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DTSTART;TZID=America/New_York:20260903T183000
DTEND;TZID=America/New_York:20260903T203000
DTSTAMP:20260105T181121Z
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LAST-MODIFIED:20260105T181121Z
UID:10001516-1788460200-1788467400@300.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://300.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-09-03/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://300.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-09-03/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T200000
DTEND;TZID=America/New_York:20260902T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001339-1788379200-1788384600@300.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://300.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-09-02/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T180000
DTEND;TZID=America/New_York:20260902T190000
DTSTAMP:20260810T181136Z
CREATED:20260810T181136Z
LAST-MODIFIED:20260810T181136Z
UID:10003565-1788372000-1788375600@300.myositis.org
SUMMARY:MyoCon Virtual Session - Care Partner Empowerment: Thriving Together Through Care
DESCRIPTION:Being a care partner is a journey of love\, commitment\, and resilience. Join Christina Keys\, CEO and Founder of Keys for Caregiving\, for this virtual session focused on creating balance\, practicing kindness toward ourselves\, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners’ own well-being while they continue providing meaningful care for those they love. Whether you’re new to this role or have been caring for a loved one for years\, this session is a reminder that caring for yourself is part of caring well for others. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-care-partner-empowerment-thriving-together-through-care/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Care-Partner-Empowerment-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T120000
DTEND;TZID=America/New_York:20260902T130000
DTSTAMP:20260827T163342Z
CREATED:20260827T163204Z
LAST-MODIFIED:20260827T163342Z
UID:10003658-1788350400-1788354000@300.myositis.org
SUMMARY:MyoCon Virtual Session - Before You Dial 911: The 411 on Myositis in the ER
DESCRIPTION:The emergency department can be overwhelming—especially when you’re living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies\, patients often face unique challenges that aren’t always well understood by ER staff. In this session\, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal experience to help you take control before and during an emergency. You’ll learn how to recognize red flags\, prepare for common ER scenarios\, communicate effectively with triage teams\, and advocate for timely\, appropriate care—even when myositis isn’t the focus of your visit. \nTo join this session\, register for MyoCon 2026 in person or order the recordings and you will receive the invitation to join all virtual pre-and post-conference content!
URL:https://300.myositis.org/event/myocon-virtual-session-before-you-dial-911-the-411-on-myositis-in-the-er-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/Before-Calling-911-2-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260902T110000
DTEND;TZID=America/New_York:20260902T120000
DTSTAMP:20260827T213915Z
CREATED:20260827T213915Z
LAST-MODIFIED:20260827T213915Z
UID:10003659-1788346800-1788350400@300.myositis.org
SUMMARY:Dermatomyositis: Can Fish Oil Help? A Special Patient Webinar on the NIH FAST for DM Clinical Trial
DESCRIPTION:MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. \nFAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation\, together with a healthy study diet\, can reduce dermatomyositis disease activity and improve strength\, function\, and quality of life. \nDuring this webinar\, the study team will explain: \n\nWhy omega-3 fatty acids are being studied in dermatomyositis\nWhat the FAST for DM trial is designed to learn\nWho may be eligible to participate\nWhat participants can expect during the study\nHow to learn more and connect with the NIH study team\n\nThe study is enrolling adults ages 18–60 with adult or juvenile dermatomyositis who meet eligibility criteria. \nRegister Here \nHosted by MIHRA Foundation \nwith the Environmental Autoimmunity Group\, National Institute of Environmental Health Sciences (NIEHS)\, NIH Clinical Center \n 
URL:https://300.myositis.org/event/dermatomyositis-can-fish-oil-help-a-special-patient-webinar-on-the-nih-fast-for-dm-clinical-trial/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/08/MIHRA-NIEHS-FAST-DIET-SM-_-Newsletter-Uploadable-Image-1.png
LOCATION:https://zoom.us/webinar/register/5217866875725/WN_bQNA5crxRnKtDyj6cTLhTw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260827T180000
DTEND;TZID=America/New_York:20260827T190000
DTSTAMP:20251228T194546Z
CREATED:20251228T194546Z
LAST-MODIFIED:20251228T194546Z
UID:10002125-1787853600-1787857200@300.myositis.org
SUMMARY:TMA Virginia\, West Virginia\, Northeast North Carolina Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. \nRegister here \nWhy Attend a TMA Support Group \nTMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community.
