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X-WR-CALDESC:Events for The Myositis Association
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260618T180000
DTEND;TZID=America/New_York:20260618T190000
DTSTAMP:20260620T233659
CREATED:20260203T193126Z
LAST-MODIFIED:20260203T202058Z
UID:10003028-1781805600-1781809200@300.myositis.org
SUMMARY:Ask the Expert Pulmonology Edition featuring Dr. Robert Hallowell
DESCRIPTION:For those with DM\, PM\, NM and with or without ILD. Join us for an informative and supportive Ask the Expert webinar featuring Dr. Robert Hallowell\, Director\, Interstitial Lung Disease Program Director\, Pulmonary Ambulatory Clinic at Massachusetts General Hospital.  This session will explore key aspects of diagnosis\, treatment options\, and symptom management for individuals affected by myositis. \nDr. Hallowell will share his clinical insights and answer audience questions in real time making this an excellent opportunity to learn from an expert and engage directly on topics that matter most to you. Registration is free and open to patients\, caregivers\, and clinicians. \nRegister Here \nTMA’s Ask the Expert series is our most popular webinar series. It provides an opportunity for our community to get answers to their burning questions from an expert who likely has more knowledge than their local doctor. This is also a chance for the community to meet a member of TMA’s expert Medical Advisory Board or another distinguished member of the myositis medical community. Submit your question when you register!
URL:https://300.myositis.org/event/ask-the-expert-featuring-dr-robert-hallowell/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/ATE-Hallowell-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_cGcIMcRfSnuB2--WnsBstg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260617T180000
DTEND;TZID=America/New_York:20260617T190000
DTSTAMP:20260620T233659
CREATED:20260519T162537Z
LAST-MODIFIED:20260602T180110Z
UID:10003438-1781719200-1781722800@300.myositis.org
SUMMARY:Patient Perspectives on a Potential New Dermatomyositis Therapy: Exploring Insights from the Phase 3 VALOR Trial
DESCRIPTION:Join Dr. Prateek Gandiga\, a leading expert in dermatomyositis (DM)\, for a discussion on patient experiences in the VALOR trial\, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral medication about their symptoms\, daily activities\, quality of life\, and overall well-being. Understand what these findings may mean for patients with DM and why patient-focused research is so important to advancing care for this condition. Thank you to our sponsor Priovant Therapeutics. \nRegister Here
URL:https://300.myositis.org/event/priovant-sponsored-webinar-featuring-dr-prateek-gandiga/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/Priovant-Valor-Study-Webinar-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SxoDBVUQRO2T9-qc9kZ1Zg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260612T120000
DTEND;TZID=America/New_York:20260612T130000
DTSTAMP:20260620T233659
CREATED:20260519T153109Z
LAST-MODIFIED:20260611T162659Z
UID:10003437-1781265600-1781269200@300.myositis.org
SUMMARY:Meet & Greet Leadership Series: MyoCon 2026 Edition
DESCRIPTION:Get ready for something special! Join us for an exciting edition of The Myositis Association’s Meet & Greet Leadership Series — this time\, we’re turning the spotlight on MyoCon 2026! \nHosted by TMA Executive Director Paula Eichenbrenner\, this can’t-miss event goes beyond your typical Q&A. We’re bringing in special guests who will share their unique perspectives on what makes MyoCon the most anticipated gathering in the myositis community — from the programming that informs to the moments that inspire. \nHave questions about the conference? Bring them! We’re committed to answering every single one\, and we want you to leave this session more excited than ever about what’s ahead in St. Louis this September. \nWhether you’re a first-time attendee or a MyoCon veteran\, this is your chance to connect with TMA leadership\, hear directly from our guests\, and get a front-row preview of what promises to be our best conference yet. The energy is building — and we want you to be part of it! \nWe can’t wait to see you there. 🎉 \nRegister Here
URL:https://300.myositis.org/event/meet-greet-leadership-series-myocon-2026-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/MyoCon-MG-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/CqWkosk9QPedWdUi1ZiD4A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260602T180000
DTEND;TZID=America/New_York:20260602T190000
DTSTAMP:20260620T233659
CREATED:20260228T135426Z
LAST-MODIFIED:20260519T164055Z
UID:10003185-1780423200-1780426800@300.myositis.org
