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X-WR-CALDESC:Events for The Myositis Association
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260122T120000
DTEND;TZID=America/New_York:20260122T130000
DTSTAMP:20251209T234535Z
CREATED:20251120T180137Z
LAST-MODIFIED:20251209T234535Z
UID:10002059-1769083200-1769086800@300.myositis.org
SUMMARY:Mindfulness and Self-Compassion for Chronic Illness and Pain
DESCRIPTION:Register Here \n\n\n\nIn this 60-minute session\, we will define and explore what Mindfulness and Self-Compassion are and how they can reduce pain and discomfort\, reduce stress\, and enhance our ability to live a life beyond simply struggling with our illness and pain.  The workshop will include an overview of the subject matter\, guided meditation\, and time for Q&A.\nBy the end of the time\, participants will be able to:\n1. Define what Mindfulness is and what Self-Compassion is\n2. Describe and engage in practices to grow these qualities\n3. Be able to apply these skills to daily life\n\n\n\nThis event is in Zoom meeting style format\, but camera is optional.
URL:https://300.myositis.org/event/mindfulness-and-compassion-for-chronic-illness-and-pain/
CATEGORIES:Community Meetups,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/Mindfullness-Jan-2026.png
LOCATION:https://us02web.zoom.us/meeting/register/AKTZ9pMyRWaI4oxbdnyDHw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251211T120000
DTEND;TZID=America/New_York:20251211T130000
DTSTAMP:20251030T231059Z
CREATED:20251012T044452Z
LAST-MODIFIED:20251030T231059Z
UID:10001897-1765454400-1765458000@300.myositis.org
SUMMARY:Ask the Expert Speech-Language Pathology Edition
DESCRIPTION:Register Here \nJoin TMA for an interactive\, Ask the Expert Q&A with Dr. Kendrea Garand\, a board-certified specialist in swallowing and speech-language pathology.\nThis session will focus entirely on your questions about speech\, voice\, and swallowing challenges in myositis—how to recognize them\, when to ask for an evaluation\, and practical tips that help you eat\, drink\, and communicate more safely and confidently.\nBring your questions live or submit them in advance when you register.
URL:https://300.myositis.org/event/ask-the-expert-speech-language-pathology-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Kendrea-Garand-Dec-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251209T120000
DTEND;TZID=America/New_York:20251209T130000
DTSTAMP:20251203T154435Z
CREATED:20251120T180929Z
LAST-MODIFIED:20251203T154435Z
UID:10002060-1765281600-1765285200@300.myositis.org
SUMMARY:The JASMINE Clinical Study: An Overview for the Myositis Community
DESCRIPTION:Register Here \nJoin us for a special webinar featuring Dr. Andrew Beaton as he provides a clear and accessible overview of the JASMINE Clinical Study. This session will help members of the myositis community better understand the study’s goals\, design\, and potential impact\, as well as what participation may entail. Whether you’re a patient\, care partner\, or advocate\, this webinar offers an opportunity to learn directly from an expert. Special thanks to AstraZeneca for sponsoring this webinar. \n 
URL:https://300.myositis.org/event/the-jasmine-clinical-study-an-overview-for-the-myositis-community/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/11/AstraZeneca-Dec-9-2025-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_3JwYkb4BQAOM29q5SbSlMQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251204T130000
DTEND;TZID=America/New_York:20251204T140000
DTSTAMP:20251203T161933Z
CREATED:20251030T231809Z
LAST-MODIFIED:20251203T161933Z
UID:10001907-1764853200-1764856800@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Erin Wilfong
DESCRIPTION:Register Here \nJoin TMA for our next Myositis Research Insights webinar\, featuring Dr. Erin Wilfong\, a leading expert in autoimmune muscle disease. Dr. Wilfong will share updates from her latest research and discuss how these findings may impact the understanding and treatment of myositis. Don’t miss this opportunity to hear directly from one of the scientists advancing myositis research and to ask your questions during a live Q&A.
