The US Food and Drug Administration (FDA) has approved Lisraya™ (brepocitinib) for the treatment of adults with dermatomyositis (DM). This approval marks the the first oral therapy specifically indicated for dermatomyositis and the first targeted therapy approved for this rare autoimmune disease. Learn more on TMA blog and join our upcoming webinar, where you will hear...
This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being...
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating...
The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,...
Living with myositis affects more than your muscles. The uncertainty of a rare disease, changes in physical ability, chronic fatigue, pain, and the strain on relationships and daily life can all take a toll on emotional wellbeing. These challenges are real, common, and worth talking about. Join us for a special Mental Health Edition of...
The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing...
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort...
The TMA Kansas & Western Missouri Myositis Support Group is a welcoming space for individuals living with myositis. Meeting 3 times per year, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. TMA expresses its appreciation of the strong support given this group by KUMC (University of...
Register here! Join the TMA Hawai'i, Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai'i, Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT,...
The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn...
The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,...