003031-1778238000-1778248800@300.myositis.org
SUMMARY:MyoLive! TMA Open House (in-person event & FB livestream)
DESCRIPTION:In celebration of Myositis Awareness Month\, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an “Ask the Expert” session along with an informal luncheon and open networking in TMA’s office. Don’t miss your chance to view TMA history\, mingle with other families affected by myositis\, and increase public awareness of myositis!   \nIf you are in the DC/Baltimore area\, please join us for this in-person event. RSVPs are requested by Wednesday\, May 6. \nRegister Now! \nOur guest speaker is Iago Pinal-Fernandez\, MD\, PhD\, a Staff Clinician in the Muscle Disease Unit of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health\, and an Adjunct Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine. Dr. Pinal-Fernandez focuses on understanding the pathogenesis of inflammatory muscle diseases and on improving the diagnosis\, prognosis\, and treatment of patients with these conditions. \nSchedule \n\n11:00 Check-in\n11:30 Luncheon\n12:00 Program: Ask the Expert with Dr. Iago Pinal-Fernandez\n1:00 Open House: Special Myositis Awareness Swag\n\nThe educational portion of the Open House will be streamed on a live video broadcast. Advance registration is not necessary for the Facebook livestream. Simply tune in online on May 8 at TMA’s Facebook page. \nThank you to TMA Corporate Advisory Council member Abcuro and to Pharma Fusion for sponsoring our Ask the Expert\, Luncheon\, and Open House. \n \n 
URL:https://300.myositis.org/event/save-the-date-tma-open-house-in-person-event-fb-livestream/
LOCATION:TMA Office\, 6950 Columbia Gateway Drive Suite 370\, Columbia\, MD\, 21046\, United States
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Open-House-May-8-2026-1.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T160000
DTEND;TZID=America/New_York:20260513T170000
DTSTAMP:20260505T194928Z
CREATED:20260203T214905Z
LAST-MODIFIED:20260505T194928Z
UID:10003030-1778688000-1778691600@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Dermatomyositis (DM) Edition
DESCRIPTION:In recognition of Myositis Awareness Month and DM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik\, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins\, who will share expert insights on DM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Kaniah Gunter\, a dedicated TMA volunteer living with DM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about DM and the myositis experience.
URL:https://300.myositis.org/event/29385/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-DM-5.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_7oT8PXpDQwO1F5VBOsbzYg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T120000
DTEND;TZID=America/New_York:20260520T130000
DTSTAMP:20260506T172654Z
CREATED:20260227T004240Z
LAST-MODIFIED:20260506T172654Z
UID:10003179-1779278400-1779282000@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Polymyositis (PM) and Overlap Myositis (OM)
DESCRIPTION:  \nAs part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis\, MD\, a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of PM\, OM\, and the impact of myositis. A special than you to our Myositis Awareness Month sponsor argenx for support Diagnosis Day: PM & OM! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-polymyositis-pm-and-overlap-myositis-om/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-PM-OM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_ClCsiGvPQo2ebDdzia7Gqw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260527
DTEND;VALUE=DATE:20260528
DTSTAMP:20260309T073320Z
CREATED:20260227T005949Z
LAST-MODIFIED:20260309T073320Z
UID:10003180-1779840000-1779926399@300.myositis.org
SUMMARY:Diagnosis Day: Inclusion Body Myositis (IBM
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. Next\, we will come together for Cafe Chat IBM Edition to socialize as a community. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of IBM and the impact of myositis. \n 
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T120000
DTEND;TZID=America/New_York:20260527T130000
DTSTAMP:20260527T003833Z
CREATED:20260309T073615Z
LAST-MODIFIED:20260527T003833Z
UID:10003253-1779883200-1779886800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Inclusion Body Myositis (IBM) Edition
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, Dr. Jens Schmidt\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. This webinar will be hosted by past TMA Board of Directors member Nita Sharma. Thank you to our sponsor Abcuro for their support of IBM Diagnosis Day. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Ask-the-Expert-IBM-7.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SkMRa_oTQ1itlJ6hqWAlLw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T120000
DTEND;TZID=America/New_York:20260528T130000
DTSTAMP:20260527T004316Z
CREATED:20260227T011101Z
LAST-MODIFIED:20260527T004316Z
UID:10003183-1779969600-1779973200@300.myositis.org
SUMMARY:Enriching your Life with Assistive Technology
DESCRIPTION:As we close out Myositis Awareness Month\, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently\, comfortably\, and fully. \nWe are thrilled to welcome Monique Chabot\, PhD\, OTD\, OTR/L\, FAOTA\, SCEM\, CLIPP\, CAPS\, Associate Director of Assistive Technology at the Institute on Disabilities at Temple University\, as our featured speaker. Monique is a licensed Occupational Therapist and design researcher with deep expertise in assistive technology\, aging in place\, smart home technology\, and inclusive design. She earned a PhD in Architecture and Design Research at Thomas Jefferson University\, where her work focuses on integrating smart technology to support independent living. An accomplished clinician and researcher\, Monique was recently honored with induction into the AOTA Roster of Fellows in recognition of her outstanding contributions to the field of occupational therapy. \nMonique represents TechOWL (Technology for Our Whole Lives)\, Pennsylvania’s designated Assistive Technology Act Program\, housed within the Institute on Disabilities at Temple University’s College of Education and Human Development. As one of 56 AT Act programs across the United States\, TechOWL connects people of all ages and abilities across Pennsylvania with the tools and technology they need to live\, work\, learn\, and communicate more independently — at no cost. \nDuring this webinar\, we’ll explore how assistive technology can address the unique challenges faced by those living with myositis\, including tools that support mobility\, communication\, daily living\, and more. We’ll also take a closer look at TechOWL’s Assistive Technology Lending Library — a free resource of assistive devices to borrow and trial before making any purchasing decisions. Whether you’re newly diagnosed or have been navigating myositis for years\, this is a valuable opportunity to discover resources that could make a meaningful difference in your everyday life. \nThis webinar will be hosted by Immediate Past Board Chair Laurie Boyer. \nDon’t miss this inspiring conversation to close out Myositis Awareness Month! \nRegister Here
URL:https://300.myositis.org/event/enriching-your-life-with-assistive-technology/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/2-Assistive-Technology-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_UTVhbKV5Q6GgjKp5whFp_A
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