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DTSTART;TZID=America/New_York:20261104T160000
DTEND;TZID=America/New_York:20261104T170000
DTSTAMP:20261028T165220Z
CREATED:20261012T201149Z
LAST-MODIFIED:20261028T165220Z
UID:10003743-1793808000-1793811600@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Chris Mecoli
DESCRIPTION:Have myositis questions for a rheumatologist? Now’s your chance to get expert insight in a relaxed\, open format. \nJoin us for a special Ask the Expert session featuring Christopher Mecoli\, MD\, MHS\, Associate Professor of Medicine; Director of Research Operations and Physician Lead for the Myositis Precision Center of Excellence at Johns Hopkins University. \nDr. Christopher Mecoli is a physician-scientist in the Division of Rheumatology. He is a graduate of New Jersey Medical School and received a Master’s degree in clinical investigation from the Johns Hopkins Bloomberg School of Public Health. He pursued internship and residency training at the University of Pennsylvania in Philadelphia\, after which he completed a fellowship in rheumatology at Johns Hopkins. \nDr. Mecoli serves as the Director of Research Operations and Physician Lead for the Myositis Precision Center of Excellence. Dr. Mecoli’s research focus includes the association between cancer and myositis\, development of myositis patient-reported outcome measures\, and autoantibodies. \n  \nThank you to our webinar sponsor Bristol Myers Squibb. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community.
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-chris-mecoli/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/10/ATE-NOV-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JflhCysHSIioJUyTJnwLww
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261023T120000
DTEND;TZID=America/New_York:20261023T130000
DTSTAMP:20261022T145937Z
CREATED:20260810T184737Z
LAST-MODIFIED:20261022T145937Z
UID:10003568-1792756800-1792760400@300.myositis.org
SUMMARY:MyoCon Reunion & Staying Acquainted (virtual session)
DESCRIPTION:MyoCon may be over\, but the connections don’t have to end there! Join us for this virtual reunion to reflect on the conference and keep the momentum going with the friends you made in St. Louis. \nWe’ll kick off with a 30-minute recap presentation looking back at MyoCon 2026 — highlights\, key takeaways\, and a chance to relive some of the best moments from the conference together. \nThen\, we’ll break into small group rooms by diagnosis type for 30 minutes of “staying acquainted” time. Reconnect with the folks in your diagnosis-specific breakout from Conference Orientation\, share how you’re feeling post-conference\, and keep building the friendships and support networks you started at MyoCon. \nWhether you attended in person\, joined virtually\, or are just looking to stay connected with your myositis community\, come reminisce\, reconnect\, and keep the MyoCon spirit alive! \nRegister Here
URL:https://300.myositis.org/event/myocon-reunion-staying-acquainted-virtual-session/
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Conference-Reunion-Staying-Acquainted-2.png
LOCATION:https://us02web.zoom.us/meeting/register/Qtxrg6MsRTmT-GBCopQBdA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260630T222247Z
CREATED:20260630T221543Z
LAST-MODIFIED:20260630T222247Z
UID:10003545-1792087200-1792090800@300.myositis.org
SUMMARY:Ask the Expert Speech and Swallowing Edition
DESCRIPTION:Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis\, featuring Dr. Georgia Malandraki\, a member of The Myositis Association’s Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis\, affecting communication\, nutrition\, and quality of life. Dr. Malandraki will answer your questions on the causes of swallowing difficulty in myositis\, evaluation and treatment approaches\, exercise-based and telehealth rehabilitation options\, and strategies for managing speech and swallowing changes day to day. Bring your questions for one of the field’s leading researchers and clinicians in dysphagia care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-speech-and-swallowing-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-Swallowing-Oct-2026-.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVjPOq71SiWy9fFw4uUcSg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260831T162829Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260831T162829Z
UID:10003544-1789056000-1789059600@300.myositis.org