SUMMARY:Natural Killer (NK) Cells in Myositis: Emerging Science and Therapeutic Potential
DESCRIPTION:What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? \n  \nNatural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis — whether they contribute to muscle inflammation\, help regulate immune responses\, or could become a target for future therapies. \nJoin us for an in-depth look at the latest research on NK cells in myositis\, what scientists are discovering\, and what these findings may mean for people living with myositis. Whether you are newly diagnosed or have been navigating myositis for years\, speakers Lisa Christopher-Stine\, MD\, MHS and Shawn Rose\, MD\, PhD will help you better understand this emerging area of science and where it may lead. Thank you to webinar sponsor Nkarta. \nRegister Here
URL:https://300.myositis.org/event/natural-killer-nk-cells-in-myositis-emerging-science-and-therapeutic-potential/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Nkarta-June-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_iEihf20wRkmNSaXhk58kxg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260528T120000
DTEND;TZID=America/New_York:20260528T130000
DTSTAMP:20260620T233659
CREATED:20260227T011101Z
LAST-MODIFIED:20260527T004316Z
UID:10003183-1779969600-1779973200@300.myositis.org
SUMMARY:Enriching your Life with Assistive Technology
DESCRIPTION:As we close out Myositis Awareness Month\, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently\, comfortably\, and fully. \nWe are thrilled to welcome Monique Chabot\, PhD\, OTD\, OTR/L\, FAOTA\, SCEM\, CLIPP\, CAPS\, Associate Director of Assistive Technology at the Institute on Disabilities at Temple University\, as our featured speaker. Monique is a licensed Occupational Therapist and design researcher with deep expertise in assistive technology\, aging in place\, smart home technology\, and inclusive design. She earned a PhD in Architecture and Design Research at Thomas Jefferson University\, where her work focuses on integrating smart technology to support independent living. An accomplished clinician and researcher\, Monique was recently honored with induction into the AOTA Roster of Fellows in recognition of her outstanding contributions to the field of occupational therapy. \nMonique represents TechOWL (Technology for Our Whole Lives)\, Pennsylvania’s designated Assistive Technology Act Program\, housed within the Institute on Disabilities at Temple University’s College of Education and Human Development. As one of 56 AT Act programs across the United States\, TechOWL connects people of all ages and abilities across Pennsylvania with the tools and technology they need to live\, work\, learn\, and communicate more independently — at no cost. \nDuring this webinar\, we’ll explore how assistive technology can address the unique challenges faced by those living with myositis\, including tools that support mobility\, communication\, daily living\, and more. We’ll also take a closer look at TechOWL’s Assistive Technology Lending Library — a free resource of assistive devices to borrow and trial before making any purchasing decisions. Whether you’re newly diagnosed or have been navigating myositis for years\, this is a valuable opportunity to discover resources that could make a meaningful difference in your everyday life. \nThis webinar will be hosted by Immediate Past Board Chair Laurie Boyer. \nDon’t miss this inspiring conversation to close out Myositis Awareness Month! \nRegister Here
URL:https://300.myositis.org/event/enriching-your-life-with-assistive-technology/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/2-Assistive-Technology-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_UTVhbKV5Q6GgjKp5whFp_A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T133000
DTEND;TZID=America/New_York:20260527T143000
DTSTAMP:20260620T233659
CREATED:20260326T135822Z
LAST-MODIFIED:20260527T004047Z
UID:10003184-1779888600-1779892200@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat IBM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IBM here—we get it. This program will be hosted by TMA board member Alicia Polak. Many thanks to our sponsor Abcuro for supporting IBM Diagnosis Day. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-ibm/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Cafe-Chat-IBM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/SXvOv9fPSTCxpjgciKj0Cw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260527T120000
DTEND;TZID=America/New_York:20260527T130000
DTSTAMP:20260620T233659
CREATED:20260309T073615Z
LAST-MODIFIED:20260527T003833Z
UID:10003253-1779883200-1779886800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Inclusion Body Myositis (IBM) Edition