URL:https://300.myositis.org/event/tma-virginia-west-virginia-northeast-north-carolina-myositis-support-group-meeting/2026-08-27/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Kaniah Gunter":MAILTO:Gunter@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMkcu-rrz8tH9ILBN0VXGWdBWpTTWWdgRyF
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260826T160000
DTEND;TZID=America/New_York:20260826T170000
DTSTAMP:20260810T212516Z
CREATED:20260810T212150Z
LAST-MODIFIED:20260810T212516Z
UID:10003569-1787760000-1787763600@300.myositis.org
SUMMARY:Understanding Veteran Directed Care: What Veterans Need to Know
DESCRIPTION:For many veterans living with myositis\, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing\, dressing\, meal preparation\, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own homes by giving them a flexible budget to hire and direct their own caregivers\, including\, in many cases\, family members or friends. \nJoin us for this informative Ask the Expert webinar as Amanda Icenhower\, LCSW\, Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics\, walks us through how the VDC program works\, who qualifies\, and how veterans and their families can access these services. This session is especially relevant for veterans living with myositis who need support with activities of daily living but want to maintain choice and control over their care. \nAmanda will cover: \n\nWhat Veteran Directed Care is and how it differs from other VA home care programs\nEligibility requirements and how to apply\nHow the flexible spending budget works and what it can be used for\nHow veterans can hire family members or trusted individuals as caregivers\nWhere to go for more information and how to get started\n\nWhether you’re a veteran\, a care partner\, or a family member helping navigate care options\, this webinar will provide practical\, actionable information to help you understand this valuable — and often underutilized — VA benefit. \nREGISTER HERE \nSpeaker: Amanda Icenhower\, LCSW\, is the Coordinator of the Veteran Directed Care Program at the Southern Oregon Rehabilitation Center and Clinics (SORCC) in White City\, Oregon\, where she helps veterans access person-centered\, self-directed home care services.
URL:https://300.myositis.org/event/understanding-veteran-directed-care-what-veterans-need-to-know/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/08/VDC-Aug-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_zTttSSv4TpaYvxhVI3GX5w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260825T190000
DTEND;TZID=America/New_York:20260825T203000
DTSTAMP:20251228T203259Z
CREATED:20251228T203259Z
LAST-MODIFIED:20251228T203259Z
UID:10002185-1787684400-1787689800@300.myositis.org
SUMMARY:TMA Men Managing Myositis Affinity Group Meeting
DESCRIPTION:The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect\, share experiences\, and find solidarity. Founded in 2022 and led by Eric Rocheleau\, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month\, the group meets in breakout rooms tailored to different diagnoses\, allowing for focused conversations and peer support. \nRegister Here
URL:https://300.myositis.org/event/tma-men-managing-myositis-affinity-group-meeting/2026-08-25/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Eric Rocheleau":MAILTO:Rocheleau@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZUrf-6hqDMjEtW5ZdBV4gM4DI7ELYDARp2y
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260823T170000
DTEND;TZID=America/New_York:20260823T183000
DTSTAMP:20260109T001953Z
CREATED:20251228T210016Z
LAST-MODIFIED:20260109T001953Z
UID:10002937-1787504400-1787509800@300.myositis.org
SUMMARY:TMA Rainbow Affinity Group Meeting
DESCRIPTION:TMA is proud to host the Rainbow Affinity Group\, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022\, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. \nRegister Here \nIn each monthly meeting\, you’ll find solidarity\, understanding\, and valuable resources\, all while creating connections within the broader LGBTQIA+ community. Our mission is to ensure that every LGBTQIA+ myositis patient is supported in an environment that is not only affirmative but also empowering. \nWhen?\nFourth Sunday of each month at:\n5pm ET | 4pm CT | 3pm MT | 2pm PT \nWhether you’re looking for guidance on navigating healthcare\, seeking a sense of community\, or simply wanting to connect with others who understand\, TMA’s Rainbow Affinity Group is here for you. Join us and become part of a supportive\, inclusive network where you can truly thrive.
URL:https://300.myositis.org/event/tma-rainbow-affinity-group-meeting/2026-08-23/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Barbara Shaw":MAILTO:Shaw@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuc-ugqT0uH9eg4G3WjxGOC2jccy7kV4wj
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T130000
DTEND;TZID=America/New_York:20260822T150000
DTSTAMP:20260811T231109Z
CREATED:20260811T231109Z
LAST-MODIFIED:20260811T231109Z
UID:10003603-1787403600-1787410800@300.myositis.org
SUMMARY:TMA Maryland\, Delaware\, District of Columbia\, Northern Virginia Myositis Support Group Meeting
DESCRIPTION:The TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://300.myositis.org/event/tma-maryland-delaware-district-of-columbia-northern-virginia-myositis-support-group-meeting-2/2026-08-22/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angela Hopp":MAILTO:Hopp@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdeiqqTIsGdz4dsX2WHPMKJ3-dNr-G4BA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260822T103000
DTEND;TZID=America/New_York:20260822T113000
DTSTAMP:20250821T191502Z
CREATED:20250725T165340Z
LAST-MODIFIED:20250821T191502Z
UID:10001397-1787394600-1787398200@300.myositis.org
SUMMARY:TMA Georgia Myositis Support Group Meeting
DESCRIPTION:👉 Register here \nTMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET\, except December. \nPeer-led support groups matter at every stage of the journey. Even if you’re currently thriving\, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA\, we pride ourselves on inspiring hope while walking alongside one another with understanding and compassion. Support groups are also a wonderful place to exchange local resources\, practical tips\, and connections that make daily life a little easier. \n\nMeet Your Co-Leaders \n\nTerri Lockhart\, MD – A retired\, Board-Certified Internal Medicine physician with over 30 years of clinical and administrative experience. Diagnosed with inclusion body myositis in 2020\, she brings a unique perspective as both clinician and patient\, and is passionate about sharing knowledge with others.\nCynthia Marks\, EdD – A former school administrator of 23 years and a Doctor of Education graduate from National Louis University. Cynthia is the primary care partner to her husband Ricky\, who was diagnosed with inclusion body myositis in 2016. She looks forward to supporting other care partners in understanding their roles while also prioritizing self-care.\n\nWe’re deeply grateful to Dr. Lockhart and Dr. Marks for stepping up to serve fellow community members in Georgia with their time\, care\, and leadership. Dr. Lockhart will be the primary contact person for the group\, feel free to reach out to her directly at Lockhart@myositis.org.
