Events this May!
May is Myositis Awareness Month! It’s a time for the myositis community to raise our collective voices and let the world know what this rare disease is all about. It’s TMA’s mission to support those who live with myositis and their care partners by bringing awareness, sharing resources and education, sharing strategies for advocacy, and building a stronger and more connected myositis community.
TMA’s special programming is centered on Diagnosis Days for learning and connecting by sub-type of myositis, plus incredible community-wide events. Plus! Powerful resources to help you tell your story, support each other, and expand the public’s understanding of myositis. In doing so, you can shorten the wait between symptoms and diagnosis. Ultimately, your efforts will speed up the search for better treatments and a cure.
With your help, we can educate your community…and the world!
Accelerate TMA’s impact in the month of May. 💙
Visit our giving page!
Learn about more ways to support our mission.
Support Awareness Year-Round with TMA Merch
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends! Eight designs are available with multiple styles, colors, and sizes. Don’t miss our limited-edition 10th anniversary items celebrating VRob’s First Pitch for Myositis Awareness Campaign!
Your order will ship directly to you at the end of May from Custom Ink. Order deadline is Friday, May 8, 2026.
National Recognition of Myositis Awareness Month
A resolution was introduced in the US House of Representatives by Rep. Rich McCormick (Georgia) officially designating May as National Myositis Awareness Month! You can help your Member of Congress get involved.
Through Proclamation 50, TMA continues to advance myositis awareness across the entire U.S. You can reaching out to your state legislature, city mayor, or county board.
Helpful Myositis Resources
TMA can help you explain myositis to your family, friends, neighbors, and health care providers. Take a look at the following resources before getting started with your awareness campaign.
- About Myositis and Diagnosis
- TMA’s Myositis Library
- TMA’s YouTube Channel and Myositis Awareness Playlist
- Myositis 101: Your Guide to Understanding Myositis
- Physician’s Guide to Myositis
- TMA Infographics
Increase Myositis Awareness with TMA
- Register for Diagnosis Days, webinars, or special events
- Use the myositis awareness tools to share your experience within your community
- Tell TMA about your myositis journey. You could be the next patient story on our blog!
- Share your advice for the newly diagnosed. Your tip could be published in TMA’s next e-book!
- Pitch in with VRob’s First Pitch campaign
- Network with elected officials through Proclamation 50
Get Even More Involved with TMA
- Fundraise. Combine awareness and fundraising with a fun community event, like this disc golf tournament!
- Join TMA’s Legacy Society
- Volunteer
Thank You, Sponsors
TMA is grateful to argenx, Priovant, Abcuro, and Pharma Fusion for sponsoring Myositis Awareness Month.
Thank you for your support in raising awareness for myositis. If you have questions or would like to suggest additional resources, please do not hesitate to contact our team.