The Global Conference on Myositis (GCOM) 2026, held March 23–26 in Lisbon, brought together researchers, clinicians, patient organizations, and people living with myositis from around the world. This was the…
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In Memoriam: Remembering Rare Disease Advocate Jenneh Rishe
We are deeply saddened by the loss of Jenneh Rishe—a powerful advocate, a fierce source of hope, and a beloved member of our chronic disease and myositis communities. Jenneh dedicated…
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Artificial Intelligence and the Future of Myositis Research and Care
By Rich DeAugustinis Late last month I had the honor of leading our TMA delegation with TMA Executive Director Paula Eichenbrenner at the Global Conference on Myositis (GCOM) in Lisbon,…
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National Academies Reviews IBM
For years, veterans with inclusion body myositis have asserted that their disease was caused by exposure to toxic materials while they served in the US armed forces. Members of TMA’s…
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Learning Everything about IBM
Cindy and Bill Ebert waited a while for Bill to get an accurate diagnosis, but that will come as no surprise to others with IBM. Neither will the Jacksonville couple’s…
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