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Celebrate Rare Disease Day all month with rare disease events from TMA, FDA, and NIH! Rare Disease Day is a global initiative to raise awareness and generate support for everyone who is on a rare medical journey. To see the list of events, visit our Rare Disease Awareness page: Rare Disease Awareness - The Myositis...
Help Us Raise $5,000 for TMA’s Patient Conference Scholarship Fund Attending MyoCon: TMA's Global Myositis Patient Conference is a life-changing experience for those living with myositis and their families, providing education, support, and a sense of community. This year, for Rare Disease Week, February 23-27, 2026, our goal is to bring together 50 donors and...
Join us for a Myositis Research Insights webinar featuring Dr. Christina Charles-Schoeman, a leading rheumatologist and researcher whose work is advancing our understanding of inflammatory muscle disease. Dr. Charles-Schoeman will highlight current research in myositis, including immune mechanisms that drive disease activity and how these insights are shaping more targeted, effective approaches to treatment. This...
TMA has a wonderful opportunity to be part of the Giving Challenge, a special day of giving hosted by the Community Foundation of Sarasota County. This one-day event starting April 15 will double your generosity to TMA! Donations made online during a 24-hour period will be matched by The Patterson Foundation (up to $100 per...
Register Here Join us for an empowering Zoom workshop where you'll learn practical self-hypnosis techniques specifically designed to support symptom relief and improve quality of life while living with myositis. You'll discover how your thoughts influence your physical body, how your subconscious mind is programmed, and how hypnosis can create new positive patterns that support...
Join us for a special edition of The Myositis Association’s (TMA) Meet & Greet Leadership Series. Hosted by TMA Executive Director Paula Eichenbrenner and featuring TMA Board Chair Rich DeAugustinis, this engaging event is designed to bring our community together in a spirit of connection. Don’t miss this opportunity to connect with TMA leadership and...
What’s next in myositis treatment—and what are the latest clinical trials revealing? To kick off Myositis Awareness Month, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM). This leading scientific conference, held every two years,...
In recognition of Myositis Awareness Month and IMNM Diagnosis Day, The Myositis Association (TMA) invites you to a special Ask the Expert webinar focused on Immune-Mediated Necrotizing Myopathy (IMNM). This program will feature Dr. Andy Mammen, Chief of the Muscle Disease Unit at the National Institutes of Health (NIH), who will share expert insights on...
In honor of Diagnosis Days during Myositis Awareness Month this May, join us for a special Café Chat focused on immune-mediated necrotizing myopathy (IMNM). This relaxed, informal gathering is a space to connect with others who truly understand the IMNM journey. We’ll be sharing stories of the day we were diagnosed—the moments, emotions, and experiences...