URL:https://300.myositis.org/event/tma-georgia-myositis-support-group/2026-08-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/TMA-Georgia-220-x-220.png
ORGANIZER;CN="Terri Lockhart":MAILTO:Lockhart@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/7M00c-iHRHOrHP6z96d5fQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260822T100000
DTEND;TZID=America/Chicago:20260822T113000
DTSTAMP:20260523T153959Z
CREATED:20260523T153934Z
LAST-MODIFIED:20260523T153959Z
UID:10001456-1787392800-1787398200@300.myositis.org
SUMMARY:TMA Northeast Texas Myositis Support Group Meeting
DESCRIPTION:Register Here \nAttend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners \nLiving with myositis is easier with friends. TMA’s support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. These sessions are never recorded and camera is optional.  \nWhen?Fourth Saturday of each month (no meeting in December) at:10:00 AM – 11:30 AM CT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others like you! \n\nMessage from the Leader | Mike Fortner \n\n\n\n\n\n\n\n\n\n\n\n\n\n \nRegister Here \n\n\n\n\n\nConnect with TMA!         \n\n\n\n\n\n 
URL:https://300.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2026-08-22/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/06/Northeast-Texas.jpg
ORGANIZER;CN="Melissa Rumpf":MAILTO:Rumpf@myositis.org
LOCATION:https://300.myositis.org/event/tma-northeast-texas-myositis-support-group-meeting-4-2/2026-08-22/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20260821T170000
DTEND;TZID=America/Los_Angeles:20260821T183000
DTSTAMP:20260713T172806Z
CREATED:20260713T172126Z
LAST-MODIFIED:20260713T172806Z
UID:10001576-1787331600-1787337000@300.myositis.org
SUMMARY:TMA Hawai'i\, Northern California\, Oregon & Washington IBM Support Group Meeting
DESCRIPTION:Register here! \n\n \nJoin the TMA Hawai’i\, Northern California\, Oregon & Washington IBM Support Group: Connect\, Learn\, and Find Support\n\nThis group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai’i\, Northern California\, Oregon & Washington\, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT\, this group offers a supportive space to connect with others who understand the unique challenges of living with IBM. \nWhether you’re newly diagnosed or have been living with IBM for some time\, this group is here to help reduce feelings of isolation\, provide valuable resources\, and foster a sense of belonging. Join us to share experiences\, learn about available support services\, and build connections with others in your community who are navigating the same journey. \nWhen?Third Friday of every month at:5:00 PM PT \nAll are welcome to attend—no matter where you are on your myositis journey. This group is a chance to decrease loneliness\, access important resources\, and find strength in the support of others who truly understand what you’re going through. \n\n \n\n 
URL:https://300.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2026-08-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/07/HI-NORCAL-OR-WA.png
ORGANIZER;CN="Malati Shinazy":MAILTO:Shinazy@myositis.org
LOCATION:https://300.myositis.org/event/tma-northern-california-ibm-support-group-meeting-31-2/2026-08-21/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T190000
DTEND;TZID=America/New_York:20260820T203000
DTSTAMP:20260213T144653Z
CREATED:20250605T143754Z
LAST-MODIFIED:20260213T144653Z
UID:10003041-1787252400-1787257800@300.myositis.org
SUMMARY:TMA Upstate New York Myositis Support Group Meeting
DESCRIPTION:All are welcome. Register today! \nIt’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort of social connection can also improve both physical and mental well-being. Even if you are currently in a good place managing your myositis\, consider joining. You can be an inspiration and source of strength for others! \n\n\n\n\n\n\n  \n\n\n\n\n\n 
URL:https://300.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2026-08-20/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/04/TMA-Upstate-New-York.png
ORGANIZER;CN="Peter Winkelstein":MAILTO:Winkelstein@myositis.org
LOCATION:https://300.myositis.org/event/tma-upstate-new-york-myositis-support-group-meeting-3/2026-08-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260820T183000
DTEND;TZID=America/Chicago:20260820T200000
DTSTAMP:20251229T003130Z
CREATED:20251229T003130Z
LAST-MODIFIED:20251229T003130Z
UID:10002661-1787250600-1787256000@300.myositis.org
SUMMARY:TMA Missouri and Illinois Myositis Support Group Meeting
DESCRIPTION:The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nRegister Here \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nSecure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://300.myositis.org/event/tma-missouri-and-illinois-myositis-support-group-meeting/2026-08-20/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="David Volk":MAILTO:Volk@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdu6prjMvG9bNPn3hYm193xtHoyRYT2nI
