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DTSTART;TZID=America/New_York:20260508T110000
DTEND;TZID=America/New_York:20260508T140000
DTSTAMP:20260504T192628Z
CREATED:20260203T215922Z
LAST-MODIFIED:20260504T192628Z
UID:10003031-1778238000-1778248800@300.myositis.org
SUMMARY:MyoLive! TMA Open House (in-person event & FB livestream)
DESCRIPTION:In celebration of Myositis Awareness Month\, TMA is opening our doors to the myositis community for a special line-up of programs. The day will feature an “Ask the Expert” session along with an informal luncheon and open networking in TMA’s office. Don’t miss your chance to view TMA history\, mingle with other families affected by myositis\, and increase public awareness of myositis!   \nIf you are in the DC/Baltimore area\, please join us for this in-person event. RSVPs are requested by Wednesday\, May 6. \nRegister Now! \nOur guest speaker is Iago Pinal-Fernandez\, MD\, PhD\, a Staff Clinician in the Muscle Disease Unit of the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health\, and an Adjunct Assistant Professor in the Department of Neurology at Johns Hopkins University School of Medicine. Dr. Pinal-Fernandez focuses on understanding the pathogenesis of inflammatory muscle diseases and on improving the diagnosis\, prognosis\, and treatment of patients with these conditions. \nSchedule \n\n11:00 Check-in\n11:30 Luncheon\n12:00 Program: Ask the Expert with Dr. Iago Pinal-Fernandez\n1:00 Open House: Special Myositis Awareness Swag\n\nThe educational portion of the Open House will be streamed on a live video broadcast. Advance registration is not necessary for the Facebook livestream. Simply tune in online on May 8 at TMA’s Facebook page. \nThank you to TMA Corporate Advisory Council member Abcuro and to Pharma Fusion for sponsoring our Ask the Expert\, Luncheon\, and Open House. \n \n 
URL:https://300.myositis.org/event/save-the-date-tma-open-house-in-person-event-fb-livestream/
LOCATION:TMA Office\, 6950 Columbia Gateway Drive Suite 370\, Columbia\, MD\, 21046\, United States
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Open-House-May-8-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260504T141427Z
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260504T113107Z
CREATED:20260223T160256Z
LAST-MODIFIED:20260504T113107Z
UID:10003177-1777896000-1777899600@300.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://300.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260421T120000
DTEND;TZID=America/New_York:20260421T130000
DTSTAMP:20260331T200351Z
CREATED:20251209T225525Z
LAST-MODIFIED:20260331T200351Z
UID:10002116-1776772800-1776776400@300.myositis.org
SUMMARY:Ask the Expert Exercise Edition
DESCRIPTION:Register Here
URL:https://300.myositis.org/event/ask-the-expert-exercise-edition/
LOCATION:https://us02web.zoom.us/webinar/register/WN_99rWW0KuR6ajISkoF89i8A
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Helene-ATE-Exercise-April-2026-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260316T153735Z
CREATED:20260316T153139Z
LAST-MODIFIED:20260316T153735Z
UID:10003187-1776340800-1776344400@300.myositis.org
SUMMARY:Myositis Self-hypnosis Workshop: Harnessing the Mind for Healing & Comfort
DESCRIPTION:Register Here \nJoin us for an empowering Zoom workshop where you’ll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You’ll discover how your thoughts influence your physical body\, how your subconscious mind is programmed\, and how hypnosis can create new positive patterns that support healing and reduce discomfort. Learn the essential skills of self-hypnosis\, including how to write effective suggestions tailored to your needs\, and experience a deeply relaxing guided group hypnosis session focused on comfort\, healing\, and vitality. No prior experience is necessary. You’ll leave with tools you can use immediately at home. Questions welcome at the end. \nTMA’s Empowerment Clinics are designed to enhance your quality of life\, whether you are the person living with myositis or a care partner. They offer useful tools and insights into common issues presented by experts on the topic and on occasion\, a TMA member with lived experience on the topic.
