In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on Inclusion Body Myositis (IBM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...
As we close out Myositis Awareness Month, join us for a special webinar focused on empowering individuals living with myositis to explore the world of assistive technology — and how it can help you live more independently, comfortably, and fully. We are thrilled to welcome Monique Chabot, PhD, OTD, OTR/L, FAOTA, SCEM, CLIPP, CAPS, Associate...
What if a powerful part of your immune system could hold new clues to understanding — and potentially treating — myositis? Natural Killer (NK) cells are a specialized type of immune cell designed to recognize and eliminate harmful or abnormal cells in the body. Researchers are now studying how NK cells behave in myositis...
Get ready for something special! Join us for an exciting edition of The Myositis Association's Meet & Greet Leadership Series — this time, we're turning the spotlight on MyoCon 2026! Hosted by TMA Executive Director Paula Eichenbrenner, this can't-miss event goes beyond your typical Q&A. We're bringing in special guests who will share their unique...
Join Dr. Prateek Gandiga, a leading expert in dermatomyositis (DM), for a discussion on patient experiences in the VALOR trial, the largest study ever conducted for adults with DM. Explore what patients reported with an investigational once-daily oral medication about their symptoms, daily activities, quality of life, and overall well-being. Understand what these findings may...
For those with DM, PM, NM and with or without ILD. Join us for an informative and supportive Ask the Expert webinar featuring Dr. Robert Hallowell, Director, Interstitial Lung Disease Program Director, Pulmonary Ambulatory Clinic at Massachusetts General Hospital. This session will explore key aspects of diagnosis, treatment options, and symptom management for individuals affected...
Have myositis questions for a neurologist? Now's your chance to ask one of the field's leading specialists. Join us for a special Ask the Expert session featuring Conrad C. Weihl, MD, PhD, Professor of Neurology at Washington University School of Medicine in St. Louis and a neurologist at Barnes-Jewish Hospital. Dr. Weihl focuses his practice...
For many veterans living with myositis, staying independent at home while managing a complex health condition can be a challenge — especially when daily tasks like bathing, dressing, meal preparation, or mobility become harder to manage alone. Veteran Directed Care (VDC) is a VA program designed to help eligible veterans remain safely in their own...
Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis, polymyositis, inclusion body myositis, immmune-mediated necrotizing myopathy, and antisynthetase syndrome — drawing on...
This webinar is sponsored by Priovant Therapeutics. Register Here
Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis, featuring Dr. Georgia Malandraki, a member of The Myositis Association's Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis, affecting communication, nutrition, and quality of...
Registration details coming soon! In partnership with the Thomas family, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and...