SUMMARY:Educational Event about LISRAYA (brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:This webinar is sponsored by Priovant Therapeutics. \nRegister Here
URL:https://300.myositis.org/event/dm-treatment-webinar-priovant/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/06/Priovant-Webinar-9.10.26.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@300.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-SEPT-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260810T183402Z
CREATED:20260810T183040Z
LAST-MODIFIED:20260810T183402Z
UID:10003566-1788955200-1788958800@300.myositis.org
SUMMARY:MyoCon Virtual Session - Conference Orientation & Getting Acquainted
DESCRIPTION:New to MyoCon or just want a refresher? Join us for this virtual “Know Before You Go” session designed to help you feel confident and connected before you arrive in St. Louis. \nWe’ll start with a short presentation covering what you need to know before conference: what to expect onsite\, how to navigate the schedule\, tips for making the most of your sessions\, and answers to the questions we hear most. \nThen\, we’ll break into small group rooms by diagnosis type — giving you a chance to meet other attendees who share your specific myositis subtype before the conference even begins. Whether you’re living with DM\, PM\, IBM\, IMNM\, or ASyS\, this is a great way to find a familiar face in the crowd once you’re onsite. \nCome with your questions\, and leave with a few new friends and a lot more confidence heading into MyoCon 2026! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-conference-orientation-getting-acquainted/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Virtual-Conference-Orientation-Getting-Acquainted-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
CREATED:20260810T181136Z
LAST-MODIFIED:20260810T181136Z
UID:10003565-1788372000-1788375600@300.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T120000
DTEND;TZID=America/New_York:20260902T130000
DTSTAMP:20260827T163342Z
CREATED:20260827T163204Z
LAST-MODIFIED:20260827T163342Z
UID:10003658-1788350400-1788354000@300.myositis.org
SUMMARY:MyoCon Virtual Session - Before You Dial 911: The 411 on Myositis in the ER
DESCRIPTION:The emergency department can be overwhelming—especially when you’re living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies\, patients often face unique challenges that aren’t always well understood by ER staff. In this session\, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal experience to help you take control before and during an emergency. You’ll learn how to recognize red flags\, prepare for common ER scenarios\, communicate effectively with triage teams\, and advocate for timely\, appropriate care—even when myositis isn’t the focus of your visit. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-before-you-dial-911-the-411-on-myositis-in-the-er-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Before-Calling-911-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T110000
DTEND;TZID=America/New_York:20260902T120000
DTSTAMP:20260827T213915Z
CREATED:20260827T213915Z
LAST-MODIFIED:20260827T213915Z
UID:10003659-1788346800-1788350400@300.myositis.org
SUMMARY:Dermatomyositis: Can Fish Oil Help? A Special Patient Webinar on the NIH FAST for DM Clinical Trial
DESCRIPTION:MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. \nFAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation\, together with a healthy study diet\, can reduce dermatomyositis disease activity and improve strength\, function\, and quality of life. \nDuring this webinar\, the study team will explain: \n\nWhy omega-3 fatty acids are being studied in dermatomyositis\nWhat the FAST for DM trial is designed to learn\nWho may be eligible to participate\nWhat participants can expect during the study\nHow to learn more and connect with the NIH study team\n\nThe study is enrolling adults ages 18–60 with adult or juvenile dermatomyositis who meet eligibility criteria. \nRegister Here \nHosted by MIHRA Foundation \nwith the Environmental Autoimmunity Group\, National Institute of Environmental Health Sciences (NIEHS)\, NIH Clinical Center \n 
URL:https://300.myositis.org/event/dermatomyositis-can-fish-oil-help-a-special-patient-webinar-on-the-nih-fast-for-dm-clinical-trial/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/MIHRA-NIEHS-FAST-DIET-SM-_-Newsletter-Uploadable-Image-1.png