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T180000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260629T200633Z
CREATED:20260519T195443Z
LAST-MODIFIED:20260629T200633Z
UID:10003439-1787248800-1787252400@300.myositis.org
SUMMARY:Ask the Expert featuring Chris Weihl\, MD\, PhD
DESCRIPTION:Have myositis questions for a neurologist? Now’s your chance to ask one of the field’s leading specialists. \nJoin us for a special Ask the Expert session featuring Conrad C. Weihl\, MD\, PhD\, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice on the mechanisms of weakness and atrophy related to neuromuscular disorders\, including inflammatory myopathy and inclusion body myositis. He has an active clinical and basic science research program focused on genetics\, protein aggregate myopathies\, inclusion body myositis\, and limb-girdle muscular dystrophies. \nWhether you’re navigating a new diagnosis\, wondering about muscle weakness\, or curious about the latest research in IBM and other inflammatory myopathies\, this is your opportunity to get expert insight in a relaxed\, open format. \nBring your questions — Dr. Weihl is here to help you understand what’s happening in your muscles and what it means for your care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-chris-weihl-md-phd/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/ATE-AUG-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JAu8s2m7TheK2HevXkjBkg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T173000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260610T215708Z
CREATED:20260609T191656Z
LAST-MODIFIED:20260610T215708Z
UID:10003506-1787247000-1787252400@300.myositis.org
SUMMARY:TMA Adelante! Un grupo de apoyo sobre miositis para hispanohablantes
DESCRIPTION:Registrese\n\n \n\nÚnete a TMA Adelante! – Una Comunidad de Habla Hispana Avanzando Juntos \n¡Adelante! es el primer grupo de afinidad de TMA diseñado para personas de habla hispana que viven con miositis y sus cuidadores. Fundado bajo la creencia de que\, a pesar de los desafíos de la enfermedad crónica\, todos podemos seguir avanzando\, este grupo ofrece un espacio de apoyo para hispanohablantes de todo el mundo para conectarse\, compartir experiencias y encontrar fortaleza en la comunidad. \nYa sea que busques orientación\, apoyo o simplemente un lugar para conectarte con otros que entienden tu camino\, TMA Adelante! está aquí para ayudarte. Las reuniones se realizan cada dos meses\, brindando una oportunidad constante para interactuar con otros que comparten el mismo idioma y experiencia. \n¿Cuándo?El tercer jueves de cada dos meses a las:5:00 PM ET | 4:00 PM CT | 3:00 PM MT | 2:00 PM PT \nÚnete a nosotros y sé parte de esta red dinámica y solidaria mientras avanzamos juntos. Esperamos darte la bienvenida a TMA Adelante! Grupo de Afinidad. \n\n \n 
URL:https://300.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2026-08-20/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/Adelante-New-Time-June-2026.png
ORGANIZER;CN="Veronica Fatura":MAILTO:Fatura@myositis.org
LOCATION:https://300.myositis.org/event/tma-adelante-un-grupo-de-apoyo-sobre-miositis-para-hispanohablantes-20-2-2/2026-08-20/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260818T120000
DTEND;TZID=America/New_York:20260818T133000
DTSTAMP:20260601T155911Z
CREATED:20260601T155911Z
LAST-MODIFIED:20260601T155911Z
UID:10003447-1787054400-1787059800@300.myositis.org
SUMMARY:TMA WomenWithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group/2026-08-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/Women-with-IBM-Instagram-Post-1.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260815
DTEND;VALUE=DATE:20260816
DTSTAMP:20251228T234741Z
CREATED:20251228T234741Z
LAST-MODIFIED:20251228T234741Z
UID:10002533-1786752000-1786838399@300.myositis.org
SUMMARY:TMA Maryland\, Delaware\, District of Columbia\, Northern Virginia Myositis Support Group Meeting
DESCRIPTION:The TMA MD\, DE\, DC\, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland\, Delaware\, District of Columbia\, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET\, this group provides a supportive environment to connect\, share experiences\, and learn from others facing similar challenges. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help you navigate your journey. Through open discussions and shared stories\, you can find strength\, access valuable resources\, and reduce the isolation that often accompanies chronic illness. \nWhen?\nThird Saturday of every other month at:\n1:00 PM ET \nRegister here to secure your spot and be part of this empowering community. Join us to connect\, find support\, and take the next step in your myositis journey!
