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X-WR-CALNAME:The Myositis Association
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X-WR-CALDESC:Events for The Myositis Association
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
CREATED:20260810T181136Z
LAST-MODIFIED:20260810T181136Z
UID:10003565-1788372000-1788375600@300.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T120000
DTEND;TZID=America/New_York:20260909T130000
DTSTAMP:20260810T183402Z
CREATED:20260810T183040Z
LAST-MODIFIED:20260810T183402Z
UID:10003566-1788955200-1788958800@300.myositis.org
SUMMARY:MyoCon Virtual Session - Conference Orientation & Getting Acquainted
DESCRIPTION:New to MyoCon or just want a refresher? Join us for this virtual “Know Before You Go” session designed to help you feel confident and connected before you arrive in St. Louis. \nWe’ll start with a short presentation covering what you need to know before conference: what to expect onsite\, how to navigate the schedule\, tips for making the most of your sessions\, and answers to the questions we hear most. \nThen\, we’ll break into small group rooms by diagnosis type — giving you a chance to meet other attendees who share your specific myositis subtype before the conference even begins. Whether you’re living with DM\, PM\, IBM\, IMNM\, or ASyS\, this is a great way to find a familiar face in the crowd once you’re onsite. \nCome with your questions\, and leave with a few new friends and a lot more confidence heading into MyoCon 2026! \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-conference-orientation-getting-acquainted/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Virtual-Conference-Orientation-Getting-Acquainted-5.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@300.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-SEPT-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260831T162829Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260831T162829Z
UID:10003544-1789056000-1789059600@300.myositis.org
SUMMARY:Educational Event about LISRAYA (brepocitinib) sponsored by Priovant Therapeutics
DESCRIPTION:This webinar is sponsored by Priovant Therapeutics. \nRegister Here
URL:https://300.myositis.org/event/dm-treatment-webinar-priovant/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/06/Priovant-Webinar-9.10.26.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260630T222247Z
CREATED:20260630T221543Z
LAST-MODIFIED:20260630T222247Z
UID:10003545-1792087200-1792090800@300.myositis.org
SUMMARY:Ask the Expert Speech and Swallowing Edition
DESCRIPTION:Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis\, featuring Dr. Georgia Malandraki\, a member of The Myositis Association’s Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis\, affecting communication\, nutrition\, and quality of life. Dr. Malandraki will answer your questions on the causes of swallowing difficulty in myositis\, evaluation and treatment approaches\, exercise-based and telehealth rehabilitation options\, and strategies for managing speech and swallowing changes day to day. Bring your questions for one of the field’s leading researchers and clinicians in dysphagia care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-speech-and-swallowing-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-Swallowing-Oct-2026-.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVjPOq71SiWy9fFw4uUcSg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261023T120000
DTEND;TZID=America/New_York:20261023T130000
DTSTAMP:20261022T145937Z
CREATED:20260810T184737Z
LAST-MODIFIED:20261022T145937Z
UID:10003568-1792756800-1792760400@300.myositis.org
SUMMARY:MyoCon Reunion & Staying Acquainted (virtual session)
DESCRIPTION:MyoCon may be over\, but the connections don’t have to end there! Join us for this virtual reunion to reflect on the conference and keep the momentum going with the friends you made in St. Louis. \nWe’ll kick off with a 30-minute recap presentation looking back at MyoCon 2026 — highlights\, key takeaways\, and a chance to relive some of the best moments from the conference together. \nThen\, we’ll break into small group rooms by diagnosis type for 30 minutes of “staying acquainted” time. Reconnect with the folks in your diagnosis-specific breakout from Conference Orientation\, share how you’re feeling post-conference\, and keep building the friendships and support networks you started at MyoCon. \nWhether you attended in person\, joined virtually\, or are just looking to stay connected with your myositis community\, come reminisce\, reconnect\, and keep the MyoCon spirit alive! \nRegister Here
URL:https://300.myositis.org/event/myocon-reunion-staying-acquainted-virtual-session/
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Conference-Reunion-Staying-Acquainted-2.png
