MyoCon! Rate increases on August 28th!
Madge Franklin, 89, died April 23, 2026, in Hunt Valley, Maryland, with Haswell, her husband of 68 years, holding her hand, and her family by her side. The myositis community…
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IBM Does Not Define My Spirit
By Jayne Krusman I’ve always loved volunteering and helping others. That part of me hasn’t changed, even as my life has slowly shifted with the progression of inclusion body myositis…
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Before TMA, I was Wandering Around by Myself
Lance Millington was in the best shape of his life, doing half Ironman and other endurance events. He went out for a 30-mile bike ride and couldn’t get a deep…
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The Peptide Craze: Promise, Peril, and the Need for Caution
In recent years, “peptides” have become a big buzzword in health and wellness circles. Promoted by influencers, biohackers, and even some clinics, these compounds are marketed as solutions for everything…
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One Intentional Step at a Time
When people first meet Ginette Saturne, they often don’t realize that she lives with a rare neuromuscular disease. What they do notice is her calm presence, her attentiveness, and her…
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