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, Dr. Jens Schmidt\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. This webinar will be hosted by past TMA Board of Directors member Nita Sharma. Thank you to our sponsor Abcuro for their support of IBM Diagnosis Day. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Ask-the-Expert-IBM-7.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_SkMRa_oTQ1itlJ6hqWAlLw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260527
DTEND;VALUE=DATE:20260528
DTSTAMP:20260620T233659
CREATED:20260227T005949Z
LAST-MODIFIED:20260309T073320Z
UID:10003180-1779840000-1779926399@300.myositis.org
SUMMARY:Diagnosis Day: Inclusion Body Myositis (IBM
DESCRIPTION:As part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Inclusion Body Myositis (IBM). This program will feature a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. Next\, we will come together for Cafe Chat IBM Edition to socialize as a community. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of IBM and the impact of myositis. \n 
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-inclusion-body-myositis-ibm-edition/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260526T160000
DTEND;TZID=America/New_York:20260526T164500
DTSTAMP:20260620T233659
CREATED:20260519T211614Z
LAST-MODIFIED:20260526T112301Z
UID:10003440-1779811200-1779813900@300.myositis.org
SUMMARY:Diagnosis Denied - Community Screening: What Veterans with IBM Want You to Know
DESCRIPTION:Join us for a special community screening of Diagnosis Denied\, a powerful investigative documentary series from 11Alive Investigates and NBC affiliates across the country\, examining why U.S. veterans diagnosed with inclusion body myositis (IBM) are so often denied VA disability benefits. Through reporting from coast to coast\, the series uncovers patterns in claim denials\, gaps in disease recognition\, and the real human cost borne by veterans fighting for the care and support they’ve earned. \nThis event is open to everyone — patients\, caregivers\, advocates\, and community members — not just veterans or those living with IBM. After the screening\, join us for a community conversation and Q&A with reporters including Jennifer Titus\, Rebecca Lindstrom\, Heather Crawford and Ciara Bríd Frisbie\, who will share insight into the reporting process and what they hope this series will change. \nWe are deeply grateful to the entire Diagnosis Denied news team for the heart\, rigor\, and dedication they brought to shining a light on this issue — including producers Ciara Bríd Frisbie and Elizabeth Hendren\, and reporters Jennifer Titus\, Rebecca Lindstrom\, Chris Vanderveen\, Heather Crawford\, and Kyle Iboshi. \nCome watch. Come learn. Come be part of the conversation. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-denied-diagnosis-denied-community-screening-what-veterans-with-ibm-want-you-to-know/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/Diagnosis-Denied-Screening-Banner1920-x-608-px.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_k_5QhlpRTlWmjthZ-i1W4w
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T133000
DTEND;TZID=America/New_York:20260520T143000
DTSTAMP:20260620T233659
CREATED:20260227T010411Z
LAST-MODIFIED:20260506T175027Z
UID:10003181-1779283800-1779287400@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat PM & OM
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Polymyositis & Overlap Myositis (OM). This relaxed\, informal gathering is a space to connect with others who truly understand your myositis journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Holly Jones. A special thanks to Myositis Awareness Month sponsor argenx for supporting Diagnosis Day IMNM! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-pm-om/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-PM-OM-argenx.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/lT7MKBctS0CBOyKEfJtmFA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260520T120000
DTEND;TZID=America/New_York:20260520T130000
DTSTAMP:20260620T233659
CREATED:20260227T004240Z
LAST-MODIFIED:20260506T172654Z
UID:10003179-1779278400-1779282000@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Polymyositis (PM) and Overlap Myositis (OM)
