Below are answers to frequently asked questions about TMA and myositis resources. If your question is not answered below, you can contact us through the Connect with Us page or send an email to tma@myositis.org.

How can I receive updates about TMA?

You can join TMA for at no cost! Visit https://www.myositis.org/join-tma/.

By joining us as a member, you’ll have access to a variety of resources to help you learn about these rare diseases and feel connected to the myositis community. These include:

  • Our quarterly Outlook magazine, monthly e-newsletter, and breaking news alerts
  • The opportunity to participate in our support and affinity group network
  • Announcements of clinical trials recruiting myositis patients
  • Opportunities to participate in our free monthly webinars and live online chats with myositis medical experts
  • Invitations to and exciting updates for MyoCon, TMA’s Global Myositis Patient Conference
  • And so much more!

How can I get connected to patient support groups?

TMA has many Affinity Groups and regional Support Groups that meet regularly. To find and register for these groups, visit our Find a Group  page.

Does TMA provide financial assistance?

Other than scholarships to MyoCon, TMA does not provide individual financial assistance. For a list of Patient Assistance programs, visit NORD’s RareCare website.

How can I find a doctor familiar with myositis?

Doctors with experience treating different types of myositis can be found on our Find a Doctor page.

Where can I find information about clinical trials?

Current myositis trials can be found on our Clinical Trials page or at https://clinicaltrials.gov/. You can also review natural history studies and registries.

Where can I find information about myositis/a specific treatment?

TMA does not provide medical advice. General information about the different forms of myositis can be found on our About Myositis page.

Questions about specific symptoms/ treatments should be directed to your medical team.

How can I make a donation?

You can make a donation on our Make a Gift page.

How can I find upcoming education programs and other TMA events?

All TMA events are listed on our TMA Events Calendar with registration links.

What is MyoCon and how can I attend?

MyoCon is TMA’s Annual Patient Conference which features myositis specialists and expert presenters on everything related to myositis, its treatment, and how you can live your best life with these debilitating diseases. To learn more about this year’s event taking place on September 24-27 in St. Louis, MO and register for the conference, please visit: https://www.myositis.org/myositis-conference/registration/