LOCATION:https://zoom.us/webinar/register/5217866875725/WN_bQNA5crxRnKtDyj6cTLhTw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260826T160000
DTEND;TZID=America/New_York:20260826T170000
DTSTAMP:20260810T212516Z
CREATED:20260810T212150Z
LAST-MODIFIED:20260810T212516Z
UID:10003569-1787760000-1787763600@300.myositis.org
SUMMARY:Understanding Veteran Directed Care: What Veterans Need to Know
DESCRIPTION:For many veterans living with myositis\, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing\, dressing\, meal preparation\, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own homes by giving them a flexible budget to hire and direct their own caregivers\, including\, in many cases\, family members or friends. \nJoin us for this informative Ask the Expert webinar as Amanda Icenhower\, LCSW\, Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics\, walks us through how the VDC program works\, who qualifies\, and how veterans and their families can access these services. This session is especially relevant for veterans living with myositis who need support with activities of daily living but want to maintain choice and control over their care. \nAmanda will cover: \n\nWhat Veteran Directed Care is and how it differs from other VA home care programs\nEligibility requirements and how to apply\nHow the flexible spending budget works and what it can be used for\nHow veterans can hire family members or trusted individuals as caregivers\nWhere to go for more information and how to get started\n\nWhether you’re a veteran\, a care partner\, or a family member helping navigate care options\, this webinar will provide practical\, actionable information to help you understand this valuable — and often underutilized — VA benefit. \nREGISTER HERE \nSpeaker: Amanda Icenhower\, LCSW\, is the Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics (SORCC) in White City\, Oregon\, where she helps veterans access person-centered\, self-directed home care services.
URL:https://300.myositis.org/event/understanding-veteran-directed-care-what-veterans-need-to-know/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/08/VDC-Aug-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_zTttSSv4TpaYvxhVI3GX5w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T180000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260629T200633Z
CREATED:20260519T195443Z
LAST-MODIFIED:20260629T200633Z
UID:10003439-1787248800-1787252400@300.myositis.org
SUMMARY:Ask the Expert featuring Chris Weihl\, MD\, PhD
DESCRIPTION:Have myositis questions for a neurologist? Now’s your chance to ask one of the field’s leading specialists. \nJoin us for a special Ask the Expert session featuring Conrad C. Weihl\, MD\, PhD\, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice on the mechanisms of weakness and atrophy related to neuromuscular disorders\, including inflammatory myopathy and inclusion body myositis. He has an active clinical and basic science research program focused on genetics\, protein aggregate myopathies\, inclusion body myositis\, and limb-girdle muscular dystrophies. \nWhether you’re navigating a new diagnosis\, wondering about muscle weakness\, or curious about the latest research in IBM and other inflammatory myopathies\, this is your opportunity to get expert insight in a relaxed\, open format. \nBring your questions — Dr. Weihl is here to help you understand what’s happening in your muscles and what it means for your care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-chris-weihl-md-phd/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/ATE-AUG-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JAu8s2m7TheK2HevXkjBkg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20260804T150000
DTEND;TZID=UTC:20260804T160000
DTSTAMP:20260625T220020Z
CREATED:20260625T220020Z
LAST-MODIFIED:20260625T220020Z
UID:10003538-1785855600-1785859200@300.myositis.org
SUMMARY:Ask the Expert Arabic Edition - as'al alkhabir - alnuskhat alearabia