URL:https://300.myositis.org/event/tma-maryland-delaware-district-of-columbia-northern-virginia-myositis-support-group-meeting/2026-08-15/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Angela Hopp":MAILTO:Hopp@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqdeiqqTIsGdz4dsX2WHPMKJ3-dNr-G4BA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Africa/Lagos:20260811T190000
DTEND;TZID=Africa/Lagos:20260811T203000
DTSTAMP:20251228T230743Z
CREATED:20251228T230743Z
LAST-MODIFIED:20251228T230743Z
UID:10002415-1786474800-1786480200@300.myositis.org
SUMMARY:TMA Africa Myositis Support Group Meeting
DESCRIPTION:This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group\, this monthly meeting is designed to provide support\, share resources\, and create meaningful connections among English-speaking members worldwide. \nRegister Here \nWhether you’re newly diagnosed or managing myositis\, the TMA Africa Myositis Support Group offers a safe space to connect with others who truly understand the challenges of living with this rare condition. By sharing experiences and learning from each other\, we can work together to raise awareness\, provide encouragement\, and empower individuals across the continent and around the world.
URL:https://300.myositis.org/event/tma-africa-myositis-support-group-meeting/2026-08-11/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Cynthia Ikediashi":MAILTO:Ikediashi@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZAvd-Chrj0oG9Fs7P7ZNXjq80N1mvnPiA_E
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260811T180000
DTEND;TZID=America/Chicago:20260811T200000
DTSTAMP:20260120T210902Z
CREATED:20260120T210902Z
LAST-MODIFIED:20260120T210902Z
UID:10002994-1786471200-1786478400@300.myositis.org
SUMMARY:TMA Minnesota & Wisconsin Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota & Wisconsin Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months from:\n6:00 – 8:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nAbout the Leaders \n \nLindsay Guentzel is an award-winning journalist\, writer\, producer\, and podcast host whose work has been featured in The New York Times\, CBS Radio\, NPR\, ESPN\, and more. After being diagnosed with ADHD in 2021—an experience she calls the best thing to ever happen to her—she spent two years learning how to navigate life with a neurodivergent brain. Then\, in 2023\, her world shifted again with a diagnosis of Dermatomyositis associated with Anti-Synthetase Syndrome\, a collection of rare\, incurable diseases that drastically changed her daily life. \nJim “Sudz” Szudzik \n \nJames “Sudz” Szudzik  served in the U.S. Army as a Chaplain’s Assistant during the Vietnam conflict. Following his service\, Sudz earned a Bachelor of Arts in Communications from Michigan State University. Over the course of his career\, he held roles with Lansing Probate Court\, Service Beer & Wine\, Miller Brewing Company\, Philip Morris U.S.A.\, Bonanza Beverage\, New Mexico Beverage\, and the Madrigano family. He married Nancy Ann Wygert in August 1985. \nSudz was diagnosed with Inclusion Body Myositis in 2004 and has since dedicated himself to advocating for veterans with IBM and educating others about myositis. His daily life centers on faith\, family\, and friends\, embracing life’s challenges with gratitude and resilience. He also enjoys movies\, reading\, televised sports\, and collecting baseball cards. He lives in Menomonee Falls\, Wisconsin with Nancy and their dog Bodie.
URL:https://300.myositis.org/event/tma-minnesota-wisconsin-myositis-support-group-6-2/2026-08-11/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/06/Minnesota-Wisconsin.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://300.myositis.org/event/tma-minnesota-wisconsin-myositis-support-group-6-2/2026-08-11/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T160000
DTEND;TZID=America/New_York:20260811T180000
DTSTAMP:20251228T231147Z
CREATED:20251105T195356Z
LAST-MODIFIED:20251228T231147Z
UID:10001918-1786464000-1786471200@300.myositis.org
SUMMARY:Hospital of Special Surgery (HSS) New York City Myositis Support Group
DESCRIPTION:The HSS Myositis Support Group is open to people living with myositis\, their families\, and friends. \nIf this is your first time attending the HSS group meeting\, please be sure to contact the group coordinator before the meeting date in order to receive the join link. \nPLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: \nSuzan Fischbein\, LCSW \nSr. Social Work Coordinator II \nemail: fischbeins@hss.edu \nSPONSORED BY \nDepartment of Social Work Programs and The Division of Rheumatology at Hospital for Special Surgery | 535 East 70th Street New York\, NY 10021
URL:https://300.myositis.org/event/hospital-of-special-surgery-hss-new-york-city-myositis-support-group/2026-08-11/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Suzan Fischbein":MAILTO:FischbeinS@HSS.edu
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260808T120000
DTEND;TZID=America/New_York:20260808T133000
DTSTAMP:20260410T170928Z
CREATED:20260410T170900Z
LAST-MODIFIED:20260410T170928Z
UID:10002245-1786190400-1786195800@300.myositis.org
SUMMARY:TMA Military Veterans with Myositis Affinity Group Meeting
DESCRIPTION:Founded in 2022\, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support\, share experiences\, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA\, and provides invaluable resources for navigating disability claims and appeals. \nEvery month\, veterans from all branches of service come together to discuss the unique challenges of living with myositis and to support each other in their journeys. Care partners are also warmly welcomed to participate. Whether you’re seeking help with your claim\, want to get involved in advocacy\, or simply need a place to connect with others who truly understand\, this group is here to support you. For all myositis diagnoses. \nRegister Here \nVisit www.myositis.org/TMAVeterans to learn more!