DESCRIPTION:  \nAs part of Myositis Awareness Month\, The Myositis Association (TMA) invites you to a special Diagnosis Day Ask the Expert webinar focused on Polymyositis (PM) and Overlap Myositis (OM). This program will feature Chet Oddis\, MD\, a leading myositis specialist\, who will provide expert insights into diagnosis\, disease management\, current treatment approaches\, and emerging research. \nDiagnosis Days were created by TMA to honor the patient journey — recognizing that for many living with myositis\, the path to diagnosis is often complex\, delayed\, and emotionally challenging. These dedicated days shine a light on the importance of awareness\, timely diagnosis\, and continued research to improve outcomes. \nPatients\, care partners\, healthcare professionals\, and community members are encouraged to attend. We also invite you to share this program with family\, friends\, and colleagues to help broaden understanding of PM\, OM\, and the impact of myositis. A special than you to our Myositis Awareness Month sponsor argenx for support Diagnosis Day: PM & OM! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-polymyositis-pm-and-overlap-myositis-om/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Ask-the-Expert-PM-OM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_ClCsiGvPQo2ebDdzia7Gqw
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260513T133000
DTEND;TZID=America/New_York:20260513T143000
DTSTAMP:20260620T233659
CREATED:20260203T222701Z
LAST-MODIFIED:20260505T194825Z
UID:10003032-1778679000-1778682600@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Dermatomyositis (DM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on Dermatomyositis (DM). This relaxed\, informal gathering is a space to connect with others who truly understand the DM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain DM here—we get it. This program will be hosted by TMA volunteer Krystal Harris. A special thank you to our Myositis Awareness Month sponsors argenx and Priovant! \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-dermatomyositis-dm-edition/
CATEGORIES:Commemorative,Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Cafe-Chat-DM-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/zPb9VnJQSOK4TGRMLakgcQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T133000
DTEND;TZID=America/New_York:20260506T143000
DTSTAMP:20260620T233659
CREATED:20260203T223456Z
LAST-MODIFIED:20260506T173737Z
UID:10003033-1778074200-1778077800@300.myositis.org
SUMMARY:Diagnosis Day: Cafe Chat Immune-mediated Necrotizing Myopathy (IMNM) Edition
DESCRIPTION:In honor of Diagnosis Days during Myositis Awareness Month this May\, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed\, informal gathering is a space to connect with others who truly understand the IMNM journey. \nWe’ll be sharing stories of the day we were diagnosed—the moments\, emotions\, and experiences that shaped our paths—and reflecting on how far we’ve come since then. Family members\, friends\, and loved ones are warmly encouraged to attend\, especially those you wish understood your illness a little better. \nGrab a cup of coffee\, settle in\, and join a supportive conversation rooted in connection\, understanding\, and community. You don’t have to explain IMNM here—we get it. This program will be hosted by TMA Board member Debbie Armstrong. A special thanks to Myositis Awareness Month sponsor argenx. \nRegister Here
URL:https://300.myositis.org/event/diagnosis-day-cafe-chat-immune-mediated-necrotizing-myopathy-imnm-edition/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Cafe-Chat-IMNM-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/Pn_OnOBEQSqqTSgR8amFiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260506T110000
DTEND;TZID=America/New_York:20260506T120000
DTSTAMP:20260620T233659
CREATED:20260126T223517Z
LAST-MODIFIED:20260504T141427Z
UID:10003022-1778065200-1778068800@300.myositis.org
SUMMARY:Diagnosis Day: Ask the Expert Immune-Mediated Necrotizing Myopathy (IMNM)
DESCRIPTION:In recognition of Myositis Awareness Month and IMNM Diagnosis Day\, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen\, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH)\, who will share expert insights on IMNM\, including diagnosis\, current research\, and treatment considerations. \nThe webinar will be hosted by Jim Shea\, a dedicated TMA volunteer living with IMNM\, who will guide the discussion and represent the lived experience of patients navigating this rare disease. Thank you to our Myositis Awareness Month sponsor Argenx. \nRegister Here \nWhy Diagnosis Days Matter\nTMA created Diagnosis Days during Myositis Awareness Month to honor the often long\, complex\, and emotionally challenging journey to a myositis diagnosis. These days recognize both the resilience of patients and care partners and the critical importance of timely\, accurate diagnosis in improving outcomes and quality of life. We encourage TMA members to invite their family\, friends\, and broader networks to attend\, helping raise awareness of myositis within the wider community. \nThis program is designed for patients\, care partners\, healthcare professionals\, and anyone interested in learning more about IMNM and the myositis experience.
