Myositis Awareness Month Events

Registration is open for all programs via TMA’s online calendar. You may also register for an event by clicking its link below.

2026 Diagnosis Days Schedule

Do you remember the day you received the diagnosis for your sub-type of myositis? Join us for Diagnosis Days this May to learn from and connect with other community members who know exactly that that life-altering experience feels like. On each Diagnosis Day, an educational “Ask the Expert” webinar features a TMA Medical Advisor and world-renowned myositis expert. Each webinar is paired with an informal “Café Chat” where your family can gather with others affected by your form of myositis.

• Immune-mediated Necrotizing Myopathy (IMNM): May 6
• Dermatomyositis (DM): May 13
• Polymyositis (PM) & Overlap Myositis (OM): May 20
• Inclusion Body Myositis (IBM): May 27

2026 Detailed Schedule

• Friday, May 1 – Myositis Awareness Month kicks off!
• Friday, May 1 – Myositis Awareness Golf Tournament
  • “Tee Off for TMA” Open
  • Front Royal, VA with virtual golfer option for $100 donation
• Monday, May 4 – Research Briefing from the Global Conference on Myositis (webinar)
  • With the Myositis Clinical Trials Consortium (MCTC)
• Wednesday, May 6 – Diagnosis Day: Immune-mediated Necrotizing Myopathy (IMNM)
  • Special Ask the Expert: IMNM Edition (webinar)
  • IMNM Café Chat (virtual community meetup)
• Friday, May 8 – Ask the Expert (Hybrid) and TMA Open House
  • Facebook live stream and in-person networking event in Columbia, MD
• Saturday, May 9 – JJ’s Myositis Marathon (Disc Golf Fundraiser)
• Wednesday, May 13 – Diagnosis Day: Dermatomyositis (DM)
  • Special Ask the Expert: DM Edition (webinar)
  • DM Café Chat (virtual community meetup)
• Friday, May 15 – Scholarship Application Deadline for MyoCon: TMA’s Global Myositis Patient Conference
• Tuesday, May 19 – Speech & Swallowing in IBM (webinar)
  • Two-Part Symposium Hosted by TMA WomenWithIBM Affinity Group
• Wednesday, May 20 – Diagnosis Day: Polymyositis & Overlap Myositis
  • Special Ask the Expert: PM & OM Edition (webinar)
  • PM & OM Café Chat (virtual community meetup)
• Wednesday, May 27 – Diagnosis Day: Inclusion Body Myositis (IBM)
  • Special Ask the Expert: IBM Edition (webinar)
  • IBM Café Chat (virtual community meetup)
• Thursday, May 28 – Enriching Your Life with Assistive Technology (webinar)
• Friday, May 29 – MiLB First Pitch for Myositis Awareness (in-person community meetup)
  • Columbia, SC at Fireflies vs. Charleston Riverdogs
• Saturday, May 31 – Myositis Awareness Month ends
  • Final day to donate for myositis awareness
  • Plan now for World Myositis Day, September 21, 2026
  • Join us in St. Louis, MO, USA for MyoCon: TMA’s Global Myositis Patient Conference!

Thank you to the TMA speakers, volunteers, and groups who have contributed to Myositis Awareness Month! Your dedication, insight, and passion have enriched TMA’s programming, and raised awareness, built community, and empowered voices that too often go unheard.