US House Resolution

Exciting News!

House Resolution (H.Res.) 1195 was formally introduced in the U.S. House of Representatives by Rep. Rich McCormick (Georgia). This ceremonial, nonpartisan resolution officially designates May as Myositis Awareness Month, significantly increasing the visibility of myositis diseases within the highest levels of American government.

View H.Res. 1195

Ask Your Representative to Support Myositis Awareness

TMA’s continued efforts to educate the public about myositis will be heightened by this legislation. And you can help! Please contact your Representative to request co-sponsorship of H.Res. 1195. Asking your Congressperson to get involved is simple!

Email and Call Your Representative

TMA is hosting an action alert in partnership with the EveryLife Foundation’s Rare Disease Legislative Advocates (RDLA). At the RDLA Action Alert Center, you can easily email and call your Representative with just a few clicks.

Email and Call Your Rep. to Co-Sponsor H.Res. 1195

• Visit “The Myositis Association and EveryLife Foundation Urge Co-Sponsorship to Increase Myositis Awareness.”
• Enter your name, address, email, and phone number. You can also complete the action alert using Facebook.
• Personalize the prefilled subject line and email body to explain to your Representative how important H.Res. 1195 is to you and your family. Click submit.
• A phone script will display next. The action alert will call the phone number you provided and connect you to the Congressional office.
• Calling and speaking with a staff member can be much more effective than emailing! Explain to the staffer who answers the phone your request for co-sponsorship.
• Then, ask for the contact information of their staffer covering healthcare policy. Follow up with the healthcare staffer over email with information about the resolution.
• You can let us know how the call went in the text box. Click “Submit” a second time, and you’re finished!

Reminder! Tell Your Story

Succinctly and authentically share your myositis journey when you contact your Representative. Customizing the pre-filled template and telling your own story helps in advocacy. When you share about your myositis experience, and why this resolution matters, you make our cause more personal.

Thank You

TMA is honored to collaborate with the U.S. House of Representatives to achieve our goals, as described within H.Res. 1195.

(1) Support the designation of “National Myositis Awareness Month.”

(2) Recognize the importance of raising awareness about myositis and its impact on United States veterans and citizens.

(3) Encourage all people in the United States to become more informed about myositis and to support the individuals and families who are affected by these conditions.

TMA is grateful to Rep. Rich McCormick (right) for his leadership and sponsorship of H.Res. 1195. Dr. McCormick is a decorated veteran who proudly serves Georgia’s 7th Congressional District.

We are also grateful to Rep. Paul Tonko (NY-20) and Rep. Sarah Elfreth (MD-3) for co-sponsoring H.Res. 1195.

Learn More

• Learn more about resolutions in the U.S. House of Representatives.
• In 2025, in the first session of the 119th Congress, TMA partnered with Rep. McCormick to introduce the first national resolution about Myositis Awareness Month: H.Res. 277. Thank you to H.Res. 277 co-sponsors Rep. Jake Ellzey (TX-6) and Rep. Paul Tonko (NY-20).
• In 2006, TMA led the adoption of a similar ceremonial resolution designating September 21, which is now observed as World Myositis Day.

“As an emergency room physician, I have seen firsthand the impact a rare disease can have on a patient and their family. From the difficulty of diagnosis to little-known treatments, individuals may spend many years learning how to live with diseases like myositis. Increasing awareness of myositis, within the public as well as within the medical and research community, is crucial to speeding the time to diagnosis and to improving health outcomes.”

– Congressman McCormick