URL:https://300.myositis.org/event/diagnosis-day-ask-the-expert-immune-mediated-necrotizing-myopathy-imnm/
CATEGORIES:Commemorative,Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/01/Ask-the-Expert-IMNM.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_wuzeL_SxT8ikcGJeWIgUow
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260504T120000
DTEND;TZID=America/New_York:20260504T130000
DTSTAMP:20260620T233659
CREATED:20260223T160256Z
LAST-MODIFIED:20260504T113107Z
UID:10003177-1777896000-1777899600@300.myositis.org
SUMMARY:Research Briefing from the Global Conference on Myositis (GCOM)
DESCRIPTION:What’s next in myositis treatment—and what are the latest clinical trials revealing? \nTo kick off Myositis Awareness Month\, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference\, held every two years\, convenes March of 2026 in Lisbon\, Portugal\, bringing together experts from around the world to share the newest advances in myositis research and care. \nIn this exclusive briefing hosted by TMA Executive Director Paula Eichenbrenner\, four distinguished physicians will present key takeaways from the conference: \nEdoardo Conticini\, MD\, PhD – Specialist in rheumatology\, PhD in “Translational and Precision Medicine” at the University of Siena. \nIazsmin Bauer Ventura\, MD\, MSc –  Associate Professor of Medicine\, director of the Myositis Program at University of Chicago Medicine  \, presenting on “Novel Treatments in Myositis.” \nJisna Paul\, MBBS\, RhMSUS\, FACR – Clinical Associate Professor of Internal Medicine and Rheumatology and Co-Director of the Myositis Clinic at The Ohio State University Wexner Medical Center (USA)\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nMatthew Burford\, MD – Clinical Assistant Professor of Neurology at The Ohio State University College of Medicine\, co-presenting on “Updates from Recent Clinical Trials in Inflammatory Myopathies.” \nRegister Here
URL:https://300.myositis.org/event/research-briefing-from-the-global-conference-on-myositis-gcom/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/MCTC-4.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_q5WytbIQTjigWp0OenGBVw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260501
DTEND;VALUE=DATE:20260601
DTSTAMP:20260620T233659
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003166-1777593600-1780271999@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2026-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260424T120000
DTEND;TZID=America/New_York:20260424T130000
DTSTAMP:20260620T233659
CREATED:20260309T080842Z
LAST-MODIFIED:20260409T182921Z
UID:10003255-1777032000-1777035600@300.myositis.org
SUMMARY:TMA Meet & Greet Leadership Series: Meet the New Board Chair!
DESCRIPTION:Join us for a special edition of The Myositis Association’s (TMA) Meet & Greet Leadership Series. Hosted by TMA Executive Director Paula Eichenbrenner and featuring TMA Board Chair Rich DeAugustinis\, this engaging event is designed to bring our community together in a spirit of connection. Don’t miss this opportunity to connect with TMA leadership and fellow community members\, We look forward to seeing you there! \nRegister Here
URL:https://300.myositis.org/event/tma-meet-greet-leadership-series-meet-the-new-board-chair/
CATEGORIES:Community Meetups
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/03/Myositis-Awareness-Month-April-2026-April-2025-2.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/meeting/register/0kQeZGFyTO6TutGzj6368A
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260422
DTEND;VALUE=DATE:20260509
DTSTAMP:20260620T233659
CREATED:20260421T204240Z
LAST-MODIFIED:20260421T204240Z
UID:10003432-1776816000-1778284799@300.myositis.org
SUMMARY:Myositis Awareness Month 2026 Merch - Raise Awareness Year-round!
DESCRIPTION:Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! \nOrder deadline is May 8\, 2026. Eight designs are available with multiple styles\, colors\, and sizes. Your order will ship directly to you at the end of May from Custom Ink. \nWe’d love to be tagged on social media in photos of you\, your friends\, your family\, and your pets rocking TMA apparel. \nSupport TMA Here \n 
URL:https://300.myositis.org/event/myositis-awareness-month-2026-merch-raise-awareness-year-round/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/04/2026-Merch.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.customink.com/fundraising/MAM2026
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260416T120000
DTEND;TZID=America/New_York:20260416T130000
DTSTAMP:20260620T233659
CREATED:20260316T153139Z
LAST-MODIFIED:20260316T153735Z
UID:10003187-1776340800-1776344400@300.myositis.org
SUMMARY:Myositis Self-hypnosis Workshop: Harnessing the Mind for Healing & Comfort
DESCRIPTION:Register Here \nJoin us for an empowering Zoom workshop where you’ll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You’ll discover how your thoughts influence your physical body\, how your subconscious mind is programmed\, and how hypnosis can create new positive patterns that support healing and reduce discomfort. Learn the essential skills of self-hypnosis\, including how to write effective suggestions tailored to your needs\, and experience a deeply relaxing guided group hypnosis session focused on comfort\, healing\, and vitality. No prior experience is necessary. You’ll leave with tools you can use immediately at home. Questions welcome at the end. \nTMA’s Empowerment Clinics are designed to enhance your quality of life\, whether you are the person living with myositis or a care partner. They offer useful tools and insights into common issues presented by experts on the topic and on occasion\, a TMA member with lived experience on the topic.
