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Alicia Polak
I'm raising $2,200 in honor of my birthday on April 22nd for The Myositis Association (TMA), the organization working hardest to find treatments and a cure for myositis — a group of rare, devastating autoimmune diseases that attack the muscles.
This cause is deeply personal to me.
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MyoCon: TMA's Global Myositis Patient Conference
September 24–27, 2026
Hyatt Regency St. Louis at the Arch | St. Louis, MOTMA's 2026 Global Patient Conference will take place in St. Louis, Missouri on September 24–27. MyoCon is a cornerstone of TMA's patient engagement, connection, and support - a celebration you don't want to miss!
If you are a member of TMA and are looking to talk with others about your disease to gain a better understanding and prepare for the challenges ahead, you are encouraged to join the Support Group network.
Find a Support GroupMyositis is a muscle-wasting disease that results in fatigue and reduced strength.
Browse our library to find helpful discussions, presentations and research studies.
Check out recent blog posts to stay up-to-date on TMA and myositis news.
We always welcome new members to our community. Join by volunteering, fundraising, and more.
Each person's journey is unique, yet familiar. Listen to those living with myositis share their stories of persistence and hope.
See All of Our Stories
Shop for makeup, skin care, fragrance, and more — while supporting TMA's important mission during Myositis Awareness Month! Support TMA The Avon Fundraising program helps charities like TMA connect...
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! Order deadline is May 8, 2026. Eight designs are available with multiple styles, colors,...
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s...
View one or all of the 40 presentations and info sessions about TMA’s conferences. Did you know TMA has been convening the only worldwide myositis patient conference annually since 1995? It is truly a “bucket list” experience!
Travel is difficult for many, and we want to share the MyoCon learnings as widely and inclusively as possible. That’s why we offer a package of recordings from most sessions on the conference agenda. A tremendous value for only $149 – purchase today!
Our increased virtual environment has allowed for connectivity that surpasses geographic location. In addition to our traditional KIT support groups, TMA is supporting meeting circles with outreach efforts targeted toward supporting and extending our organization’s reach into new communities.
May is Myositis Awareness Month! Celebrate with us by raising your voice and letting the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources, educating patients and the public about myositis diseases, sharing strategies for advocacy, and building a stronger and more connected myositis community. Join us!