URL:https://300.myositis.org/event/myositis-self-hypnosis-workshop-harnessing-the-mind-for-healing-comfort-2/
LOCATION:https://us02web.zoom.us/webinar/register/WN_OGaZWL5pRdyBgoxm35V6pA
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/03/Self-Hypnosis-April-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260331T120000
DTEND;TZID=America/New_York:20260331T130000
DTSTAMP:20260323T143109Z
CREATED:20260203T144135Z
LAST-MODIFIED:20260323T143109Z
UID:10003025-1774958400-1774962000@300.myositis.org
SUMMARY:Living with Myositis: Real Talk about Steroids\, Side Effects\, and Support
DESCRIPTION:TMA and Sam are joining forces for Autoimmune Awareness Month — and we’re closing it out with a conversation you won’t want to miss! Together\, we’re bringing the myositis and autoimmune communities into an open\, honest dialogue about one of the most common — and complex — parts of living with myositis: long-term steroid use. \nThis dynamic webinar featuring Matt Wilkinson\, PhD\, MBA\, on behalf of Sam\, will focus on the physical\, emotional\, and practical realities of steroid therapy and the support Sam provides for people living with myositis who rely on long-term treatment. From managing side effects to learning how to advocate for your needs within the healthcare system\, this conversation is designed to reflect the real experiences of the steroid-treated community. Whether you’re newly diagnosed or years into your journey\, you’ll leave feeling informed\, supported\, and better equipped to take an active role in your care. \nDon’t miss this powerful close to Autoimmune Awareness Month — because navigating myositis is better when we do it together. \nRegister Here
URL:https://300.myositis.org/event/living-with-myositis-real-talk-about-steroids-side-effects-and-support/
LOCATION:https://us02web.zoom.us/webinar/register/WN_T56cbdh3SnyC55pMKmQ7rg
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/02/AD-HOC-Webinar-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260319T180000
DTEND;TZID=America/New_York:20260319T190000
DTSTAMP:20251209T223657Z
CREATED:20251209T222155Z
LAST-MODIFIED:20251209T223657Z
UID:10002114-1773943200-1773946800@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. David Fernandez
DESCRIPTION:Register Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from a myositis expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. \nThis month’s Ask the Expert features Dr. David Fernandez\, a rheumatologist at the Hospital for Special Surgery in New York. To learn more about this physician\, see here.
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-david-fernandez/
LOCATION:https://us02web.zoom.us/webinar/register/WN_rwZwwGiQSJKkpCSRV-NsFg
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/ATE-Fernandez-March-26.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260312T120000
DTEND;TZID=America/New_York:20260312T130000
DTSTAMP:20260202T194213Z
CREATED:20251120T193244Z
LAST-MODIFIED:20260202T194213Z
UID:10002062-1773316800-1773320400@300.myositis.org
SUMMARY:Cultivating Calm: Community Resilience Model Skills for Daily Life
DESCRIPTION:Register Here \nLiving with myositis can bring daily challenges that affect both body and mind. This session offers a gentle and supportive space to learn about the brain and body connection and how it influences stress\, energy\, and well-being and practical ways to support yourself and others. Through accessible nervous system education\, you’ll be invited to explore and practice simple tools that help your body find more ease and balance\, even on difficult days. We’ll focus on building resilience\, not by pushing through discomfort\, but by developing awareness\, compassion\, and practical skills to support yourself from the inside out. No prior experience is needed\, just curiosity and a willingness to listen to your body’s wisdom. \nDescription: \nUtilizing the evidence-based Community Resiliency Model (CRM)® during our time together we will: \n\nExplore the Resilient Zone framework to help cultivate greater awareness\, compassion\, and presence through a biological lens.\nLearn and practice core wellness skills designed to help you support yourself and others in practical\, accessible ways.\nDeepen your understanding of the brain and body connection and discover practices that can help sustain well-being and help to navigate life with a chronic illness with more ease and resilience.
URL:https://300.myositis.org/event/cultivating-calm-community-resilience-model-skills-for-daily-life/
LOCATION:https://us02web.zoom.us/webinar/register/WN_Ogwh1weUSXirtW0JR_3WzA
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/11/CRM-March-2026-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T120000
DTEND;TZID=America/New_York:20260310T130000
DTSTAMP:20260219T133602Z
CREATED:20260203T145459Z
LAST-MODIFIED:20260219T133602Z
UID:10003026-1773144000-1773147600@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Christina Charles-Schoeman
DESCRIPTION:Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman\, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis\, including immune mechanisms that drive disease activity and how these insights are shaping more targeted\, effective approaches to treatment. This session will connect cutting-edge science to real-world implications for patients\, caregivers\, and clinicians\, with time for audience questions and discussion. \nRegister Here \nTMA’s Myositis Research Insights Series is the community’s chance to hear directly from the scientists who are hard at work trying to unravel the biology behind myositis and searching for new therapies. Researchers discuss one of their latest projects and answer questions about their work.
