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DTSTART;TZID=America/New_York:20260414T120000
DTEND;TZID=America/New_York:20260414T133000
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UID:10001632-1776168000-1776173400@300.myositis.org
SUMMARY:Speech & Swallowing in IBM: A Two-Part Symposium Hosted by TMA WomenWithIBM Affinity Group
DESCRIPTION:For many living with Inclusion Body Myositis\, changes in speech and swallowing can be among the most isolating — and least talked about — challenges of the disease. \nJoin us for a special two-part symposium this April and May\, bringing together leading experts from Johns Hopkins to shed light on the speech and swallowing issues that affect so many in the IBM community. From understanding what’s happening in your body to practical strategies for daily life\, this series is designed to inform\, support\, and connect. \nThis symposium is open to everyone — all are welcome! \nCreated in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. \nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting-4/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Screenshot-2026-04-10-171601.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260403T120000
DTEND;TZID=America/New_York:20260403T131500
DTSTAMP:20260519T124511
CREATED:20260306T233112Z
LAST-MODIFIED:20260317T152351Z
UID:10003193-1775217600-1775222100@300.myositis.org
SUMMARY:IBM Research Update: What the Abcuro Clinical Trial Reveals hosted by TMA WomenwithIBM Affinity Group
DESCRIPTION:Join us\, TMA’s WomenWithIBM Affinity Group\, for a timely conversation on Abcuro’s newly-released topline results from the MUSCLE study of ulviprubart (ABC008) for Inclusion Body Myositis. OPEN TO ALL. \nDr. Namita Goyal\, Principal Investigator\, will explain what the findings show and what’s ahead after the data is presented at the 6th Global Conference on Myositis in Lisbon. \n📅 Friday\, April 3\, 2026  ⏰ 12:00–1:30 PM ET \n💻 Zoom  🔗 Registration Link: Register here. \nA meaningful moment for everyone in the Myositis community to hear directly from a leading expert. \nCreated in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting-6-2/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Screenshot-2026-03-17-112115.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260217T120000
DTEND;TZID=America/New_York:20260217T133000
DTSTAMP:20260519T124511
CREATED:20260217T155245Z
LAST-MODIFIED:20260224T012751Z
UID:10001630-1771329600-1771335000@300.myositis.org
SUMMARY:Rare Disease Day 2026: What’s Happening Now and How to Help Organized by TMA WomenWithIBM Affinity Group
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \nFebruary’s meeting will include conversation with Carolyn Sheridan\, MPH\, and Jake Saltonstall\, MPA\, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making\, as well as advocacy and community engagement opportunities and Rare Disease Day. \n\nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting-3/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260120T120000
DTEND;TZID=America/New_York:20260120T133000
DTSTAMP:20260519T124511
CREATED:20260106T204849Z
LAST-MODIFIED:20260106T204849Z
UID:10001629-1768910400-1768915800@300.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nJanuary’s meeting will include conversation with Helene Alexanderson\, PhD on exercise and IBM. \n\nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting-2/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251118T120000
DTEND;TZID=America/New_York:20251118T133000
DTSTAMP:20260519T124511
CREATED:20250731T233534Z
LAST-MODIFIED:20260106T154218Z
UID:10001627-1763467200-1763472600@300.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nFebruary’s meeting will include conversation with Carolyn Sheridan\, MPH\, and Jake Saltonstall\, MPA\, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making\, as well as advocacy and community engagement opportunities and Rare Disease Day. \n\nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-11-18/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20251021T120000
DTEND;TZID=America/New_York:20251021T133000
DTSTAMP:20260519T124511
CREATED:20250731T233534Z
LAST-MODIFIED:20260106T154218Z
UID:10001626-1761048000-1761053400@300.myositis.org
SUMMARY:TMA WomenwithIBM Affinity Group Meeting
DESCRIPTION:Created in 2020\, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. \n\nFebruary’s meeting will include conversation with Carolyn Sheridan\, MPH\, and Jake Saltonstall\, MPA\, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making\, as well as advocacy and community engagement opportunities and Rare Disease Day. \n\nRegister here.
URL:https://300.myositis.org/event/tma-womenwithibm-affinity-group-meeting/2025-10-21/
CATEGORIES:Support or Affinity Group Meeting
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2025/07/Women-with-IBM-General-Flyer-2023.png
ORGANIZER;CN="Nancy Marx Erickson":MAILTO:WomenwithIBM@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/tZwuduyvqz4pEtIqImIBaRa8ourzIqJaF0A2
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