By Darlene Butler Throughout my nursing career, I worked with many physicians and providers. Most were kind, helpful, and patient centered. Occasionally, I would encounter a provider that didn’t give…
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Turning Grief into Purpose
By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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UV Danger for Dermatomyositis
Dermatomyositis (DM) is a rare autoimmune disease that affects the skin and muscles, often causing a distinctive rash and muscle weakness. While managing symptoms and medications is a major part…
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Partners in the fight
By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
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DM is an invisible illness
As a teenager, Mia Formato began having unusual skin symptoms. Her red fingers and swollen hands continued in college and were joined by unexplained bouts of fatigue. Eventually she experienced extreme…
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