Myositis Awareness MonthBy Kambiz Roghanchi Livingston, New Jersey, February: A frosty gust nipped at my skin, but the real chill crept from within. Crimson tendrils snaked up my arms, an alien map…
Continue Reading
TMA member and medical advisors pivotal in patient reported outcomes research
TMA is excited to announce that The Journal of Rheumatology recently published a pivotal study titled “The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of…
Continue Reading
Patient reported quality of life study results
No one needs to tell someone with myositis that the disease brings with it a great many physical, mental, and financial challenges. The debilitating symptoms significantly affect one’s quality of…
Continue Reading
Finding strength in the shadows
By Tesse Muldoon Myositis has had a profound impact on my life in many ways. After seven years of odd skin rashes and a number of other autoimmune conditions, I…
Continue Reading
Remembering Nori
By Julia Nickerson Noriel Cunanan lit up every room he entered. With his radiant smile and a generous, inspiring spirit, he brought energy and optimism wherever he went. A devoted…
Continue Reading