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X-WR-CALNAME:The Myositis Association
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X-WR-CALDESC:Events for The Myositis Association
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260820T180000
DTEND;TZID=America/New_York:20260820T190000
DTSTAMP:20260629T200633Z
CREATED:20260519T195443Z
LAST-MODIFIED:20260629T200633Z
UID:10003439-1787248800-1787252400@300.myositis.org
SUMMARY:Ask the Expert featuring Chris Weihl\, MD\, PhD
DESCRIPTION:Have myositis questions for a neurologist? Now’s your chance to ask one of the field’s leading specialists. \nJoin us for a special Ask the Expert session featuring Conrad C. Weihl\, MD\, PhD\, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice on the mechanisms of weakness and atrophy related to neuromuscular disorders\, including inflammatory myopathy and inclusion body myositis. He has an active clinical and basic science research program focused on genetics\, protein aggregate myopathies\, inclusion body myositis\, and limb-girdle muscular dystrophies. \nWhether you’re navigating a new diagnosis\, wondering about muscle weakness\, or curious about the latest research in IBM and other inflammatory myopathies\, this is your opportunity to get expert insight in a relaxed\, open format. \nBring your questions — Dr. Weihl is here to help you understand what’s happening in your muscles and what it means for your care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-chris-weihl-md-phd/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/05/ATE-AUG-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_JAu8s2m7TheK2HevXkjBkg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260909T190000
DTEND;TZID=America/New_York:20260909T200000
DTSTAMP:20260630T214535Z
CREATED:20260630T211026Z
LAST-MODIFIED:20260630T214535Z
UID:10003543-1788980400-1788984000@300.myositis.org
SUMMARY:Ask the Expert featuring Tahseen Mozaffar\, MD\, FAAN
DESCRIPTION:Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar\, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis\, polymyositis\, inclusion body myositis\, immmune-mediated necrotizing myopathy\, and antisynthetase syndrome — drawing on decades of clinical and research experience. Whether you’re newly diagnosed or have lived with myositis for years\, this is your chance to get expert answers on diagnosis\, treatment options\, clinical trials\, and what’s on the horizon in myositis research and care. Bring your questions — no topic is off-limits. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-featuring-tahseen-mozaffar-md-faan/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-SEPT-2026.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_41mc5yoFSN2mapOQCVoDiQ
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260910T160000
DTEND;TZID=America/New_York:20260910T170000
DTSTAMP:20260731T180336Z
CREATED:20260630T220010Z
LAST-MODIFIED:20260731T180336Z
UID:10003544-1789056000-1789059600@300.myositis.org
SUMMARY:Valor Study Webinar sponsored by Priovant Therapeutics
DESCRIPTION:Learn more about the results of the Valor study for Dermatomyositis. More information to come! \nRegister Here
URL:https://300.myositis.org/event/valor-study-webinar-sponsored-by-priovant-therapeutics/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/Valor-Study-Webinar-Sep-2026-1.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_Z_ogmAMzRDOR_NT_qagV9A
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261015T180000
DTEND;TZID=America/New_York:20261015T190000
DTSTAMP:20260630T222247Z
CREATED:20260630T221543Z
LAST-MODIFIED:20260630T222247Z
UID:10003545-1792087200-1792090800@300.myositis.org
SUMMARY:Ask the Expert Speech and Swallowing Edition
DESCRIPTION:Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis\, featuring Dr. Georgia Malandraki\, a member of The Myositis Association’s Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis\, affecting communication\, nutrition\, and quality of life. Dr. Malandraki will answer your questions on the causes of swallowing difficulty in myositis\, evaluation and treatment approaches\, exercise-based and telehealth rehabilitation options\, and strategies for managing speech and swallowing changes day to day. Bring your questions for one of the field’s leading researchers and clinicians in dysphagia care. \nRegister Here
URL:https://300.myositis.org/event/ask-the-expert-speech-and-swallowing-edition/
CATEGORIES:Webinar
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/06/ATE-Swallowing-Oct-2026-.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://us02web.zoom.us/webinar/register/WN_yVjPOq71SiWy9fFw4uUcSg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261016T180000
DTEND;TZID=America/Chicago:20261016T210000
DTSTAMP:20260203T175852Z
CREATED:20260203T162726Z
LAST-MODIFIED:20260203T175852Z
UID:10003027-1792173600-1792184400@300.myositis.org
SUMMARY:Third Annual Meredith C. Thomas Trivia Night Fundraiser (in-person event)
DESCRIPTION:Registration details coming soon! \nIn partnership with the Thomas family\, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship\, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and passed away at age 33 in November 2023. In her honor\, her family created Meredith’s Legacy. \n Learn more and donate now!
URL:https://300.myositis.org/event/third-annual-meredith-c-thomas-trivia-night-fundraiser/
LOCATION:Butterfield Country Club\, 2800 Midwest Rd\, Oak Brook\, IL\, 60523\, United States
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-03-115426.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/New_York:20261201T080000
DTEND;TZID=America/New_York:20261201T170000
DTSTAMP:20260222T163212Z
CREATED:20260222T163212Z
LAST-MODIFIED:20260222T163212Z
UID:10003171-1796112000-1796144400@300.myositis.org
SUMMARY:This GivingTuesday\, stand with the myositis community.
DESCRIPTION:Every day\, individuals living with myositis face muscle weakness\, fatigue\, isolation\, and uncertainty. But they don’t have to face it alone. Through education\, support groups\, research funding\, and advocacy\, The Myositis Association (TMA) connects patients and families to the resources and community they need to move forward with strength and hope. \nYour gift fuels critical research\, empowers patients with reliable information\, and builds a network of support that reaches across the country and around the world. \nOn Giving Tuesday\, be part of something powerful. Give today. Change tomorrow for those living with myositis.
URL:https://300.myositis.org/event/this-givingtuesday-stand-with-the-myositis-community/2026-12-01/
CATEGORIES:TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Generic-Giving-Tuesday.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/donate/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270501
DTEND;VALUE=DATE:20270601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003167-1809129600-1811807999@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2027-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20280501
DTEND;VALUE=DATE:20280601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003168-1840752000-1843430399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2028-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20290501
DTEND;VALUE=DATE:20290601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003169-1872288000-1874966399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2029-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20300501
DTEND;VALUE=DATE:20300601
DTSTAMP:20260222T162237Z
CREATED:20260219T182521Z
LAST-MODIFIED:20260222T162237Z
UID:10003170-1903824000-1906502399@300.myositis.org
SUMMARY:Myositis Awareness Month 2026
DESCRIPTION:May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness\, sharing resources and education\, sharing strategies for advocacy\, and building a stronger and more connected myositis community. \nTMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis\, plus incredible community-wide events. Plus! Powerful resources to help you tell your story\, support each other\, and expand the public’s understanding of myositis. In doing so\, you can shorten the wait between symptoms and diagnosis. Ultimately\, your efforts will speed up the search for better treatments and a cure. \nWith your help\, we can educate your community…and the world! \nLearn more and donate here.
URL:https://300.myositis.org/event/myositis-awareness-month-2026/2030-05-01/
CATEGORIES:Commemorative,TMA Fundraiser
ATTACH;FMTTYPE=image/png:https://300.myositis.org/wp-content/uploads/2026/02/Screenshot-2026-02-19-132352.png
ORGANIZER;CN="TMA":MAILTO:TMA@myositis.org
LOCATION:https://www.myositis.org/about-myositis/myositis-awareness-month/
END:VEVENT
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