URL:https://300.myositis.org/event/myositis-research-insights-featuring-dr-christina-charles-schoeman/
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVaHGmLRT4SlHy2QKCS3lw
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/March-2026-MRI-Charles-Schoeman.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T180000
DTEND;TZID=America/New_York:20260217T190000
DTSTAMP:20260203T013023Z
CREATED:20260126T222210Z
LAST-MODIFIED:20260203T013023Z
UID:10003021-1771351200-1771354800@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Suur Biliciler
DESCRIPTION:Join us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler\, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. \nDr. Biliciler will share her clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. Register now to reserve your spot! \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their local doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. Submit your question when you register!
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-suur-biliciler-2/
LOCATION:https://us02web.zoom.us/webinar/register/WN_WYozSik6QSKcWaPv5XHSvA
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/ATE-Suur-February-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260210T120000
DTEND;TZID=America/New_York:20260210T130000
DTSTAMP:20260119T103631Z
CREATED:20251209T220521Z
LAST-MODIFIED:20260119T103631Z
UID:10002113-1770724800-1770728400@300.myositis.org
SUMMARY:Partnering for Success: Understanding the Role of Your Clinical Trial Representative
DESCRIPTION:Register Here \nWhen you join a clinical trial\, you’re paired with a clinical trial representative who becomes your primary guide throughout the study. But what exactly does this role include—and how can you build a strong\, effective partnership? \nIn this webinar\, Mercedes Herrera\, an experienced Clinical Research Coordinator with the UCI Center for Clinical Research\, will walk participants through the key responsibilities of a clinical trial representative\, what communication and support you can expect\, and how to work together to ensure a smooth and informed trial experience. \nAttendees will learn practical tips for navigating questions\, reporting symptoms or concerns\, and fostering open communication that helps both you and the research team succeed. This session is designed for anyone currently participating in a clinical trial or preparing to begin one who wants to feel more confident and supported throughout the process. \nMercedes Herrera joined the University of California\, Irvine’s Neuromuscular Research Division over three years ago to contribute to the advancements of research. Her devotion for therapeutic advancements for myositis patients was strongly developed through her role as a Clinical Trial Representative\, where she worked directly with patients that have Idiopathic Inflammatory Myopathies. Her role is to assist patients in identifying the most suitable clinical trial and provide ongoing support throughout the entire duration of the study. Her passion for patient advocacy and education inspired her to volunteer for The Myositis Association\, where she can share her clinical trial experience to inform and empower patients. \nAngel Gomez started working at Azusa Unified School District in 2000 until he became very ill\, losing strength and mobility in December 2012. After being in the hospital for this condition\, which led him in a wheelchair for the rest of the year\, he was diagnosed with Dermatomyositis. Although he spent a lot of time in physical therapy learning to walk again\, after nearly a year of sun exposure and developing new rashes\, him and his dermatologist decided it was best for his health to retire again. Angel has experience being a clinical trial patient in multiple different investigational trials and can provide great insight from the patient’s perspective. In his free time\, he likes to volunteer at the local little league coaching baseball\, spending quality time with his family\, and traveling whenever he can. He is married with three children; two are in college\, and his youngest is in high school. \n 
URL:https://300.myositis.org/event/partnering-for-success-understanding-the-role-of-your-clinical-trial-representative/
LOCATION:https://events.zoom.us/ev/AnNL0Gq-mwLsZdeGRrqzXtkVZeNwZ67tad7a0PyMpxb-1Spa5akU~Av2m_NmOPPmtBan6sqj-soyfiPfYRK1ztV0lMa6bMQEWHdXMPtxsq4pKrg
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/12/Partnering-Feb-2026-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260129T190000
DTEND;TZID=America/New_York:20260129T200000
DTSTAMP:20251209T233643Z
CREATED:20251120T171815Z
LAST-MODIFIED:20251209T233643Z
UID:10002058-1769713200-1769716800@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Julius Birnbaum
DESCRIPTION:Register Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. \nJulius Birnbaum\, MD\, specializes in rheumatology and is certified in internal medicine and rheumatology by the American Board of Internal Medicine. He practices at University of Pittsburgh Physicians Lupus Center of Excellence and is affiliated with UPMC Mercy\, UPMC Magee-Womens Hospital\, and UPMC Presbyterian. He completed his residency at Jacobi Medical Center and medical degree at Columbia University Medical Center. \nIn this session\, Dr. Birnbaum will draw on decades of experience treating complex autoimmune and neuro-rheumatic conditions to answer your questions\, clarify the interplay between immune\, neurological\, and rheumatic symptoms\, and help you understand what a tailored treatment plan might look like for you or a loved one. \nHe is also the author of the recently published book Living Well with Autoimmune Diseases: A Rheumatologist’s Guide to Taking Charge of Your Health — a compassionate\, practical guide for patients and caregivers navigating autoimmune diseases.
