MyoCon! Rate increases on August 28th!
By Darlene Butler Many dermatomyositis patients fight for months to get answers, and there is a sense of relief when you hear “you have dermatomyositis.” Then treatment brings a new…
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Finding Strength Through Advocacy
By Deidre M. Champion Before myositis became part of my life, I was always active. I used to run track and compete in hurdles, and I spent a lot of…
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A New Model for Understanding IBM
Each year, TMA awards research funding to support innovative investigations to improve understanding and treatment of myositis diseases. Dr. Thomas Lloyd recently completed such a project in which he and…
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Forever Gardener Keeps Growing
One of the uncertainties Lori Wong faced when she was diagnosed with inclusion body myositis (IBM) was whether she would be able to keep gardening. “I’ve been gardening forever,” she…
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Celebrate your Successes
By Jim Shea My journey with myositis began in the summer of 2024. I started having trouble getting out of chairs, climbing steps, and even swallowing. At first, I didn’t…
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