URL:https://300.myositis.org/event/myositis-self-hypnosis-workshop-harnessing-the-mind-for-healing-comfort-2/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/jpeg:https://300.myositis.org/wp-content/uploads/2026/03/Self-Hypnosis-April-2026.jpg
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_OGaZWL5pRdyBgoxm35V6pA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260415T120000
DTEND;TZID=America/New_York:20260416T120000
DTSTAMP:20260620T233659
CREATED:20260219T174644Z
LAST-MODIFIED:20260316T185415Z
UID:10003165-1776254400-1776340800@300.myositis.org
SUMMARY:2026 Giving Challenge
DESCRIPTION:TMA has a wonderful opportunity to be part of the Giving Challenge\, a special day of giving hosted by the Community Foundation of Sarasota County. This one-day event starting April 15 will double your generosity to TMA! Donations made online during a 24-hour period will be matched by The Patterson Foundation (up to $100 per donor). Some of the proceeds will go to support TMA’s Southwest Florida KIT\, which supports hundreds of myositis patients and connected this amazing local opportunity to TMA. From noon on April 15 to noon on April 16\, Eastern Time\, please visit GivingChallenge.org and make an online donation to TMA. Your generous gift will be multiplied to help TMA provide information\, support\, advocacy\, connectivity\, and research to support those affected by myositis. \nDonate here!
URL:https://300.myositis.org/event/2026-giving-challenge/
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-123918.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.givingchallenge.org/organizations/themyositisassociation
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260310T120000
DTEND;TZID=America/New_York:20260310T130000
DTSTAMP:20260620T233659
CREATED:20260203T145459Z
LAST-MODIFIED:20260219T133602Z
UID:10003026-1773144000-1773147600@300.myositis.org
SUMMARY:Myositis Research Insights featuring Dr. Christina Charles-Schoeman
DESCRIPTION:Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman\, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis\, including immune mechanisms that drive disease activity and how these insights are shaping more targeted\, effective approaches to treatment. This session will connect cutting-edge science to real-world implications for patients\, caregivers\, and clinicians\, with time for audience questions and discussion. \nRegister Here \nTMA’s Myositis Research Insights Series is the community’s chance to hear directly from the scientists who are hard at work trying to unravel the biology behind myositis and searching for new therapies. Researchers discuss one of their latest projects and answer questions about their work.
URL:https://300.myositis.org/event/myositis-research-insights-featuring-dr-christina-charles-schoeman/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/March-2026-MRI-Charles-Schoeman.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVaHGmLRT4SlHy2QKCS3lw
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260221
DTEND;VALUE=DATE:20260301
DTSTAMP:20260620T233659
CREATED:20260217T161945Z
LAST-MODIFIED:20260219T173456Z
UID:10003163-1771632000-1772323199@300.myositis.org
SUMMARY:Rare Disease Week MyoCon 2026 Scholarship Fundraiser
DESCRIPTION:Help Us Raise $5\,000 for TMA’s Patient Conference Scholarship Fund \nAttending MyoCon: TMA’s Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families\, providing education\, support\, and a sense of community. This year\, for Rare Disease Week\, February 23-27\, 2026\, our goal is to bring together 50 donors and raise $5\,000 to provide conference scholarships. Your donation\, no matter the size\, helps bring hope and connection to patients who need it most. Give today and help us reach our goal.
URL:https://300.myositis.org/event/rare-disease-week-myocon-2026-scholarship-fundraiser/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-111652.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/scholarships/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260201
DTEND;VALUE=DATE:20260301
DTSTAMP:20260620T233659
CREATED:20260217T162312Z
LAST-MODIFIED:20260217T162312Z
UID:10003164-1769904000-1772323199@300.myositis.org
SUMMARY:Rare Disease Awareness Events for February
DESCRIPTION:Celebrate Rare Disease Day all month with rare disease events from TMA\, FDA\, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events\, visit our Rare Disease Awareness page:  Rare Disease Awareness – The Myositis Association \n\nRare Medical Journeys in Myositis Survey (closes 2/28)\nMyoCon Scholarship Fundraiser\n2/17: State Policy and Advocacy for RDD Webinar hosted by TMA’s WomenWithIBM Affinity Group\n2/23: FDA Rare Disease Day 2026 Public Meeting\n2/24-2/27: EveryLife Foundation for Rare Diseases Rare Disease Week\n2/27: NIH Rare Disease Day 2026
URL:https://300.myositis.org/event/rare-disease-awareness-events-for-february/
CATEGORIES:Commemorative
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-17-105453.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
END:VCALENDAR