By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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Living in the present
By Kristin Hicks Kristin Hicks’s husband, Troy, lives with inclusion body myositis. Thank you to Kristin for sharing this snippet of life with myositis. What is a fun fact about…
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Partners in the fight
By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
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Help for coping with IBM
Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized…
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Discovering priorities
An IBM patient-led research project Editor’s note: This is part one of a three-part series of articles from Dr. Kevin Austin, an Adjunct Professor in the Health Futures Institute’s Personalised…
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