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X-WR-CALNAME:The Myositis Association
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X-WR-CALDESC:Events for The Myositis Association
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DTSTART;TZID=America/New_York:20260707T120000
DTEND;TZID=America/New_York:20260707T130000
DTSTAMP:20260620T214724
CREATED:20260519T145744Z
LAST-MODIFIED:20260519T145744Z
UID:10003436-1783425600-1783429200@300.myositis.org
SUMMARY:Nutrition in Myositis Webinar
DESCRIPTION:More Details to Come! \nRegister Here
URL:https://300.myositis.org/event/nutrition-in-myositis-webinar/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yQPeGhaxRgWjlFVX5mQhOA
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T180000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260620T214724
CREATED:20260519T195443Z
LAST-MODIFIED:20260519T195632Z
UID:10003439-1787248800-1787252400@300.myositis.org
SUMMARY:Ask the Expert featuring Chris Weihl\, MD\, PhD
DESCRIPTION:Have myositis questions for a neurologist? Now’s your chance to ask one of the field’s leading specialists. \nJoin us for a special Ask the Expert session featuring Conrad C. Weihl\, MD\, PhD\, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice on the mechanisms of weakness and atrophy related to neuromuscular disorders\, including inflammatory myopathy and inclusion body myositis. He has an active clinical and basic science research program focused on genetics\, protein aggregate myopathies\, inclusion body myositis\, and limb-girdle muscular dystrophies. \nWhether you’re navigating a new diagnosis\, wondering about muscle weakness\, or curious about the latest research in IBM and other inflammatory myopathies\, this is your opportunity to get expert insight in a relaxed\, open format. \nBring your questions — Dr. Weihl is here to help you understand what’s happening in your muscles and what it means for your care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-chris-weihl-md-phd/
CATEGORIES:Webinar
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JAu8s2m7TheK2HevXkjBkg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261016T180000
DTEND;TZID=America/Chicago:20261016T210000
DTSTAMP:20260620T214724
CREATED:20260203T162726Z
LAST-MODIFIED:20260203T175852Z
UID:10003027-1792173600-1792184400@300.myositis.org
SUMMARY:Third Annual Meredith C. Thomas Trivia Night Fundraiser (in-person event)
DESCRIPTION:Registration details coming soon! \nIn partnership with the Thomas family\, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship\, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and passed away at age 33 in November 2023. In her honor\, her family created Meredith’s Legacy. \n Learn more and donate now!
URL:https://300.myositis.org/event/third-annual-meredith-c-thomas-trivia-night-fundraiser/
LOCATION:Butterfield Country Club\, 2800 Midwest Rd\, Oak Brook\, IL\, 60523\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-03-115426.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261201T080000
DTEND;TZID=America/New_York:20261201T170000
DTSTAMP:20260620T214724
CREATED:20260222T163212Z
LAST-MODIFIED:20260222T163212Z
UID:10003171-1796112000-1796144400@300.myositis.org
SUMMARY:This GivingTuesday\, stand with the myositis community.
DESCRIPTION:Every day\, individuals living with myositis face muscle weakness\, fatigue\, isolation\, and uncertainty. But they don’t have to face it alone. Through education\, support groups\, research funding\, and advocacy\, The Myositis Association (TMA) connects patients and families to the resources and community they need to move forward with strength and hope. \nYour gift fuels critical research\, empowers patients with reliable information\, and builds a network of support that reaches across the country and around the world. \nOn Giving Tuesday\, be part of something powerful. Give today. Change tomorrow for those living with myositis.
URL:https://300.myositis.org/event/this-givingtuesday-stand-with-the-myositis-community/2026-12-01/
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Generic-Giving-Tuesday.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/donate/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270501
DTEND;VALUE=DATE:20270601
DTSTAMP:20260620T214724
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003167-1809129600-1811807999@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2027-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20280501
DTEND;VALUE=DATE:20280601
DTSTAMP:20260620T214724
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003168-1840752000-1843430399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2028-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20290501
DTEND;VALUE=DATE:20290601
DTSTAMP:20260620T214724
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003169-1872288000-1874966399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2029-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20300501
DTEND;VALUE=DATE:20300601
DTSTAMP:20260620T214724
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003170-1903824000-1906502399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2030-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
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