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UID:10001685-1755086400-1755090000@300.myositis.org
SUMMARY:TMA Empowerment Clinic: From Diagnosis to Determined: Grace\, Grit\, and Getting Back Up
DESCRIPTION:Join TEDx speaker and founder of The disABLED Company™\, Alicia Polak\, for a powerful and uplifting Empowerment Clinic as she shares her personal journey with Inclusion Body Myositis. Through relatable stories\, moments of levity\, and lessons in self-advocacy\, Alicia will explore how a mindset rooted in being Able\, Authentic\, and Adaptive can transform the experience of chronic illness. This session is a celebration of resilience\, community\, and the power of choosing hope. \nTMA’s Empowerment Clinic Series\nThe Empowerment Clinic is a signature education and wellness series from The Myositis Association\, designed to improve the quality of life for people living with myositis and those who care for them.  \nRegister Here
URL:https://300.myositis.org/event/tma-empowerment-clinic-from-diagnosis-to-determined-grace-grit-and-getting-back-up/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/ALicia-Poloak-2.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_9LcV-QgbSEGyLioJ75tX8Q
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DTSTART;TZID=America/New_York:20250807T120000
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UID:10001684-1754568000-1754571600@300.myositis.org
SUMMARY:TMA Myositis Research Insights Webinar featuring Dr. Julio Huapaya
DESCRIPTION:Join us for an insightful session with Julio Huapaya\, MD\, a critical care and pulmonary specialist affiliated with Johns Hopkins Medicine and the NIH Clinical Center. \nDr. Huapaya’s talk will dive into his cutting-edge research on myositis-associated interstitial lung disease (M‑ILD)\, focusing on: \n\nLongitudinal clinical features and outcomes in patients with anti‑synthetase syndrome autoantibodies\, based on Johns Hopkins’ long-term cohort studies \n\n\nAn overview of his contribution to managing lung involvement in myositis using azathioprine and mycophenolate mofetil to preserve lung function and reduce steroid dependence in M‑ILD patients\n\n\n\nHis recent work on autoantibody measurement with advanced testing methods\, funded by a two‑year $100K fellowship under the Myositis Association and Johns Hopkins ILD program \n\n\nBroader perspectives from his 2021 co-authored chapter\, “Myositis‑Associated Interstitial Lung Disease” in the Encyclopedia of Respiratory Medicine \n\nRegister Here
URL:https://300.myositis.org/event/tma-myositis-research-insights-webinar-featuring-dr-julio-huapaya/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/07/Huapaya-August-2025-1.jpg
LOCATION:https://us02web.zoom.us/webinar/register/WN_3K-z_z49R4qHSmulgmNPlw
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