Myositis Awareness Month is almost here—and TMA is ready to make it meaningful, informative, and inspiring! This month is about being seen and heard. It’s about lifting up the lived experiences of people affected by myositis and ensuring no one feels alone on their journey. It’s about sharing trusted information, celebrating community strength, and amplifying awareness so diagnosis happens sooner, care becomes more accessible, and research continues to move forward.
Throughout May, TMA offers opportunities to learn, advocate, connect, and take action—each designed to meet people where they are and remind them they are part of something bigger.
Learn
Do you remember the day you received the diagnosis for your subtype of myositis? Join us for Diagnosis Days this May to learn from and connect with other community members who know exactly what that life-altering experience feels like.
On each Diagnosis Day, an educational “Ask the Expert” webinar features a TMA Medical Advisor and world-renowned myositis expert. Each webinar is paired with an informal “Café Chat” where your family can gather with others affected by your form of myositis.
- Immune-mediated Necrotizing Myopathy (IMNM): May 6
- Dermatomyositis (DM): May 13
- Polymyositis (PM) & Overlap Myositis (OM): May 20
- Inclusion Body Myositis (IBM): May 27
Research Briefing from the Global Conference on Myositis (GCOM)
May 4 @ 12:00 pm – 1:00 pm EDT
To kick off Myositis Awareness Month, The Myositis Association (TMA) and the Myositis Clinical Trials Consortium (MCTC) are partnering together to present this special webinar called Research Briefing from the Global Conference on Myositis (GCOM).
Advocate
Ask Your Representative to Support Myositis Awareness
House Resolution (H.Res.) 1195 was formally introduced in the U.S. House of Representatives by Rep. Rich McCormick (Georgia). This ceremonial, nonpartisan resolution officially designates May as Myositis Awareness Month, significantly increasing the visibility of myositis diseases within the highest levels of American government.
TMA’s continued efforts to educate the public about myositis will be heightened by this legislation. And you can help! Please email and call your Representative to request co-sponsorship of H.Res. 1195.
Media Coverage About Myositis
TMA authors, advocates, care partners, clinicians, and community voices are helping bring myositis awareness to a wider audience. Visit our media coverage page to explore recent news features, interviews, books, influencers, and stories highlighting the real impact of myositis, including national coverage on veterans living with IBM.
Connect
TMA Open House & Livestream May 8
Join TMA on May 8 for a special Myositis Awareness Month Open House at the TMA offices in Columbia, Maryland from 11am-1pm! This in-person event will include lunch, networking, TMA history, special awareness swag, adaptive tech demos with Swype, and an Ask the Expert session with Dr. Iago Pinal-Fernandez.
Please RSVP by Wednesday, May 6. The educational portion will also stream live on TMA’s Facebook page. No advance registration is needed for the livestream.
Thank you to Abcuro and Pharma Fusion for sponsoring this event.
Support Awareness Year-Round With TMA Merchandise
Take the myositis awareness message year-round with new TMA merchandise for you and your furry friends, featuring VRob’s 10th Anniversary First Pitch campaign!
Order deadline is May 8, 2026. Eight designs are available with multiple styles, colors, and sizes. Your order will ship directly to you at the end of May from Custom Ink.
We’d love to be tagged on social media in photos of you, your friends, your family, and your pets rocking TMA apparel.
Take Action
Share Your Tips for Navigating a New Myositis Diagnosis
TMA recognizes the impact that a myositis diagnosis has on the emotional well-being of patients, families, and care partners. Help those newly diagnosed with myositis navigate these challenges by completing this form and submitting your insights from navigating your own myositis journey.
Share what you and your family do to overcome isolation, connect with others, seek support, and manage stress.
TMA’s 2026 Community Engagement Guide
In May, join TMA in going the extra mile to educate our communities to let people know what myositis is, how it affects us, and what we all can do about it.
Use TMA’s Community Engagement Guide to get started. It includes simple ideas, ready-to-use materials, and practical ways to help you share myositis awareness with your local community, workplace, and network. Download your copy today!
The Myositis Association depends on the support of people like you to fulfill our mission of improving the lives of those who live with myositis. Please support us during Myositis Awareness Month! We are incredibly grateful for your generosity.
