Rare Disease Day 2026: What’s Happening Now and How to Help Organized by TMA WomenWithIBM Affinity Group

Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT.

February’s meeting will include conversation with Carolyn Sheridan, MPH, and Jake Saltonstall, MPA, from the National Organization of Rare Diseases (NORD) on state policy and the role of state governments in policy making, as well as advocacy and community engagement opportunities and Rare Disease Day.