Events this May!By Paula Eichenbrenner, TMA Executive Director Myositis advocates are gathered on Capitol Hill in Washington, DC to meet with Members of Congress about issues that are incredibly important to our…
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Celebrating Successes at Rare Disease Week 2026
TMA Board of Directors Chair Rich DeAugustinis is leading our delegation of myositis advocates at EveryLife Foundation’s Rare Disease Week, February 24-26, 2026 in Washington, DC. Rare Disease Week brings…
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Update on Abcuro’s MUSCLE Study
Tuesday, February 24, 2026 Today, Abcuro released topline results from their Phase 2/3 MUSCLE study evaluating ulviprubart in patients with inclusion body myositis (IBM). Briefly, the study did not demonstrate…
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In Memory of Jim Mathews
The myositis community mourns the loss of James “Jim” Mathews of Grand Haven, Michigan, who passed away on February 5, 2026, surrounded by his loving wife, Cathy, and six children….
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The New Dietary Guidelines: What are they really saying?
By Kim Murray, RDN The US Department of Health and Human Services recently released new Dietary Guidelines that upend previous recommendations. These new guidelines send a clear message: eat more…
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