BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//The Myositis Association - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:The Myositis Association
X-ORIGINAL-URL:https://300.myositis.org
X-WR-CALDESC:Events for The Myositis Association
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/New_York
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20240310T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20241103T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20250309T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20251102T060000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0500
TZOFFSETTO:-0400
TZNAME:EDT
DTSTART:20260308T070000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0400
TZOFFSETTO:-0500
TZNAME:EST
DTSTART:20261101T060000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20250909T143000
DTEND;TZID=America/New_York:20250909T150000
DTSTAMP:20260507T061324
CREATED:20250825T212609Z
LAST-MODIFIED:20250825T213227Z
UID:10001886-1757428200-1757430000@300.myositis.org
SUMMARY:Inclusion Body Myositis: What Your Patients May Not Tell You
DESCRIPTION:This 15-minute non-accredited educational activity is designed to provide clinicians with a concise yet impactful overview of how inclusion body myositis (IBM) affects patients’ quality of life. The session explores how the progressive physical limitations\, such as difficulty with mobility\, hand function\, and swallowing lead to loss of independence and increased risk of falls and malnutrition for the patients. The emotional toll—including depression\, frustration\, and social isolation—will also be discussed\, along with the burden experienced by caregivers. By highlighting real-world experiences\, this activity emphasizes the importance of functional assessments\, communication strategies\, and supportive care planning in IBM management. Clinicians will gain insights into recognizing the broader implications of this slowly progressive disease\, equipping them to better address patients’ needs\, promote shared decision-making\, and support long-term quality of life in this underserved neuromuscular population. Ideal for neurologists seeking a quick\, practical update. \nFaculty:\nRohit Aggarwal\, MD\, MS\nProfessor of Medicine\nCo-Director\, UPMC Myositis Center\nProgram Director\, UPMC Myositis Fellowship Program\nUniversity of Pittsburgh School of Medicine\nPittsburgh\, Pennyslvania \nElie Naddaf\, MD\nAssociate Professor of Neurology\nMayo Clinic\,\nRochester\, Minnesota \nSupported by an independent educational grant from Abcuro\, Inc. \nClick the link to view the Activity and Disclosure details before participating: https://lnkd.in/eksNyUsU \n\n\n\n\n\n\n\nClick on any of these platforms on September 9 to view presentation: \nFacebook \nLinkedIn \nYouTube \nTwitter \n 
URL:https://300.myositis.org/event/inclusion-body-myositis-what-your-patients-may-not-tell-you/
CATEGORIES:Clinician Education
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2025/08/Medscape.jpg
END:VEVENT
END:VCALENDAR