DESCRIPTION:TMA is excited to bring our beloved Ask the Expert series to our Arabic-speaking community! Join us for a special session with Dr. Elie Naddaf\, a neurologist and myositis specialist\, who will answer your questions in Arabic. \nThis is your chance to get clear\, expert answers to the questions that matter most to you — about diagnosis\, treatment\, symptom management\, and living well with myositis — in your own language\, from someone who understands both the science and the lived experience of this rare disease. \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. \nالنسخة العربية \nاسأل الخبير: النسخة العربية مع الدكتور إيلي نداف \nتسعد جمعية TMA بتقديم سلسلة “اسأل الخبير” المحبوبة لمجتمعنا الناطق بالعربية! انضموا إلينا في جلسة خاصة مع الدكتور إيلي نداف، اختصاصي أمراض الأعصاب وخبير في التهاب العضلات (Myositis)، الذي سيجيب على أسئلتكم باللغة العربية. \nهذه فرصتكم للحصول على إجابات واضحة ودقيقة من خبير على الأسئلة الأكثر أهمية بالنسبة لكم — حول التشخيص، العلاج، التعامل مع الأعراض، والعيش بشكل أفضل مع هذا المرض — بلغتكم الأم، من شخص يفهم الجانب العلمي والتجربة الحقيقية لهذا المرض النادر. \nتُعد سلسلة “اسأل الخبير” التابعة لـ TMA هي الأكثر شعبية بين ندواتنا الإلكترونية. فهي تتيح لأفراد مجتمعنا فرصة الحصول على إجابات لأسئلتهم الملحّة من خبير قد يكون أكثر معرفة من طبيبهم الخاص. كما تمنحهم هذه الجلسات فرصة للتعرف على أحد أعضاء المجلس الاستشاري الطبي لجمعية TMA أو على شخصية بارزة أخرى في المجتمع الطبي المتخصص في التهاب العضلات. \nsjjl huna
URL:https://300.myositis.org/event/ask-the-expert-arabic-edition-asal-alkhabir-alnuskhat-alearabia/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-Arabic-2026.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_IoCFc1rkRciusbPw2ZA7oQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260729T150000
DTEND;TZID=America/New_York:20260729T160000
DTSTAMP:20260625T210444Z
CREATED:20260625T210444Z
LAST-MODIFIED:20260625T210444Z
UID:10003537-1785337200-1785340800@300.myositis.org
SUMMARY:The Boundary Blueprint: Keeping Your Sanity in a World Full of Options
DESCRIPTION:Living with myositis means navigating a constant stream of input — from well-meaning family members\, friends\, and co-workers who don’t always know what to say (or when to say it). This webinar tackles the art of setting healthy boundaries with the people closest to you\, and gives you practical language for handling tricky questions and unsolicited advice (“Have you tried yoga?” anyone?). Walk away with real tools to protect your energy\, your peace of mind\, and your relationships. \nAbout the Speaker: Stefanie Remson\, MSN\, APRN\, FNP-BC\, is a family nurse practitioner\, rheumatoid arthritis patient\, and the founder and CEO of Rheumatoid Arthritis Coach\, where she works one-on-one with people living with chronic illness to manage their symptoms\, protect their wellbeing\, and reclaim their lives. Drawing on both her medical background and her own journey with RA\, Stefanie has helped hundreds of people set boundaries\, advocate for themselves\, and build a life that works with their illness — not against it. She has partnered with organizations including the Arthritis Foundation\, the Lupus Foundation of America\, and Healthline\, and is a sought-after speaker and writer on chronic illness\, self-advocacy\, and resilience. \nRegister Here
URL:https://300.myositis.org/event/the-boundary-blueprint-keeping-your-sanity-in-a-world-full-of-options/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/Boundaries-July-2026.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_0SDSEKy3SC-APtcQlk1aVQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260723T120000
DTEND;TZID=America/New_York:20260723T130000
DTSTAMP:20260625T211705Z
CREATED:20251209T231125Z
LAST-MODIFIED:20260625T211705Z
UID:10002117-1784808000-1784811600@300.myositis.org
SUMMARY:Ask the Expert Dermatology Edition featuring Victoria Werth\, MD
DESCRIPTION:Have questions about the skin symptoms of dermatomyositis? This is your chance to get answers straight from one of the world’s leading experts. \nJoin us for a special Ask the Expert session featuring Victoria Werth\, MD\, Professor of Dermatology and Medicine at the Perelman School of Medicine at the University of Pennsylvania and Chief of the Division of Dermatology at the Philadelphia Veterans Administration Hospital. A longtime member of TMA’s Medical Advisory Board\, Dr. Werth has devoted her career to clinical and translational research in cutaneous autoimmune diseases — with a particular focus on dermatomyositis. Her groundbreaking work has helped shape how DM skin disease is understood\, measured\, and treated. \nWhether you’re curious about rashes\, sun sensitivity\, treatment options\, or the latest research developments\, bring your burning questions and get answers from a global expert in DM. \nDon’t miss this opportunity to connect with one of the foremost voices in dermatomyositis care. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community.