URL:https://300.myositis.org/event/tma-military-veterans-with-myositis-affinity-group-meeting-2/2026-08-08/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Screenshot-2026-04-10-130534.png
LOCATION:https://us02web.zoom.us/meeting/register/tZItceiurjkuHtKWAxCsms6EtTZ65P-m4NiZ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Denver:20260808T120000
DTEND;TZID=America/Denver:20260808T133000
DTSTAMP:20260409T132410Z
CREATED:20260409T132410Z
LAST-MODIFIED:20260409T132410Z
UID:10003359-1786190400-1786195800@300.myositis.org
SUMMARY:TMA Colorado Myositis Support Group Meeting
DESCRIPTION:This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect\, be understood\, and feel less alone — whether you’re seeking support\, offering encouragement\, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being for most participants. Just as powerful\, many people who support others report improvements in their own mental and emotional health. \nEvery voice matters. Sharing experiences\, listening\, and learning from one another strengthens the myositis community and reminds us that none of us has to navigate this journey alone. \nCome for support. Come for connection. Come for community. \nRegister Here \nAbout the Leader \n \nMeet Jim Milani\, a TMA member who was moved by the efforts of the late Marianne Moyer and the TMA Southwest Florida’s success in organizing a Myositis Symposium for Physical and Occupational Therapists for  Myositis Awareness Month. He called Rachel Bromley\, TMA’s Senior Manager of Patient Education\, Support and Advocacy to offer to organize one in his home state of Colorado. Rachel was ecstatic\, as Marianne’s vision had always been for this event to branch out to other TMA groups! One catch though – TMA Colorado had been dormant for quite some time. So she swung for the fences and said “How about reactivating the Colorado group at the same time? You can connect more PTs and OTs that way\, find a few volunteers to possibly help your efforts\, and provide and receive support for myositis along the way!” \nJim replied with one word “SURE!” And so this journey began. \nFor the past 20 years\, Jim has been a Physical Therapist and is Board Certified as a Geriatric Specialist. After several years of misdiagnoses\, he was correctly diagnosed with IBM in late 2023. Despite this\, Jim continues to pursue his love for activity and sports. He is passionate about sharing his personal and professional “fitness forward” philosophy\, helping people understand how to modify and adapt exercises to their functional level. Jim resides in Colorado with his wife\, Laura. He is a proud father of six adult children and has two grandchildren. Jim says his family and faith help him get through each day. While there is much about IBM that he cannot control\, he focuses on what he can: his attitude and effort. #justkeepswimming
URL:https://300.myositis.org/event/tma-colorado-myositis-support-group-meeting-2-2/2026-08-08/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Jim Milani":MAILTO:Milani@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZMpde2pqjsrGNfydYipCNiyzhwXceHDv1jH
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260806T183000
DTEND;TZID=America/New_York:20260806T203000
DTSTAMP:20260105T181121Z
CREATED:20251228T235730Z
LAST-MODIFIED:20260105T181121Z
UID:10001515-1786041000-1786048200@300.myositis.org
SUMMARY:TMA Women Of Color Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy \nFounded in 2019 by Holly Jones and Kaniah Gunter\, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement\, Education\, and Empowerment—our mission is to unite and empower women of color affected by myositis and to advocate for their health and well-being. By providing education\, support\, resources\, and the backing of TMA’s expertise\, we are determined to reduce the disparity gap in myositis outcomes for people of color. As we foster a community of strength\, resiliency\, and inspiration; together\, we will break barriers\, challenge inequalities\, and create a future where every woman\, caregiver\, and loved one affected by myositis\, regardless of their race\, can thrive. \nEach month\, WOC come together for impactful workshops and support meetings\, empowering participants to take what they’ve learned and share awareness about myositis within their communities. Whether you’re looking for guidance\, solidarity\, or the opportunity to advocate for others\, this group offers a space for connection\, education\, and positive change. \nWhen?\nFirst Thursday of each month at:\n6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT \nJoin us and become part of a movement to raise awareness\, educate others\, and empower women of color to take charge of their myositis journey. Visit our group page for more information. \nRegister Here \n\n       \nAbout the Leaders | Holly Jones & Kaniah Gunter \nIn 2003\, at the age of 19 years old Holly Jones was diagnosed with Polymyositis with Interstitial Lung Disease at a CPK level over 20\,000. In 2014\, her lung disease progressed causing her to develop Pulmonary Hypertension that required her to be on oxygen daily. After six years of being in clinical remission\, the Pulmonary Hypertension progressed into Congestive Heart Failure in October 2020. Living with diseases that attack her muscles\, lungs\, and heart; it has not stopped Holly from accomplishing her life goals. A social media entrepreneur\, Holly also serves on TMA’s Board of Directors\, as well as co-leader for TMA’s Women of Color Affinity Group\, and Support Group Leader for the Houston\, Tx regional support group.  Holly lives in Porter\, TX with her husband and children. \nKaniah Gunter\, a Nutrition Health Coach owner of Unique Guidance Nutritional Health Coaching\, LLC\, was diagnosed with dermatomyositis with NXP-2 positive (anti-MJ) and scleroderma in 2007. Kaniah graduated from The Institute for Integrative Nutrition\, one of the largest nutrition schools in the world. \nRecently she completed her certification as a Community Health Worker. She is a strong advocate for the myositis community. At TMA\, she is a regional support group leader for TMA Virginia\, West Virginia and Northwest Carolina as well as co-leader for TMA’s Women of Color affinity group. She has shared her story in many healthcare publications and social media. She serves as an inspiration for others as she demonstrates healing begins within mind\, body and spirit. Kaniah and her two beautiful children live in Norfolk\, Virginia.
