By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
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Help for coping with IBM
Results of a patient-led research project Editor’s note: This is part three of a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized…
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Discovering priorities
An IBM patient-led research project Editor’s note: This is part one of a three-part series of articles from Dr. Kevin Austin, an Adjunct Professor in the Health Futures Institute’s Personalised…
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Remembering Nori
By Julia Nickerson Noriel Cunanan lit up every room he entered. With his radiant smile and a generous, inspiring spirit, he brought energy and optimism wherever he went. A devoted…
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Celebrating our Myositis Connection: Reflections on TMA’s 2024 International Annual Patient Conference
By Stanford Erickson Two women were, for me, like celebratory bookends to The Myositis Association’s International Annual Patient Conference in Baltimore September 6-8, 2024. One was the opening Friday night…
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