URL:https://300.myositis.org/event/ask-the-expert-dermatology-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Vickie-ATE-Dermatology-1.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_iAVBSkAIQwOaF6gU6UaGqA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260707T120000
DTEND;TZID=America/New_York:20260707T130000
DTSTAMP:20260707T145934Z
CREATED:20260609T204440Z
LAST-MODIFIED:20260707T145934Z
UID:10003535-1783425600-1783429200@300.myositis.org
SUMMARY:Diet and Nutrition Challenges in Myositis: Entry Points to the FAST for DM Trial
DESCRIPTION:This webinar will review different nutrients and diets and what is known about their effects on autoimmune diseases. Speakers Kirstin Zambell\, PhD\, RD\, Clinical Research Dietitian at National Institutes of Health (NIH) and Lisa Rider\, MD\, Pediatric Rheumatologist and Head of the Environmental Autoimmunity Group at National Institute of Environmental Health Sciences\, National Institutes of Health (NIH NIEHS) will also introduce a new clinical trial at the NIH\, FAST for DM. This is a study focused on examining the effects of dietary interventions on dermatomyositis\, including omega-3 fatty acids and a general healthy eating pattern diet. \nRegister Here
URL:https://300.myositis.org/event/diet-and-nutrition-challenges-in-myositis-entry-points-to-the-fast-for-dm-trial/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/NIH-Nutrition-Webinar-2.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_736wLZkQRDmySU1YynIYgA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T180000
DTEND;TZID=America/New_York:20260618T190000
DTSTAMP:20260203T202058Z
CREATED:20260203T193126Z
LAST-MODIFIED:20260203T202058Z
UID:10003028-1781805600-1781809200@300.myositis.org
SUMMARY:Ask the Expert Pulmonology Edition featuring Dr. Robert Hallowell
DESCRIPTION:For those with DM\, PM\, NM and with or without ILD. Join us for an informative and supportive Ask the Expert webinar featuring Dr. Robert Hallowell\, Director\, Interstitial Lung Disease Program Director\, Pulmonary Ambulatory Clinic at Massachusetts General Hospital.  This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. \nDr. Hallowell will share his clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their local doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. Submit your question when you register!
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-robert-hallowell/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/ATE-Hallowell-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_cGcIMcRfSnuB2--WnsBstg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T180000
DTEND;TZID=America/New_York:20260617T190000
DTSTAMP:20260602T180110Z
CREATED:20260519T162537Z
LAST-MODIFIED:20260602T180110Z
UID:10003438-1781719200-1781722800@300.myositis.org
SUMMARY:Patient Perspectives on a Potential New Dermatomyositis Therapy: Exploring Insights from the Phase 3 VALOR Trial
DESCRIPTION:Join Dr. Prateek Gandiga\, a leading expert in dermatomyositis (DM)\, for a discussion on patient experiences in the VALOR trial\, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral medication about their symptoms\, daily activities\, quality of life\, and overall well-being. Understand what these findings may mean for patients with DM and why patient-focused research is so important to advancing care for this condition. Thank you to our sponsor Priovant Therapeutics. \nRegister Here
URL:https://300.myositis.org/event/priovant-sponsored-webinar-featuring-dr-prateek-gandiga/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/Priovant-Valor-Study-Webinar-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SxoDBVUQRO2T9-qc9kZ1Zg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260609T180000
DTEND;TZID=America/New_York:20260609T190000
DTSTAMP:20260203T210620Z
CREATED:20260203T204439Z
LAST-MODIFIED:20260203T210620Z
UID:10003029-1781028000-1781031600@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Iago Pinal-Fernandez
DESCRIPTION:Join us for Myositis Research Insights\, a special webinar on June 9 at 6:00 PM\, featuring internationally recognized myositis researcher Dr. Iago Pinal Fernandez. Dr. Pinal Fernandez will share key findings from his work\, highlighting advances in understanding myositis subtypes\, disease mechanisms\, and implications for diagnosis and treatment. This webinar offers a valuable opportunity to learn directly from cutting‑edge research and engage in discussion about what these insights mean for the myositis community. \nRegister Here \nTMA’s Myositis Research Insight Series  is the community’s chance to hear directly from the scientists who are hard at work trying to unravel the biology behind myositis and searching for new therapies. Researchers discuss one of their latest projects and answer questions about their work.
