By Lachlan “Lachy” Beckett I live a couple hours outside Sydney, Australia, and in my spare time I play guitar, compose music, and sing. These days, I spend a lot…
Continue Reading
Gratitude and Giving Back
Mike Foley knows what it means to live with uncertainty. Diagnosed with inclusion body myositis (IBM) in 2013 after years of unexplained symptoms and an initial misdiagnosis of ALS, Mike…
Continue Reading
Going the Distance for Dermatomyositis: Trail Update from the PCT
By Kaila Balch When I launched this journey in May, my goal was simple: hike the Pacific Crest Trail in honor of my cousin Brandon, who lives with dermatomyositis, while…
Continue Reading
Tools for Coping with Myositis
By Theresa Curry As she approached midlife, Jenni-Leigh Girard was still growing and learning, but she had already done more than most of us do in a lifetime. She was…
Continue Reading
Finding Strength Through Advocacy
By Deidre M. Champion Before myositis became part of my life, I was always active. I used to run track and compete in hurdles, and I spent a lot of…
Continue Reading