Myositis Awareness MonthDermatomyositis (DM) is a rare autoimmune disease that affects the skin and muscles, often causing a distinctive rash and muscle weakness. While managing symptoms and medications is a major part…
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Partners in the fight
By Ed McGrath My wife Marilyn has dermatomyositis, diagnosed in 2008. Her dermatologist initially thought she had lupus, but two years later she finally saw a rheumatologist who knew exactly…
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DM is an invisible illness
As a teenager, Mia Formato began having unusual skin symptoms. Her red fingers and swollen hands continued in college and were joined by unexplained bouts of fatigue. Eventually she experienced extreme…
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This is the greatest community you can imagine
Donna DeFant loves motorcycles. For decades, she hung out with Harley owners and spent her free time riding. In 2003, she started noticing weird bumps on her hands and a…
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The burden and blessing of being both patient and provider
By Jen Swisher Even though she is a medical professional and diagnoses others every day, Jen Swisher still suffered dismissals and misdiagnoses in her two-year journey to a dermatomyositis diagnosis….
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