URL:https://300.myositis.org/event/myositis-research-insights-featuring-dr-iago-pinal-fernandez/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/02/June-2026-Iago-MRI.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_gy0rskKeR7SUc9jYCczk4w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260602T180000
DTEND;TZID=America/New_York:20260602T190000
DTSTAMP:20260519T164055Z
CREATED:20260228T135426Z
LAST-MODIFIED:20260519T164055Z
UID:10003185-1780423200-1780426800@300.myositis.org
SUMMARY:Natural Killer (NK) Cells in Myositis: Emerging Science and Therapeutic Potential
DESCRIPTION:What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? \n  \nNatural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis — whether they contribute to muscle inflammation\, help regulate immune responses\, or could become a target for future therapies. \nJoin us for an in-depth look at the latest research on NK cells in myositis\, what scientists are discovering\, and what these findings may mean for people living with myositis. Whether you are newly diagnosed or have been navigating myositis for years\, speakers Lisa Christopher-Stine\, MD\, MHS and Shawn Rose\, MD\, PhD will help you better understand this emerging area of science and where it may lead. Thank you to webinar sponsor Nkarta. \nRegister Here
URL:https://300.myositis.org/event/natural-killer-nk-cells-in-myositis-emerging-science-and-therapeutic-potential/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Nkarta-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_iEihf20wRkmNSaXhk58kxg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T120000
DTEND;TZID=America/New_York:20260528T130000
DTSTAMP:20260527T004316Z
CREATED:20260227T011101Z
LAST-MODIFIED:20260527T004316Z
UID:10003183-1779969600-1779973200@300.myositis.org
SUMMARY:Enriching your Life with Assistive Technology
DESCRIPTION:As we close out Myositis Awareness Month\, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently\, comfortably\, and fully. \nWe are thrilled to welcome Monique Chabot\, PhD\, OTD\, OTR/L\, FAOTA\, SCEM\, CLIPP\, CAPS\, Associate Director of Assistive Technology at the Institute on Disabilities at Temple University\, as our featured speaker. Monique is a licensed Occupational Therapist and design researcher with deep expertise in assistive technology\, aging in place\, smart home technology\, and inclusive design. She earned a PhD in Architecture and Design Research at Thomas Jefferson University\, where her work focuses on integrating smart technology to support independent living. An accomplished clinician and researcher\, Monique was recently honored with induction into the AOTA Roster of Fellows in recognition of her outstanding contributions to the field of occupational therapy. \nMonique represents TechOWL (Technology for Our Whole Lives)\, Pennsylvania’s designated Assistive Technology Act Program\, housed within the Institute on Disabilities at Temple University’s College of Education and Human Development. As one of 56 AT Act programs across the United States\, TechOWL connects people of all ages and abilities across Pennsylvania with the tools and technology they need to live\, work\, learn\, and communicate more independently — at no cost. \nDuring this webinar\, we’ll explore how assistive technology can address the unique challenges faced by those living with myositis\, including tools that support mobility\, communication\, daily living\, and more. We’ll also take a closer look at TechOWL’s Assistive Technology Lending Library — a free resource of assistive devices to borrow and trial before making any purchasing decisions. Whether you’re newly diagnosed or have been navigating myositis for years\, this is a valuable opportunity to discover resources that could make a meaningful difference in your everyday life. \nThis webinar will be hosted by Immediate Past Board Chair Laurie Boyer. \nDon’t miss this inspiring conversation to close out Myositis Awareness Month! \nRegister Here
URL:https://300.myositis.org/event/enriching-your-life-with-assistive-technology/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/2-Assistive-Technology-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_UTVhbKV5Q6GgjKp5whFp_A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T120000
DTEND;TZID=America/New_York:20260527T130000
DTSTAMP:20260527T003833Z
CREATED:20260309T073615Z
LAST-MODIFIED:20260527T003833Z