URL:https://300.myositis.org/event/28232/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Screenshot-2025-10-30-194158-1.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_869QjHmjQ5esbNbSklDZNw#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251120T180000
DTEND;TZID=America/New_York:20251120T190000
DTSTAMP:20251030T230852Z
CREATED:20251030T225258Z
LAST-MODIFIED:20251030T230852Z
UID:10001906-1763661600-1763665200@300.myositis.org
SUMMARY:Understanding IVIG in Myositis Care: Insights from Clinical Practice and Research
DESCRIPTION:Register Here \nJoin The Myositis Association for an in-depth discussion on the role of intravenous immunoglobulin (IVIG) in the treatment of myositis. Dr. Prateek Gandiga\, Associate Professor of Medicine at Emory University and Senior Physician at Emory Clinic\, will share his clinical experience and research insights on how IVIG can help manage autoimmune muscle diseases. Learn about treatment considerations\, patient response\, and emerging advances in immunotherapy.This webinar is supported by Octapharma.
URL:https://300.myositis.org/event/understanding-ivig-in-myositis-care-insights-from-clinical-practice-and-research/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Octapharma-Gandiga-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_AjOU7pjPTi6bl_5yltk4Kg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251111T120000
DTEND;TZID=America/New_York:20251111T130000
DTSTAMP:20251030T223646Z
CREATED:20251030T215848Z
LAST-MODIFIED:20251030T223646Z
UID:10001905-1762862400-1762866000@300.myositis.org
SUMMARY:A Potential New Therapy for Dermatomyositis: Learn About the VALOR Study Results from a Leading Physician
DESCRIPTION:Register Here \nJoin us for an informative webinar on the results of the VALOR study\, which tested an investigational\, once-daily oral medication for adults with dermatomyositis (DM) in the largest DM clinical trial ever conducted. In this 30-minute session\, rheumatologist Dr. Iazsmin Ventura (University of Chicago) will review the study findings and what they could mean for patients. Participants are welcome to submit questions in advance. Thank you to Priovant Therapeutics for sponsoring this webinar!
URL:https://300.myositis.org/event/a-potential-new-therapy-for-dermatomyositis-learn-about-the-valor-study-results-from-a-leading-physician/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Priovant-Valor-Study-Webinar.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_CqOSLmFMSuGhrkZ2wBstTg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251105T120000
DTEND;TZID=America/New_York:20251105T130000
DTSTAMP:20251030T215103Z
CREATED:20251012T043623Z
LAST-MODIFIED:20251030T215103Z
UID:10001896-1762344000-1762347600@300.myositis.org
SUMMARY:Ask the Expert featuring Dr. Suur Biliciler
DESCRIPTION:Register Here \nJoin us for an informative and supportive Ask the Expert webinar featuring Dr. Suur Biliciler\, a specialist in neuromuscular disorders and myositis care. This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. Dr. Biliciler will share her clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. Register now to reserve your spot!
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-suur-biliciler/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/ATE-Suur-November-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/Paris:20251104T180000
DTEND;TZID=Europe/Paris:20251104T190000
DTSTAMP:20251030T213013Z
CREATED:20251012T043100Z
LAST-MODIFIED:20251030T213013Z
UID:10001895-1762279200-1762282800@300.myositis.org
SUMMARY:Demandez à l'expert édition française
DESCRIPTION:Inscrivez-vous ici \nLe 4 novembre à 18 h\, heure d’Europe centrale\, joignez-vous à nous pour une séance dynamique et informative destinée aux personnes francophones touchées par la myosite\, aux proches aidants et aux professionnels. Animée par Fiona Ratkoff\, membre de TMA\, notre experte sera Valérie LeClair\, MD. Elle partagera des stratégies pratiques\, répondra à vos questions et discutera des moyens d’accéder aux soins\, au soutien et aux ressources dans les communautés francophones. Que vous veniez d’obtenir un diagnostic ou que vous naviguiez dans un établissement de soins de longue durée\, cette séance offre un espace accueillant pour acquérir des connaissances et établir des liens avec d’autres personnes qui comprennent le parcours. Q&R en direct inclus. L’inscription est gratuite. Inscrivez-vous dès maintenant pour réserver votre place !