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-julius-birnbaum/
LOCATION:https://us02web.zoom.us/webinar/register/WN_1_t7_UwaSbS0N3iiOJ4Hag
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/ATE-Birnbaum-JAN-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T120000
DTEND;TZID=America/New_York:20260122T130000
DTSTAMP:20251209T234535Z
CREATED:20251120T180137Z
LAST-MODIFIED:20251209T234535Z
UID:10002059-1769083200-1769086800@300.myositis.org
SUMMARY:Mindfulness and Self-Compassion for Chronic Illness and Pain
DESCRIPTION:Register Here \n\n\n\nIn this 60-minute session\, we will define and explore what Mindfulness and Self-Compassion are and how they can reduce pain and discomfort\, reduce stress\, and enhance our ability to live a life beyond simply struggling with our illness and pain.  The workshop will include an overview of the subject matter\, guided meditation\, and time for Q&A.\nBy the end of the time\, participants will be able to:\n1. Define what Mindfulness is and what Self-Compassion is\n2. Describe and engage in practices to grow these qualities\n3. Be able to apply these skills to daily life\n\n\n\nThis event is in Zoom meeting style format\, but camera is optional.
URL:https://300.myositis.org/event/mindfulness-and-compassion-for-chronic-illness-and-pain/
LOCATION:https://us02web.zoom.us/meeting/register/AKTZ9pMyRWaI4oxbdnyDHw
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Mindfullness-Jan-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T120000
DTEND;TZID=America/New_York:20251211T130000
DTSTAMP:20251030T231059Z
CREATED:20251012T044452Z
LAST-MODIFIED:20251030T231059Z
UID:10001897-1765454400-1765458000@300.myositis.org
SUMMARY:Ask the Expert Speech-Language Pathology Edition
DESCRIPTION:Register Here \nJoin TMA for an interactive\, Ask the Expert Q&A with Dr. Kendrea Garand\, a board-certified specialist in swallowing and speech-language pathology.\nThis session will focus entirely on your questions about speech\, voice\, and swallowing challenges in myositis—how to recognize them\, when to ask for an evaluation\, and practical tips that help you eat\, drink\, and communicate more safely and confidently.\nBring your questions live or submit them in advance when you register.
