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X-WR-CALNAME:The Myositis Association
X-ORIGINAL-URL:https://300.myositis.org
X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260506T133000
DTEND;TZID=America/New_York:20260506T143000
DTSTAMP:20260506T203815
CREATED:20260203T223456Z
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UID:10003033-1778074200-1778077800@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Immune-mediated Necrotizing Myopathy (IMNM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Debbie Armstrong. A special thanks to Myositis Awareness Month sponsor argenx. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-immune-mediated-necrotizing-myopathy-imnm-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Cafe-Chat-IMNM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/Pn_OnOBEQSqqTSgR8amFiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260506T203815
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260506T203815
CREATED:20260223T160256Z
LAST-MODIFIED:20260504T113107Z
UID:10003177-1777896000-1777899600@300.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://300.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T120000
DTEND;TZID=America/New_York:20260424T130000
DTSTAMP:20260506T203815
CREATED:20260309T080842Z
LAST-MODIFIED:20260409T182921Z
UID:10003255-1777032000-1777035600@300.myositis.org
SUMMARY:TMA Meet & Greet Leadership Series: Meet the New Board Chair!
DESCRIPTION:Join us for a special edition of The Myositis Association’s (TMA) Meet & Greet Leadership Series. Hosted by TMA Executive Director Paula Eichenbrenner and featuring TMA Board Chair Rich DeAugustinis\, this engaging event is designed to bring our community together in a spirit of connection. Don’t miss this opportunity to connect with TMA leadership and fellow community members\, We look forward to seeing you there! \nRegister Here
URL:https://300.myositis.org/event/tma-meet-greet-leadership-series-meet-the-new-board-chair/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Myositis-Awareness-Month-April-2026-April-2025-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/0kQeZGFyTO6TutGzj6368A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260506T203815
CREATED:20260316T153139Z
LAST-MODIFIED:20260316T153735Z
UID:10003187-1776340800-1776344400@300.myositis.org
SUMMARY:Myositis Self-hypnosis Workshop: Harnessing the Mind for Healing & Comfort
DESCRIPTION:Register Here \nJoin us for an empowering Zoom workshop where you’ll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You’ll discover how your thoughts influence your physical body\, how your subconscious mind is programmed\, and how hypnosis can create new positive patterns that support healing and reduce discomfort. Learn the essential skills of self-hypnosis\, including how to write effective suggestions tailored to your needs\, and experience a deeply relaxing guided group hypnosis session focused on comfort\, healing\, and vitality. No prior experience is necessary. You’ll leave with tools you can use immediately at home. Questions welcome at the end. \nTMA’s Empowerment Clinics are designed to enhance your quality of life\, whether you are the person living with myositis or a care partner. They offer useful tools and insights into common issues presented by experts on the topic and on occasion\, a TMA member with lived experience on the topic.
URL:https://300.myositis.org/event/myositis-self-hypnosis-workshop-harnessing-the-mind-for-healing-comfort-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/03/Self-Hypnosis-April-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_OGaZWL5pRdyBgoxm35V6pA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T120000
DTEND;TZID=America/New_York:20260416T120000
DTSTAMP:20260506T203815
CREATED:20260219T174644Z
LAST-MODIFIED:20260316T185415Z
UID:10003165-1776254400-1776340800@300.myositis.org
SUMMARY:2026 Giving Challenge
DESCRIPTION:TMA has a wonderful opportunity to be part of the Giving Challenge\, a special day of giving hosted by the Community Foundation of Sarasota County. This one-day event starting April 15 will double your generosity to TMA! Donations made online during a 24-hour period will be matched by The Patterson Foundation (up to $100 per donor). Some of the proceeds will go to support TMA’s Southwest Florida KIT\, which supports hundreds of myositis patients and connected this amazing local opportunity to TMA. From noon on April 15 to noon on April 16\, Eastern Time\, please visit GivingChallenge.org and make an online donation to TMA. Your generous gift will be multiplied to help TMA provide information\, support\, advocacy\, connectivity\, and research to support those affected by myositis. \nDonate here!
URL:https://300.myositis.org/event/2026-giving-challenge/
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-123918.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.givingchallenge.org/organizations/themyositisassociation
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T120000
DTEND;TZID=America/New_York:20260310T130000
DTSTAMP:20260506T203815
CREATED:20260203T145459Z
LAST-MODIFIED:20260219T133602Z
UID:10003026-1773144000-1773147600@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Christina Charles-Schoeman
DESCRIPTION:Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman\, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis\, including immune mechanisms that drive disease activity and how these insights are shaping more targeted\, effective approaches to treatment. This session will connect cutting-edge science to real-world implications for patients\, caregivers\, and clinicians\, with time for audience questions and discussion. \nRegister Here \nTMA’s Myositis Research Insights Series is the community’s chance to hear directly from the scientists who are hard at work trying to unravel the biology behind myositis and searching for new therapies. Researchers discuss one of their latest projects and answer questions about their work.
URL:https://300.myositis.org/event/myositis-research-insights-featuring-dr-christina-charles-schoeman/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/March-2026-MRI-Charles-Schoeman.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVaHGmLRT4SlHy2QKCS3lw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260221
DTEND;VALUE=DATE:20260301
DTSTAMP:20260506T203815
CREATED:20260217T161945Z
LAST-MODIFIED:20260219T173456Z
UID:10003163-1771632000-1772323199@300.myositis.org
SUMMARY:Rare Disease Week MyoCon 2026 Scholarship Fundraiser
DESCRIPTION:Help Us Raise $5\,000 for TMA’s Patient Conference Scholarship Fund \nAttending MyoCon: TMA’s Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families\, providing education\, support\, and a sense of community. This year\, for Rare Disease Week\, February 23-27\, 2026\, our goal is to bring together 50 donors and raise $5\,000 to provide conference scholarships. Your donation\, no matter the size\, helps bring hope and connection to patients who need it most. Give today and help us reach our goal.
URL:https://300.myositis.org/event/rare-disease-week-myocon-2026-scholarship-fundraiser/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-111652.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/scholarships/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260201
DTEND;VALUE=DATE:20260301
DTSTAMP:20260506T203815
CREATED:20260217T162312Z
LAST-MODIFIED:20260217T162312Z
UID:10003164-1769904000-1772323199@300.myositis.org
SUMMARY:Rare Disease Awareness Events for February
DESCRIPTION:Celebrate Rare Disease Day all month with rare disease events from TMA\, FDA\, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events\, visit our Rare Disease Awareness page:  Rare Disease Awareness – The Myositis Association \n\nRare Medical Journeys in Myositis Survey (closes 2/28)\nMyoCon Scholarship Fundraiser\n2/17: State Policy and Advocacy for RDD Webinar hosted by TMA’s WomenWithIBM Affinity Group\n2/23: FDA Rare Disease Day 2026 Public Meeting\n2/24-2/27: EveryLife Foundation for Rare Diseases Rare Disease Week\n2/27: NIH Rare Disease Day 2026
URL:https://300.myositis.org/event/rare-disease-awareness-events-for-february/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-105453.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
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