Donna DeFant loves motorcycles. For decades, she hung out with Harley owners and spent her free time riding. In 2003, she started noticing weird bumps on her hands and a…
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The burden and blessing of being both patient and provider
By Jen Swisher Even though she is a medical professional and diagnoses others every day, Jen Swisher still suffered dismissals and misdiagnoses in her two-year journey to a dermatomyositis diagnosis….
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Cutaneous
By Kambiz Roghanchi Livingston, New Jersey, February: A frosty gust nipped at my skin, but the real chill crept from within. Crimson tendrils snaked up my arms, an alien map…
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TMA was like a life saving ring
Alicia Lowther’s husband Dan found out after years of misdiagnoses that he had inclusion body myositis (IBM). It was a shock to both of them. “Dan decided he was going…
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Maximizing bathroom independence
Thanks to our partners at LiftSeat for sharing this informative article. For most people, using a toilet isn’t something you think twice about. However, when living with a progressive neuromuscular…
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