LOCATION:https://us02web.zoom.us/meeting/register/Qtxrg6MsRTmT-GBCopQBdA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261104T160000
DTEND;TZID=America/New_York:20261104T170000
DTSTAMP:20261028T165220Z
CREATED:20261012T201149Z
LAST-MODIFIED:20261028T165220Z
UID:10003743-1793808000-1793811600@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Chris Mecoli
DESCRIPTION:Have myositis questions for a rheumatologist? Now’s your chance to get expert insight in a relaxed\, open format. \nJoin us for a special Ask the Expert session featuring Christopher Mecoli\, MD\, MHS\, Associate Professor of Medicine; Director of Research Operations and Physician Lead for the Myositis Precision Center of Excellence at Johns Hopkins University. \nDr. Christopher Mecoli is a physician-scientist in the Division of Rheumatology. He is a graduate of New Jersey Medical School and received a Master’s degree in clinical investigation from the Johns Hopkins Bloomberg School of Public Health. He pursued internship and residency training at the University of Pennsylvania in Philadelphia\, after which he completed a fellowship in rheumatology at Johns Hopkins. \nDr. Mecoli serves as the Director of Research Operations and Physician Lead for the Myositis Precision Center of Excellence. Dr. Mecoli’s research focus includes the association between cancer and myositis\, development of myositis patient-reported outcome measures\, and autoantibodies. \n  \nThank you to our webinar sponsor Bristol Myers Squibb. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community.
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-chris-mecoli/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/10/ATE-NOV-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JflhCysHSIioJUyTJnwLww
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261208T120000
DTEND;TZID=America/New_York:20261208T130000
DTSTAMP:20261014T210942Z
CREATED:20261012T212906Z
LAST-MODIFIED:20261014T210942Z
UID:10003745-1796731200-1796734800@300.myositis.org
SUMMARY:Myositis Research Insights: Gut and Microbiome in Myositis
DESCRIPTION:What role might the trillions of microbes in our gut play in myositis? Join The Myositis Association for the next webinar in our Myositis Research Insights series\, featuring Dr. Lisa Christopher-Stine of Johns Hopkins University. \nDr. Christopher-Stine will discuss her research into the gut microbiome and its potential connection to myositis\, a project made possible by support from a TMA research grant. She will explain what the microbiome is\, why researchers are looking at it in autoimmune disease\, what her team is studying\, and what the work could mean for understanding and\, ultimately\, treating myositis. \nRegister Here
URL:https://300.myositis.org/event/myositis-research-insights-gut-and-microbiome-in-myositis/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/10/Dec-2026-LCS-MRI.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_aPEHONwNRnm-fBTojS10eQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261217T093000
DTEND;TZID=America/New_York:20261217T103000
DTSTAMP:20261012T205712Z
CREATED:20261012T205107Z
LAST-MODIFIED:20261012T205712Z
UID:10003744-1797499800-1797503400@300.myositis.org
SUMMARY:Ask the Expert: Mental Health Edition with Clinical Psychologist Dr. Christopher Graham
DESCRIPTION:Living with myositis affects more than your muscles. The uncertainty of a rare disease\, changes in physical ability\, chronic fatigue\, pain\, and the strain on relationships and daily life can all take a toll on emotional wellbeing. These challenges are real\, common\, and worth talking about. \nJoin us for a special Mental Health Edition of Ask the Expert with Dr. Christopher Graham\, a member of The Myositis Association’s Medical Advisory Board. Dr. Graham will answer your questions about the emotional side of living with myositis\, including coping with a new or ongoing diagnosis\, managing stress and anxiety\, adjusting to change\, and finding support that works for you. \nThis is your opportunity to ask questions directly\, in a supportive setting. Patients\, family members\, and caregivers are all welcome. \nSubmit your questions in advance when you register\, or ask live during the session. \n[Register Now] \nThis webinar is for educational purposes only and is not a substitute for individual medical or mental health care. If you are in crisis\, please contact the 988 Suicide & Crisis Lifeline (call or text 988 in the US) or your local emergency services.
URL:https://300.myositis.org/event/ask-the-expert-mental-health-edition-with-clinical-psychologist-dr-christopher-graham/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/10/ATE-Mental-Health-Dec-2026-.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_SVC5o1kvTqqd8prvc8F6cQ
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