URL:https://300.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-08-06/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/12/Updated-WOC-Graphic.png
LOCATION:https://300.myositis.org/event/tma-women-of-color-affinity-group-meeting-17-2/2026-08-06/
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260805T200000
DTEND;TZID=America/New_York:20260805T213000
DTSTAMP:20260310T185113Z
CREATED:20250605T143731Z
LAST-MODIFIED:20260310T185113Z
UID:10001338-1785960000-1785965400@300.myositis.org
SUMMARY:TMA Flying Solo Affinity Group Meeting
DESCRIPTION:Register Here \nJoin TMA’s Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner \nThe TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone\, are married but your spouse is unable to provide care\, or even find yourself as the caregiver for your spouse\, this group is here to offer understanding and support. \nLiving with myositis can be particularly challenging without a live-in care partner\, but Flying Solo offers a community where you can connect with others who truly understand your unique circumstances. Share experiences\, find helpful resources\, and gain insights on managing daily life with myositis while navigating the complexities of independence and self-care. \nWhen?\nFirst Wednesday of each month at:\n8:00 PM ET | 7:00 PM CT | 6:00 PM MT | 5:00 PM PT \nJoin us for this monthly meeting to connect\, find strength\, and support each other in our myositis journeys. You are not alone – come share and learn with others who “fly solo” like you! \nRegister Here \n\n \nAbout the Leader | Rhonda Rogers \nRhonda Rogers\, diagnosed with Inclusion Body Myositis (IBM)\, is a passionate myositis advocate\, also known as “Myositis Warrior”\, who brings connection\, humor\, and heart to everything she does. She co-leads TMA’s Southern California Support Group and facilitates the TMA Flying Solo Affinity Group for people living with myositis who do not have a live-in care partner. Rhonda also administers the popular Myositis Warrior Facebook public group\, known for its upbeat\, candid\, and often humorous take on the unbelievable realities of life with myositis. Whether leading community groups or raising awareness in her signature Myositis Warrior cape at events like Comic-Con\, Rhonda inspires others to meet life with resilience and a smile. \nIn recognition of her outstanding leadership and support for the myositis community\, Rhonda received the Marianne Moyer Myositis Leader Award at MyoCon 2025\, along with her TMA Southern California co-leader\, Nancy Harber. This award honors TMA volunteers who lead the way by helping others and making a lasting impact.
URL:https://300.myositis.org/event/tma-flying-solo-affinity-group-meeting-23/2026-08-05/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/06/flyingsolo-169.jpg
ORGANIZER;CN="Rhonda Rogers":MAILTO:Rogers@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZYqc-GsrTksGt3aRRRGipKTWPzy7-n18ME4#/registration
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260804T180000
DTEND;TZID=America/Chicago:20260804T200000
DTSTAMP:20250805T180202Z
CREATED:20250605T143721Z
LAST-MODIFIED:20250805T180202Z
UID:10001812-1785866400-1785873600@300.myositis.org
SUMMARY:TMA Minnesota Myositis Support Group Meeting
DESCRIPTION:Register Here \nJoin the TMA Minnesota Myositis Support Group: Connect\, Share\, and Find Support \nThe TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect\, share experiences\, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT\, this group provides a valuable opportunity to engage with others who truly understand the challenges of living with myositis. \nWhether you’re newly diagnosed or have been managing myositis for years\, this group is here to help reduce isolation\, offer resources\, and build a sense of community. By sharing stories and learning from each other\, you’ll gain valuable insights and feel empowered to navigate your myositis journey with support from others who understand. \nWhen?\nFirst Tuesday of every two months at:\n6:00 PM CT \nJoin us to decrease loneliness\, access helpful resources\, and find strength in the power of community. We look forward to connecting with you! \nRegister Here