URL:https://300.myositis.org/event/ask-the-expert-speech-language-pathology-edition/
LOCATION:MD
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Kendrea-Garand-Dec-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T120000
DTEND;TZID=America/New_York:20251209T130000
DTSTAMP:20251203T154435Z
CREATED:20251120T180929Z
LAST-MODIFIED:20251203T154435Z
UID:10002060-1765281600-1765285200@300.myositis.org
SUMMARY:The JASMINE Clinical Study: An Overview for the Myositis Community
DESCRIPTION:Register Here \nJoin us for a special webinar featuring Dr. Andrew Beaton as he provides a clear and accessible overview of the JASMINE Clinical Study. This session will help members of the myositis community better understand the study’s goals\, design\, and potential impact\, as well as what participation may entail. Whether you’re a patient\, care partner\, or advocate\, this webinar offers an opportunity to learn directly from an expert. Special thanks to AstraZeneca for sponsoring this webinar. \n 
URL:https://300.myositis.org/event/the-jasmine-clinical-study-an-overview-for-the-myositis-community/
LOCATION:https://us02web.zoom.us/webinar/register/WN_3JwYkb4BQAOM29q5SbSlMQ
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/AstraZeneca-Dec-9-2025-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T130000
DTEND;TZID=America/New_York:20251204T140000
DTSTAMP:20251203T161933Z
CREATED:20251030T231809Z
LAST-MODIFIED:20251203T161933Z
UID:10001907-1764853200-1764856800@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Erin Wilfong
DESCRIPTION:Register Here \nJoin TMA for our next Myositis Research Insights webinar\, featuring Dr. Erin Wilfong\, a leading expert in autoimmune muscle disease. Dr. Wilfong will share updates from her latest research and discuss how these findings may impact the understanding and treatment of myositis. Don’t miss this opportunity to hear directly from one of the scientists advancing myositis research and to ask your questions during a live Q&A.
URL:https://300.myositis.org/event/28232/
LOCATION:https://us02web.zoom.us/webinar/register/WN_869QjHmjQ5esbNbSklDZNw#/registration
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Screenshot-2025-10-30-194158-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T180000
DTEND;TZID=America/New_York:20251120T190000
DTSTAMP:20251030T230852Z
CREATED:20251030T225258Z
LAST-MODIFIED:20251030T230852Z
UID:10001906-1763661600-1763665200@300.myositis.org
SUMMARY:Understanding IVIG in Myositis Care: Insights from Clinical Practice and Research
DESCRIPTION:Register Here \nJoin The Myositis Association for an in-depth discussion on the role of intravenous immunoglobulin (IVIG) in the treatment of myositis. Dr. Prateek Gandiga\, Associate Professor of Medicine at Emory University and Senior Physician at Emory Clinic\, will share his clinical experience and research insights on how IVIG can help manage autoimmune muscle diseases. Learn about treatment considerations\, patient response\, and emerging advances in immunotherapy.This webinar is supported by Octapharma.
URL:https://300.myositis.org/event/understanding-ivig-in-myositis-care-insights-from-clinical-practice-and-research/
LOCATION:https://us02web.zoom.us/webinar/register/WN_AjOU7pjPTi6bl_5yltk4Kg
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Octapharma-Gandiga-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T120000
DTEND;TZID=America/New_York:20251111T130000
DTSTAMP:20251030T223646Z
CREATED:20251030T215848Z
LAST-MODIFIED:20251030T223646Z
UID:10001905-1762862400-1762866000@300.myositis.org
SUMMARY:A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician
DESCRIPTION:Register Here \nJoin us for an informative webinar on the results of the VALOR study\, which tested an investigational\, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session\, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and what they could mean for patients. Participants are welcome to submit questions in advance. Thank you to Priovant Therapeutics for sponsoring this webinar!
URL:https://300.myositis.org/event/a-potential-new-therapy-for-dermatomyositis-learn-about-the-valor-study-results-from-a-leading-physician/
LOCATION:https://us02web.zoom.us/webinar/register/WN_CqOSLmFMSuGhrkZ2wBstTg
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Priovant-Valor-Study-Webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T120000
DTEND;TZID=America/New_York:20251105T130000
DTSTAMP:20251030T215103Z
CREATED:20251012T043623Z
LAST-MODIFIED:20251030T215103Z
UID:10001896-1762344000-1762347600@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Suur Biliciler
DESCRIPTION:Register Here \nJoin us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler\, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. Register now to reserve your spot!