URL:https://300.myositis.org/event/demandez-a-lexpert-edition-francaise/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/10/Ventura-Aug-2025-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251023T120000
DTEND;TZID=America/New_York:20251023T130000
DTSTAMP:20250903T174247Z
CREATED:20250808T232532Z
LAST-MODIFIED:20250903T174247Z
UID:10001879-1761220800-1761224400@300.myositis.org
SUMMARY:Ask the Expert featuring Elie Naddaf\, MD
DESCRIPTION:Register now to reserve your spot! \n\n\n\n\n\n\n\nJoin us for an exclusive\, interactive session with neurologist Elie Naddaf\, MD\, a Mayo Clinic specialist in neuromuscular diseases and current member of TMA’s Medical Advisory Board. In this edition of our Ask the Expert series—designed to give the myositis community direct access to leading voices in diagnosis\, treatment\, research\, and disease management—you’ll get to submit your questions and gain insights straight from a trusted authority in the field. \nWhether you’re newly diagnosed\, managing for years\, caring for a loved one\, or advocating on behalf of others—this webinar empowers you with reliable\, specialist-backed information. Don’t miss out on this unique chance to connect\, clarify\, and learn.
URL:https://300.myositis.org/event/ask-the-expert-featuring-elie-naddaf-md/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/08/OCT-2025.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_BeKVNb7PQ4yUxXsnpt7aNQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251015T120000
DTEND;TZID=America/New_York:20251015T130000
DTSTAMP:20250918T040347Z
CREATED:20250918T040347Z
LAST-MODIFIED:20250918T040347Z
UID:10001892-1760529600-1760533200@300.myositis.org
SUMMARY:Understanding Clinical Trials
DESCRIPTION:Register Here \nClinical trials are conducted to evaluate the safety\, efficacy\, and outcomes of medical interventions to ensure that treatments brought to market are based on robust evidence and provide benefits to patients. This session will explore lessons from history (both good and bad)\, global standards for clinical studies\, the drug development process\, and what it means to be a participant in a clinical study. Thank you to our webinar sponsor AstraZeneca.
URL:https://300.myositis.org/event/understanding-clinical-trials/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/09/AstraZeneca.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_xTX6tWlTSBCGEpgJcj-zLQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250908T120000
DTEND;TZID=America/New_York:20250908T120000
DTSTAMP:20250819T164930Z
CREATED:20250808T190505Z
LAST-MODIFIED:20250819T164930Z
UID:10001878-1757332800-1757332800@300.myositis.org
SUMMARY:Ask the Expert featuring Astia Allenzara\, MD\, MCSR
DESCRIPTION:Register Here \n💬 Your questions\, answered by a myositis expert! \nAsk the Expert with Dr. Astia AllenzaraJoin us on Monday\, September 8 at 12:00 PM ET / 6:00 PM CEST for a special Ask the Expert session featuring Astia Allenzara\, MD\, MSCR\, an internist and rheumatologist at UNC Chapel Hill. Dr. Allenzara’s work focuses on improving care for people living with rare autoimmune diseases\, including myositis\, and advancing equitable access to treatment. \nAbout Ask the Expert:TMA’s Ask the Expert webinar series gives myositis patients and care partners direct access to world-renowned clinicians\, researchers\, and other specialists. Each session offers the latest information on myositis diagnosis\, treatment\, and day-to-day management\, followed by a Q&A where you can submit your questions in advance.