UID:10003253-1779883200-1779886800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Inclusion Body Myositis (IBM) Edition
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, Dr. Jens Schmidt\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. This webinar will be hosted by past TMA Board of Directors member Nita Sharma. Thank you to our sponsor Abcuro for their support of IBM Diagnosis Day. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Ask-the-Expert-IBM-7.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SkMRa_oTQ1itlJ6hqWAlLw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260527
DTEND;VALUE=DATE:20260528
DTSTAMP:20260309T073320Z
CREATED:20260227T005949Z
LAST-MODIFIED:20260309T073320Z
UID:10003180-1779840000-1779926399@300.myositis.org
SUMMARY:Diagnosis Day: Inclusion Body Myositis (IBM
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. Next\, we will come together for Cafe Chat IBM Edition to socialize as a community. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of IBM and the impact of myositis. \n 
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T120000
DTEND;TZID=America/New_York:20260520T130000
DTSTAMP:20260506T172654Z
CREATED:20260227T004240Z
LAST-MODIFIED:20260506T172654Z
UID:10003179-1779278400-1779282000@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Polymyositis (PM) and Overlap Myositis (OM)
DESCRIPTION:  \nAs part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis\, MD\, a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of PM\, OM\, and the impact of myositis. A special than you to our Myositis Awareness Month sponsor argenx for support Diagnosis Day: PM & OM! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-polymyositis-pm-and-overlap-myositis-om/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-PM-OM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_ClCsiGvPQo2ebDdzia7Gqw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T160000
DTEND;TZID=America/New_York:20260513T170000
DTSTAMP:20260505T194928Z
CREATED:20260203T214905Z
LAST-MODIFIED:20260505T194928Z
UID:10003030-1778688000-1778691600@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Dermatomyositis (DM) Edition
DESCRIPTION:In recognition of Myositis Awareness Month and DM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on dermatomyositis (DM). This program will feature Dr. Julie Paik\, Associate Professor of Medicine; Co-Director of the Myositis Center; Director of Clinical Trials at Johns Hopkins\, who will share expert insights on DM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Kaniah Gunter\, a dedicated TMA volunteer living with DM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about DM and the myositis experience.
URL:https://300.myositis.org/event/29385/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-DM-5.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_7oT8PXpDQwO1F5VBOsbzYg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260508T110000
DTEND;TZID=America/New_York:20260508T140000
DTSTAMP:20260504T192628Z
CREATED:20260203T215922Z
LAST-MODIFIED:20260504T192628Z
UID:10003031-1778238000-1778248800@300.myositis.org
SUMMARY:MyoLive! TMA Open House (in-person event & FB livestream)
DESCRIPTION:In celebration of Myositis Awareness Month\, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an “Ask the Expert” session along with an informal luncheon and open networking in TMA’s office. Don’t miss your chance to view TMA history\, mingle with other families affected by myositis\, and increase public awareness of myositis!   \nIf you are in the DC/Baltimore area\, please join us for this in-person event. RSVPs are requested by Wednesday\, May 6. \nRegister Now! \nOur guest speaker is Iago Pinal-Fernandez\, MD\, PhD\, a Staff Clinician in the Muscle Disease Unit of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health\, and an Adjunct Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine. Dr. Pinal-Fernandez focuses on understanding the pathogenesis of inflammatory muscle diseases and on improving the diagnosis\, prognosis\, and treatment of patients with these conditions. \nSchedule \n\n11:00 Check-in\n11:30 Luncheon\n12:00 Program: Ask the Expert with Dr. Iago Pinal-Fernandez\n1:00 Open House: Special Myositis Awareness Swag\n\nThe educational portion of the Open House will be streamed on a live video broadcast. Advance registration is not necessary for the Facebook livestream. Simply tune in online on May 8 at TMA’s Facebook page. \nThank you to TMA Corporate Advisory Council member Abcuro and to Pharma Fusion for sponsoring our Ask the Expert\, Luncheon\, and Open House. \n \n 
