Rare Disease Week at Capitol Hill

This free multi-day event, hosted by the Rare Disease Legislative Advocates, a program of the EveryLife Foundation for Rare Diseases, brings together rare disease advocates from across the country to make their voices heard with their Members of Congress. Participants are educated on policy proposals impacting the rare disease community and provided opportunities to advocate directly for policy change with their Members of Congress.

Learn More

Are you participating in a Rare Disease Day event? Please email tma@myositis.org to let us know where you are participating.

Visit TMA’s website for more events honoring rare disease awareness!