Patient Stories Archives - Page 2 of 15 - The Myositis Association

TMA allows me to vent with people who really understand

May 28, 2026May 6, 2026

Terry Anderson is from South Dakota and loves travel. When he retired, his dream was to tour the world with his wife, Bitsy, and they did. They loved seeing Russia,…

IBM Does Not Define My Spirit

May 25, 2026May 6, 2026

By Jayne Krusman I’ve always loved volunteering and helping others. That part of me hasn’t changed, even as my life has slowly shifted with the progression of inclusion body myositis…

Before TMA, I was Wandering Around by Myself

May 21, 2026May 13, 2026

Lance Millington was in the best shape of his life, doing half Ironman and other endurance events. He went out for a 30-mile bike ride and couldn’t get a deep…

One Intentional Step at a Time

May 18, 2026May 6, 2026

When people first meet Ginette Saturne, they often don’t realize that she lives with a rare neuromuscular disease. What they do notice is her calm presence, her attentiveness, and her…

My Nickname was “Just Tired”

May 14, 2026May 6, 2026

Theresa Gregorcy felt like she was itching from the inside out. A rash had moved from her scalp to her face and hands, but the itching wasn’t the only problem….