URL:https://300.myositis.org/event/ask-the-expert-featuring-astia-allenzara-md-mcsr/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/08/ATE-SEPT-2025.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_3QHq1saUTgeahqX0tTG4iQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250819T120000
DTEND;TZID=America/New_York:20250819T130000
DTSTAMP:20250819T022413Z
CREATED:20250801T003944Z
LAST-MODIFIED:20250819T022413Z
UID:10001686-1755604800-1755608400@300.myositis.org
SUMMARY:TMA Ask the Expert: Cell Therapy Edition
DESCRIPTION:TMA’s Ask the Expert webinar series gives members of the myositis community direct access to leading experts in the field. Each session features a trusted medical professional who answers your questions about specific types of myositis\, treatment options\, research developments\, and disease management. August’s Ask the Expert webinar features Iazsmin Bauer Ventura\, MD\, a clinician and researcher specializing in neuromuscular disorders and regenerative medicine. In addition to her academic and clinical expertise\, Dr. Ventura is currently leading CAR-T clinical trials at the University of Chicago. Her work is helping to pave the way for new\, innovative treatment options for those living with myositis. Joining her is Satyajit Kosuri\, MD\, a medical oncologist specializing in hematology. Join us on Tuesday\, August 19 at 12:00 PM ET for an in-depth conversation on cell therapy for myositis\, including current clinical trials\, therapeutic potential\, and what patients should know about emerging treatments. Don’t miss this opportunity to ask your questions and learn from two experts at the forefront of innovative care. \nSponsored by TMA Corporate Advisory Council member Bristol Myers Squibb. \nRegister Here \n 
URL:https://300.myositis.org/event/tma-ask-the-expert-cell-therapy-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Ventura-Aug-2025-2.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_QWdjl8iQSNWt4GcC3XALkw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250813T120000
DTEND;TZID=America/New_York:20250813T130000
DTSTAMP:20250801T003322Z
CREATED:20250801T003127Z
LAST-MODIFIED:20250801T003322Z
UID:10001685-1755086400-1755090000@300.myositis.org
SUMMARY:TMA Empowerment Clinic: From Diagnosis to Determined: Grace\, Grit\, and Getting Back Up
DESCRIPTION:Join TEDx speaker and founder of The disABLED Company™\, Alicia Polak\, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories\, moments of levity\, and lessons in self-advocacy\, Alicia will explore how a mindset rooted in being Able\, Authentic\, and Adaptive can transform the experience of chronic illness. This session is a celebration of resilience\, community\, and the power of choosing hope. \nTMA’s Empowerment Clinic Series\nThe Empowerment Clinic is a signature education and wellness series from The Myositis Association\, designed to improve the quality of life for people living with myositis and those who care for them.  \nRegister Here
URL:https://300.myositis.org/event/tma-empowerment-clinic-from-diagnosis-to-determined-grace-grit-and-getting-back-up/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/ALicia-Poloak-2.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_9LcV-QgbSEGyLioJ75tX8Q
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250807T120000
DTEND;TZID=America/New_York:20250807T130000
DTSTAMP:20250801T004522Z
CREATED:20250801T001757Z
LAST-MODIFIED:20250801T004522Z
UID:10001684-1754568000-1754571600@300.myositis.org
SUMMARY:TMA Myositis Research Insights Webinar featuring Dr. Julio Huapaya
DESCRIPTION:Join us for an insightful session with Julio Huapaya\, MD\, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. \nDr. Huapaya’s talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD)\, focusing on: \n\nLongitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies\, based on Johns Hopkins’ long-term cohort studies \n\n\nAn overview of his contribution to managing lung involvement in myositis using azathioprine and mycophenolate mofetil to preserve lung function and reduce steroid dependence in M‑ILD patients\n\n\n\nHis recent work on autoantibody measurement with advanced testing methods\, funded by a two‑year $100K fellowship under the Myositis Association and Johns Hopkins ILD program \n\n\nBroader perspectives from his 2021 co-authored chapter\, “Myositis‑Associated Interstitial Lung Disease” in the Encyclopedia of Respiratory Medicine \n\nRegister Here
URL:https://300.myositis.org/event/tma-myositis-research-insights-webinar-featuring-dr-julio-huapaya/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/Huapaya-August-2025-1.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_3K-z_z49R4qHSmulgmNPlw
END:VEVENT
END:VCALENDAR