MyoCon 2026: TMA’s Global Myositis Patient Conference

Learn. Connect. Thrive!
September 24–27, 2026
Hyatt Regency St. Louis at the Arch
315 Chestnut Street
St. Louis, Missouri 63102, USA

Heroes in the Fight is a celebration of leadership, resilience, science, and care in myositis. 2026 marks the fifth annual event hosted by TMA to celebrate the leadership and strength within our patient community. We also pay tribute to the dedicated researchers making progress in myositis. Finally, we recognize the myositis experienced clinicians providing extraordinary care to families affected by this rare collection of diseases.

This special gala takes place during TMA’s 31st MyoCon. Join us to celebrate the outstanding individuals and institutions who will be applauded for their efforts to achieve a world without myositis. 

Not sure what to wear? Embrace the celebration! Whether you prefer stylish cocktail attire or elegant formal wear, choose what makes you feel confident and comfortable.

conference timeSaturday, September 26, 2026
Reception and Dinner beginning at 6:00pm CT


Patient Ambassador Award

Father Stuart Long

 

Father Stuart Long

Priest and inspiration for the film “Father Stu”
1963 – 2014
Helena, Montana

TMA is deeply honored to posthumously honor Father Stu with our highest award. Father Stuart Long was an American boxer, college football player, and agnostic who converted to Catholicism and became a priest for the Diocese of Helena, Montana, before passing away due to complications from inclusion body myositis (IBM). Father Stu was the focus of a 2022 Sony Pictures biopic, Father Stu, with Mark Wahlberg playing the lead character in an inspirational story about resilience and redemption.

Father Stu movie poster
That Was Father Stu

 

The Patient Ambassador Award will be accepted by Father Bart Tolleson, author of That Was Father Stu: A Memoir of My Priestly Brother and Friend. Father Tolleson is the Director, Deacons & Deacon Formation; Director, Continuing Formation for the Clergy; and Pastor, St. John Vianney (Belgrade) & Holy Family (Three Forks) in the Diocese of Helena. In addition, he serves as the chaplain advisor to Beyond 227, which is the charitable organization Father Stu’s friends and family founded to keep Stu’s mission and work ongoing.

Father Stu’s sister, brother-in-law, and Montana parishioners will join Father Bart to remember Father Stu and celebrate his legacy at MyoCon 2026.

TMA’s Myositis Heroes in the Fight Patient Ambassador Award is annually presented to an individual that has demonstrated sustained effort and extraordinary success raising awareness of myositis diseases among the public.

Father Bart Tolleson

 


Heroes in Research Award

Conrad "Chris" Weihl

 

Conrad “Chris” Weihl, MD, PhD

Professor of Neurology
Head of the Neuromuscular Section
Director of the Muscular Dystrophy Association Clinic

Washington University School of Medicine
St. Louis, Missouri

The Heroes in Research Award is presented to an investigator who has demonstrated significant commitment to and progress toward improving our understanding of myositis diseases through innovative research.


Heroes in Healthcare Award

 

Hospital for Special Surgery

Scleroderma, Vasculitis, and Myositis Center
Myositis Support Group
New York, New York

The Heroes in Healthcare Award is presented to a healthcare institution with teams of healthcare providers that excel in caring for those who live with myositis.

The award will be accepted by David R. Fernandez, MD, PhD, Rheumatologist and Suzan Fischbein, LCSW, Support Group Coordinator.


Marianne Moyer Myositis Leader Award

Kitty Trejo

 

Kitty Trejo

TMA Northern California Support Group & TMA Rainbow Affinity Group
Rancho Mirage, California

The Marianne Moyer Myositis Leader Award recognizes TMA volunteers who lead the way in our myositis community by helping others. Marianne helped TMA create the Keep In Touch (KIT) groups, mentored many emerging Support and Affinity Groups, and served in leadership roles including TMA Board of Directors Chair.


TMA’s Global Myositis Patient Conference

Donate in Honor of Our Awardees


We are grateful to Abcuro; argenx; AstraZeneca; Bristol Myers Squibb; Cantey, Tiller, Pierce & Green, LLP; Johnson & Johnson; Octapharma; and Priovant for their support of myositis heroes.

Abcuro Logoargenx LogoAstraZeneca LogoBristol-Myers Squibb Company LogoCantey, Tiller, Pierce & Green, LLP LogoJohnson & Johnson LogoOctapharma AG LogoPriovant Therapeutics, Inc. Logo

Thank you to sponsored table hosts: Pfizer, Boehringer Ingelheim, and Keenova.

Pharmaceutical companies, manufacturers of assistive devices and medical equipment, nonprofits, and other partners are invited to sponsor our signature gala!

With Heroes in the Fight Sponsorship at $5,000, you will support the best of our community while increasing visibility of your organization. Sponsors receive a hosted table for 8 and recognition in press release, gala program, signage, and other channels.