URL:https://300.myositis.org/event/tma-minnesota-myositis-support-group-4/2026-08-04/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/06/Minnesota.jpg
ORGANIZER;CN="Lindsay Guentzel":MAILTO:Guentzel@myositis.org
LOCATION:https://300.myositis.org/event/tma-minnesota-myositis-support-group-4/2026-08-04/
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260804T150000
DTEND;TZID=UTC:20260804T160000
DTSTAMP:20260625T220020Z
CREATED:20260625T220020Z
LAST-MODIFIED:20260625T220020Z
UID:10003538-1785855600-1785859200@300.myositis.org
SUMMARY:Ask the Expert Arabic Edition - as'al alkhabir - alnuskhat alearabia
DESCRIPTION:TMA is excited to bring our beloved Ask the Expert series to our Arabic-speaking community! Join us for a special session with Dr. Elie Naddaf\, a neurologist and myositis specialist\, who will answer your questions in Arabic. \nThis is your chance to get clear\, expert answers to the questions that matter most to you — about diagnosis\, treatment\, symptom management\, and living well with myositis — in your own language\, from someone who understands both the science and the lived experience of this rare disease. \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. \nالنسخة العربية \nاسأل الخبير: النسخة العربية مع الدكتور إيلي نداف \nتسعد جمعية TMA بتقديم سلسلة “اسأل الخبير” المحبوبة لمجتمعنا الناطق بالعربية! انضموا إلينا في جلسة خاصة مع الدكتور إيلي نداف، اختصاصي أمراض الأعصاب وخبير في التهاب العضلات (Myositis)، الذي سيجيب على أسئلتكم باللغة العربية. \nهذه فرصتكم للحصول على إجابات واضحة ودقيقة من خبير على الأسئلة الأكثر أهمية بالنسبة لكم — حول التشخيص، العلاج، التعامل مع الأعراض، والعيش بشكل أفضل مع هذا المرض — بلغتكم الأم، من شخص يفهم الجانب العلمي والتجربة الحقيقية لهذا المرض النادر. \nتُعد سلسلة “اسأل الخبير” التابعة لـ TMA هي الأكثر شعبية بين ندواتنا الإلكترونية. فهي تتيح لأفراد مجتمعنا فرصة الحصول على إجابات لأسئلتهم الملحّة من خبير قد يكون أكثر معرفة من طبيبهم الخاص. كما تمنحهم هذه الجلسات فرصة للتعرف على أحد أعضاء المجلس الاستشاري الطبي لجمعية TMA أو على شخصية بارزة أخرى في المجتمع الطبي المتخصص في التهاب العضلات. \nsjjl huna
URL:https://300.myositis.org/event/ask-the-expert-arabic-edition-asal-alkhabir-alnuskhat-alearabia/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-Arabic-2026.png
LOCATION:https://us02web.zoom.us/webinar/register/WN_IoCFc1rkRciusbPw2ZA7oQ
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BEGIN:VEVENT
DTSTART;TZID=Europe/Athens:20260803T190000
DTEND;TZID=Europe/Athens:20260803T203000
DTSTAMP:20251229T000714Z
CREATED:20251229T000714Z
LAST-MODIFIED:20251229T000714Z
UID:10002571-1785783600-1785789000@300.myositis.org
SUMMARY:Ομάδα Στήριξης Μυοσίτιδας TMA Greece
DESCRIPTION:Γνωρίστε άλλους σαν εσάς\, μάθετε\, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ
URL:https://300.myositis.org/event/%ce%bf%ce%bc%ce%ac%ce%b4%ce%b1-%cf%83%cf%84%ce%ae%cf%81%ce%b9%ce%be%ce%b7%cf%82-%ce%bc%cf%85%ce%bf%cf%83%ce%af%cf%84%ce%b9%ce%b4%ce%b1%cf%82-tma-greece/2026-08-03/
CATEGORIES:Support or Affinity Group Meeting
ORGANIZER;CN="Maria Dourida":MAILTO:Dourida@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/fBivzMouRQyswoJWjr6tmg
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BEGIN:VEVENT
DTSTART;TZID=America/Phoenix:20260801T130000
DTEND;TZID=America/Phoenix:20260801T150000
DTSTAMP:20250805T195330Z
CREATED:20250805T194445Z
LAST-MODIFIED:20250805T195330Z
UID:10001859-1785589200-1785596400@300.myositis.org
SUMMARY:TMA Arizona & Nevada Myositis Support Group Meeting
DESCRIPTION:Register here. \nJoin us for connection\, support\, and shared experiences with others living with myositis in Arizona and Nevada. This welcoming group meets quarterly—on the first Saturday of February\, May\, August\, and November—via Zoom. Whether you’re newly diagnosed or have been living with myositis for years\, you’re invited to be part of a caring community that understands.
URL:https://300.myositis.org/event/tma-arizona-nevada-myositis-support-group-meeting/2026-08-01/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/08/Nebraska-1.jpg
ORGANIZER;CN="Linda Thomas":MAILTO:Thomas@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZEvce2rqjsjGtWAVyB3D7S3ph9M8SsEzma4
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END:VCALENDAR