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-suur-biliciler/
LOCATION:MD
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/ATE-Suur-November-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251104T180000
DTEND;TZID=Europe/Paris:20251104T190000
DTSTAMP:20251030T213013Z
CREATED:20251012T043100Z
LAST-MODIFIED:20251030T213013Z
UID:10001895-1762279200-1762282800@300.myositis.org
SUMMARY:Demandez à l'expert édition française
DESCRIPTION:Inscrivez-vous ici \nLe 4 novembre à 18 h\, heure d’Europe centrale\, joignez-vous à nous pour une séance dynamique et informative destinée aux personnes francophones touchées par la myosite\, aux proches aidants et aux professionnels. Animée par Fiona Ratkoff\, membre de TMA\, notre experte sera Valérie LeClair\, MD. Elle partagera des stratégies pratiques\, répondra à vos questions et discutera des moyens d’accéder aux soins\, au soutien et aux ressources dans les communautés francophones. Que vous veniez d’obtenir un diagnostic ou que vous naviguiez dans un établissement de soins de longue durée\, cette séance offre un espace accueillant pour acquérir des connaissances et établir des liens avec d’autres personnes qui comprennent le parcours. Q&R en direct inclus. L’inscription est gratuite. Inscrivez-vous dès maintenant pour réserver votre place !
URL:https://300.myositis.org/event/demandez-a-lexpert-edition-francaise/
LOCATION:MD
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Ventura-Aug-2025-3.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251023T120000
DTEND;TZID=America/New_York:20251023T130000
DTSTAMP:20250903T174247Z
CREATED:20250808T232532Z
LAST-MODIFIED:20250903T174247Z
UID:10001879-1761220800-1761224400@300.myositis.org
SUMMARY:Ask the Expert featuring Elie Naddaf\, MD
DESCRIPTION:Register now to reserve your spot! \n\n\n\n\n\n\n\nJoin us for an exclusive\, interactive session with neurologist Elie Naddaf\, MD\, a Mayo Clinic specialist in neuromuscular diseases and current member of TMA’s Medical Advisory Board. In this edition of our Ask the Expert series—designed to give the myositis community direct access to leading voices in diagnosis\, treatment\, research\, and disease management—you’ll get to submit your questions and gain insights straight from a trusted authority in the field. \nWhether you’re newly diagnosed\, managing for years\, caring for a loved one\, or advocating on behalf of others—this webinar empowers you with reliable\, specialist-backed information. Don’t miss out on this unique chance to connect\, clarify\, and learn.
URL:https://300.myositis.org/event/ask-the-expert-featuring-elie-naddaf-md/
LOCATION:https://us02web.zoom.us/webinar/register/WN_BeKVNb7PQ4yUxXsnpt7aNQ
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/08/OCT-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T120000
DTEND;TZID=America/New_York:20251015T130000
DTSTAMP:20250918T040347Z
CREATED:20250918T040347Z
LAST-MODIFIED:20250918T040347Z
UID:10001892-1760529600-1760533200@300.myositis.org
SUMMARY:Understanding Clinical Trials
DESCRIPTION:Register Here \nClinical trials are conducted to evaluate the safety\, efficacy\, and outcomes of medical interventions to ensure that treatments brought to market are based on robust evidence and provide benefits to patients. This session will explore lessons from history (both good and bad)\, global standards for clinical studies\, the drug development process\, and what it means to be a participant in a clinical study. Thank you to our webinar sponsor AstraZeneca.
URL:https://300.myositis.org/event/understanding-clinical-trials/
LOCATION:https://us02web.zoom.us/webinar/register/WN_xTX6tWlTSBCGEpgJcj-zLQ
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/09/AstraZeneca.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T120000
DTSTAMP:20250819T164930Z
CREATED:20250808T190505Z
LAST-MODIFIED:20250819T164930Z
UID:10001878-1757332800-1757332800@300.myositis.org
SUMMARY:Ask the Expert featuring Astia Allenzara\, MD\, MCSR
DESCRIPTION:Register Here \n💬 Your questions\, answered by a myositis expert! \nAsk the Expert with Dr. Astia AllenzaraJoin us on Monday\, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara\, MD\, MSCR\, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on improving care for people living with rare autoimmune diseases\, including myositis\, and advancing equitable access to treatment. \nAbout Ask the Expert:TMA’s Ask the Expert webinar series gives myositis patients and care partners direct access to world-renowned clinicians\, researchers\, and other specialists. Each session offers the latest information on myositis diagnosis\, treatment\, and day-to-day management\, followed by a Q&A where you can submit your questions in advance.