URL:https://300.myositis.org/event/save-the-date-tma-open-house-in-person-event-fb-livestream/
LOCATION:TMA Office\, 6950 Columbia Gateway Drive Suite 370\, Columbia\, MD\, 21046\, United States
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Open-House-May-8-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260504T141427Z
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260504T113107Z
CREATED:20260223T160256Z
LAST-MODIFIED:20260504T113107Z
UID:10003177-1777896000-1777899600@300.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://300.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T120000
DTEND;TZID=America/New_York:20260421T130000
DTSTAMP:20260331T200351Z
CREATED:20251209T225525Z
LAST-MODIFIED:20260331T200351Z
UID:10002116-1776772800-1776776400@300.myositis.org
SUMMARY:Ask the Expert Exercise Edition
DESCRIPTION:Register Here
URL:https://300.myositis.org/event/ask-the-expert-exercise-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Helene-ATE-Exercise-April-2026-1.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_99rWW0KuR6ajISkoF89i8A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260316T153735Z
CREATED:20260316T153139Z
LAST-MODIFIED:20260316T153735Z
UID:10003187-1776340800-1776344400@300.myositis.org
SUMMARY:Myositis Self-hypnosis Workshop: Harnessing the Mind for Healing & Comfort
DESCRIPTION:Register Here \nJoin us for an empowering Zoom workshop where you’ll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You’ll discover how your thoughts influence your physical body\, how your subconscious mind is programmed\, and how hypnosis can create new positive patterns that support healing and reduce discomfort. Learn the essential skills of self-hypnosis\, including how to write effective suggestions tailored to your needs\, and experience a deeply relaxing guided group hypnosis session focused on comfort\, healing\, and vitality. No prior experience is necessary. You’ll leave with tools you can use immediately at home. Questions welcome at the end. \nTMA’s Empowerment Clinics are designed to enhance your quality of life\, whether you are the person living with myositis or a care partner. They offer useful tools and insights into common issues presented by experts on the topic and on occasion\, a TMA member with lived experience on the topic.
URL:https://300.myositis.org/event/myositis-self-hypnosis-workshop-harnessing-the-mind-for-healing-comfort-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/03/Self-Hypnosis-April-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_OGaZWL5pRdyBgoxm35V6pA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260331T120000
DTEND;TZID=America/New_York:20260331T130000
DTSTAMP:20260323T143109Z
CREATED:20260203T144135Z
LAST-MODIFIED:20260323T143109Z
UID:10003025-1774958400-1774962000@300.myositis.org
SUMMARY:Living with Myositis: Real Talk about Steroids\, Side Effects\, and Support
DESCRIPTION:TMA and Sam are joining forces for Autoimmune Awareness Month — and we’re closing it out with a conversation you won’t want to miss! Together\, we’re bringing the myositis and autoimmune communities into an open\, honest dialogue about one of the most common — and complex — parts of living with myositis: long-term steroid use. \nThis dynamic webinar featuring Matt Wilkinson\, PhD\, MBA\, on behalf of Sam\, will focus on the physical\, emotional\, and practical realities of steroid therapy and the support Sam provides for people living with myositis who rely on long-term treatment. From managing side effects to learning how to advocate for your needs within the healthcare system\, this conversation is designed to reflect the real experiences of the steroid-treated community. Whether you’re newly diagnosed or years into your journey\, you’ll leave feeling informed\, supported\, and better equipped to take an active role in your care. \nDon’t miss this powerful close to Autoimmune Awareness Month — because navigating myositis is better when we do it together. \nRegister Here
URL:https://300.myositis.org/event/living-with-myositis-real-talk-about-steroids-side-effects-and-support/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/02/AD-HOC-Webinar-2.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_T56cbdh3SnyC55pMKmQ7rg
END:VEVENT
END:VCALENDAR