By Linda Thomas I just got back from MyoCon25, and honestly? I’m still recovering—in a good way. For those of us living with a rare disease like inclusion body myositis…
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MyoCon 2025: Melissa’s List
We’re excited to be in Dallas this year for the first time ever, hosting MyoCon: TMA’s Global Myositis Patient Conference at the Sheraton Dallas Hotel. We hope you can join…
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Myositis Awareness Month was a huge success!
Thank you to all those who participated, presented, and planned a month’s worth of extraordinary programming, making May’s Myositis Awareness Month such a success! This dedication, insight, and passion have…
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The full-time job of living rare
When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA, in partnership with Nori’s Fight and Myositis International Health and Research Collaborative Alliance…
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We Care for Rare Summit: Celebrating myositis science and patient stories on Rare Disease Day
When the NIH and FDA canceled their Rare Disease Day celebration in Bethesda on February 28, TMA brought the myositis community together virtually for the We Care for Rare Summit….
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