URL:https://300.myositis.org/event/ask-the-expert-featuring-astia-allenzara-md-mcsr/
LOCATION:https://us02web.zoom.us/webinar/register/WN_3QHq1saUTgeahqX0tTG4iQ
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/08/ATE-SEPT-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T120000
DTEND;TZID=America/New_York:20250819T130000
DTSTAMP:20250819T022413Z
CREATED:20250801T003944Z
LAST-MODIFIED:20250819T022413Z
UID:10001686-1755604800-1755608400@300.myositis.org
SUMMARY:TMA Ask the Expert: Cell Therapy Edition
DESCRIPTION:TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis\, treatment options\, research developments\, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura\, MD\, a clinician and researcher specializing in neuromuscular disorders and regenerative medicine. In addition to her academic and clinical expertise\, Dr. Ventura is currently leading CAR-T clinical trials at the University of Chicago. Her work is helping to pave the way for new\, innovative treatment options for those living with myositis. Joining her is Satyajit Kosuri\, MD\, a medical oncologist specializing in hematology. Join us on Tuesday\, August 19 at 12:00 PM ET for an in-depth conversation on cell therapy for myositis\, including current clinical trials\, therapeutic potential\, and what patients should know about emerging treatments. Don’t miss this opportunity to ask your questions and learn from two experts at the forefront of innovative care. \nSponsored by TMA Corporate Advisory Council member Bristol Myers Squibb. \nRegister Here \n 
URL:https://300.myositis.org/event/tma-ask-the-expert-cell-therapy-edition/
LOCATION:https://us02web.zoom.us/webinar/register/WN_QWdjl8iQSNWt4GcC3XALkw
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Ventura-Aug-2025-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250813T120000
DTEND;TZID=America/New_York:20250813T130000
DTSTAMP:20250801T003322Z
CREATED:20250801T003127Z
LAST-MODIFIED:20250801T003322Z
UID:10001685-1755086400-1755090000@300.myositis.org
SUMMARY:TMA Empowerment Clinic: From Diagnosis to Determined: Grace\, Grit\, and Getting Back Up
DESCRIPTION:Join TEDx speaker and founder of The disABLED Company™\, Alicia Polak\, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories\, moments of levity\, and lessons in self-advocacy\, Alicia will explore how a mindset rooted in being Able\, Authentic\, and Adaptive can transform the experience of chronic illness. This session is a celebration of resilience\, community\, and the power of choosing hope. \nTMA’s Empowerment Clinic Series\nThe Empowerment Clinic is a signature education and wellness series from The Myositis Association\, designed to improve the quality of life for people living with myositis and those who care for them.  \nRegister Here
URL:https://300.myositis.org/event/tma-empowerment-clinic-from-diagnosis-to-determined-grace-grit-and-getting-back-up/
LOCATION:https://us02web.zoom.us/webinar/register/WN_9LcV-QgbSEGyLioJ75tX8Q
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/ALicia-Poloak-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T120000
DTEND;TZID=America/New_York:20250807T130000
DTSTAMP:20250801T004522Z
CREATED:20250801T001757Z
LAST-MODIFIED:20250801T004522Z
UID:10001684-1754568000-1754571600@300.myositis.org
SUMMARY:TMA Myositis Research Insights Webinar featuring Dr. Julio Huapaya
DESCRIPTION:Join us for an insightful session with Julio Huapaya\, MD\, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. \nDr. Huapaya’s talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD)\, focusing on: \n\nLongitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies\, based on Johns Hopkins’ long-term cohort studies \n\n\nAn overview of his contribution to managing lung involvement in myositis using azathioprine and mycophenolate mofetil to preserve lung function and reduce steroid dependence in M‑ILD patients\n\n\n\nHis recent work on autoantibody measurement with advanced testing methods\, funded by a two‑year $100K fellowship under the Myositis Association and Johns Hopkins ILD program \n\n\nBroader perspectives from his 2021 co-authored chapter\, “Myositis‑Associated Interstitial Lung Disease” in the Encyclopedia of Respiratory Medicine \n\nRegister Here
URL:https://300.myositis.org/event/tma-myositis-research-insights-webinar-featuring-dr-julio-huapaya/
LOCATION:https://us02web.zoom.us/webinar/register/WN_3K-z_z49R4qHSmulgmNPlw
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/Huapaya-August-2025-1.jpg
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END:VCALENDAR