MyoCon! Early Bird Pricing Ends July 1st.When people first meet Ginette Saturne, they often don’t realize that she lives with a rare neuromuscular disease. What they do notice is her calm presence, her attentiveness, and her…
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My Nickname was “Just Tired”
Theresa Gregorcy felt like she was itching from the inside out. A rash had moved from her scalp to her face and hands, but the itching wasn’t the only problem….
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Going the Distance for Dermatomyositis
By Kaila Balch I never thought I would have to watch my cousin relearn to walk. He shuffled down the hospital corridor and back, the farthest distance he had walked…
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Every Step Forward Makes a Difference
Krystal Harris has lived with myositis for most of her life, carrying both a dermatomyositis and a juvenile myositis diagnosis. Long before she understood the name of her condition, she…
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TMA Makes Me Feel Like I Have a Voice
Monika Davis used to run half-marathons, but when she was 46 she began losing strength. Walking half a block was difficult, and carrying a bag became too much. Within a…
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