Rethinking How We Measure Hand Function in IBM For many people living with inclusion body myositis (IBM), the first changes are easy to overlook. A shirt button takes a little…
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Finding Joy in the New Normal
By Karen Perkul “I’m getting older.” “I’ve always been rather clumsy.” “I need to pay better attention to where I’m walking.” Sound familiar? I was walking three miles a day…
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Rx for Care Partners
Sunshine, Forests, and Fresh Air By Theresa Curry John La Puma, MD, a physician, chef, and farmer, tells the story of Sarah, a woman who came to him feeling trapped…
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Discoveries While Scrolling on a Sleepless Night
By Linda Thomas I was scrolling through a myositis newsletter the other night, the kind of scrolling I do when I can’t sleep because my legs won’t settle down, and…
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54 Members of Congress Stand with Veterans Living With IBM
By Rich DeAugustinis, Chair, Board of Directors, The Myositis Association This week, 54 Members of Congress—Republicans and Democrats, from 26 states, in both the House of Representatives and the Senate—signed…
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