We are deeply saddened by the loss of Jenneh Rishe—a powerful advocate, a fierce source of hope, and a beloved member of our chronic disease and myositis communities. Jenneh dedicated her life to raising awareness about chronic illness, endometriosis, and dermatomyositis, using her voice to uplift others even while navigating her own complex medical challenges. Her sudden passing from a pulmonary embolism has left many grieving across the communities she touched.
Read the notice from Jenneh’s husband, Joe.
Read more about Jenneh’s life and advocacy.
Lindsay Guentzel, TMA support group leader and one of Jenneh’s close friends, shared this reflection:
“A couple of weeks ago, I was thinking about my journey with myositis and all of the people I have in my life that I’ve met because of my illness, people I love that I can’t imagine my life without. Jenneh is at the top of that list. Getting to know her, to call her my friend, to be on the receiving end of her love, kindness, and generosity will forever be one of the greatest gifts I’ve received in life.
Jenneh was the epitome of strength and perseverance. Her body challenged her in ways that should have destroyed her and yet, even on her hardest days, she radiated hope and optimism. When she wasn’t lifting up those around her, she was making them laugh. She was undeniably charming and quick-witted with just the right amount of sass and snark. And that smile…my goodness!
Jenneh was the kind of friend we all dream of having. I’m heartbroken over all the years we won’t get together, but I’m beyond grateful to have known her and loved her.”
TMA volunteer Jen Swisher also shared her reflections:
“This is a gentle reminder to cherish this one precious life we have. Jenneh was a fellow DM warrior and RN. Such an inspiration to me as a fellow healthcare provider and light to so many fighting invisible battles.”
Jenneh touched many in the myositis community and beyond, sharing her journey, answering questions, and bringing light into the darkness. Our community will carry her light forward, honoring her by continuing the work she cared about and by supporting one another with the kind of warmth she offered so freely.
