2025 Global Myositis Patient Conference
Virtual Sessions
TMA cordially invites you to attend all MyoCon virtual sessions. To access click on the links below at the date and time provided.
Designed to spark learning and create more connections, virtual sessions are hosted on Zoom. Attendees can interact as a live, digital audience in Meeting format on Zoom (cameras optional).
| Wednesday, August 27 | |
| Conference Orientation and Getting Acquainted
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| 12 noon – 12:30pm ET |
Virtual Conference Orientation Never attended a TMA conference before? Please join this orientation session that will help you get the most out of your MyoCon experience! |
| 12:30 – 1:30pm ET |
Virtual Getting Acquainted Breakout Sessions by Diagnosis Breakout rooms for IBM, DM, IMNM, ASyS, PM, Care Partners |
| Media Pitching 101: The Who/What/Where/When/Why of Landing TV, Radio & Print Interviews
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| 6:00 – 7:00pm ET |
Media Pitching 101: The Who/What/Where/When/Why of Landing TV, Radio & Print Interviews Want to raise awareness for myositis or share your story with a wider audience? This session will walk you through the basics of media pitching—from identifying the right outlets to crafting compelling pitches that get noticed. This session will walk you through the basics of media pitching—from identifying the right outlets and contacts to crafting compelling pitches that grab attention. You’ll learn what journalists look for in a story, how to shape your message for different audiences, and practical tips for following up to maximize your chances of getting covered. Presented by: Lindsay Guentzel, award-winning journalist and producer, storyteller, advocate; Leader, TMA Minnesota Support Group |
| Friday, September 5 | |
| Stronger with Support: The Role of Protein in Muscle Disease
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| 11:00am – 12:00pm ET |
Stronger with Support: The Role of Protein in Muscle Disease Getting the right amount and type of protein can help preserve muscle, improve energy, and support overall well-being for those with myositis. In this session, you’ll learn:
Presented by: Julie Sanfilippo, RDN, Diabetes Prevention Program Health Coach, Elmhurst Memorial Healthcare |
| Cook Along with White House Chef Tom
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| 1:00 – 2:00pm ET |
Cook Along with White House Chef Tom Come together with your myositis family for a fun culinary experience! You can join in from any home kitchen as we make two delicious, anti-inflammatory, and dysphagia-friendly recipes: Golden Turmeric Carrot & Coconut Velouté and Chai-Spiced Almond Milk Panna Cotta. You can cook along or just watch! Special guest TMA Board Treasurer Chip Galloway will kick things off with a show-and-tell of adaptive kitchen gadgets that make cooking easier. And who knows—we might even convince Chef Tom to share a few behind-the-scenes stories from his time in The White House! |
| Sunday, September 21 | |
| World Myositis Day Closing Keynote Speaker
Join Closing Keynote on Sept. 21 at 10:15 AM ET (9:15 AM CT) |
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| 10:15 – 11:30am ET (9:15am CT in Dallas) |
World Myositis Day Closing Keynote Speaker “Living Well With Autoimmune Diseases: A Rheumatologist’s Guide for Taking Charge of your Health” Live from MyoCon in Dallas! Anyone across the globe can connect at no cost, thanks to our sponsors AstraZeneca and Cabaletta Bio. Presented by: Julius Birnbaum, MD, MHS, Associate Professor, Division of Rheumatology, University of Pittsburgh Medical Center; Division Chief of Rheumatology, UPMC Mercy Hospital |
| Friday, October 3 | |
| Virtual Conference Reunion & Staying Acquainted
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| 12 noon – 1:30pm ET |
Virtual Conference Reunion & Staying Acquainted Want to keep the MyoCon momentum going or just want to connect with TMA staff, special guests and fellow attendees after our time together in Dallas? Please join this conference reunion that will help you stay connected with your new friends! This 30 minute session will be followed by an opportunity to get to know fellow conference attendees in breakout rooms by diagnosis. Breakout rooms will last for an hour and are available for IBM, DM, IMNM, ASyS, PM, and Care Partners. |
Session Recordings
Travel is difficult for many, and we want to share the MyoCon learnings as widely and inclusively as possible. That’s why we offer a package of recordings from most sessions on the conference agenda.
These valuable, digital resources will be delivered to you in an email with a unique link where you can view the recordings at your leisure. Recordings are expected to be available in late October.
This package includes:
- Video recordings of pre-conference virtual sessions
- Video recordings of the opening and closing keynote addresses
- Video recording of the Heroes in the Fight Awards Ceremony featuring our myositis heroes
- Thirty audio-recorded breakout sessions synced with slides from the presentation.
Recordings are only sold as a package. Individual sessions are not available for purchase.
2025 MyoCon Recordings Pricing:
| Virtual-Only Purchaser | $149.00 |
| 2025 MyoCon Registered Attendees* | Included in Registration |
*Attending MyoCon, but want to revisit some of the sessions after your Dallas trip? Registered attendees automatically receive the recordings as an extra benefit of their conference registration! No need to order separately.