Myositis Awareness MonthJamie Batiste never expected that the path to advocacy would begin in a childhood bedroom, where she and her brother Aaron spent hours pretending to host their own radio show….
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Finally, people didn’t think I was crazy
Yashira Tirado had been having trouble breathing on and off for several years, which her doctors thought might be adult-onset asthma. She started feeling muscle pain and fatigue. Yashira thought,…
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A Story of Discovery and Success…So Far
By Bryan Gilbrech I was diagnosed at 28 years old in 1996 while I was in the Army. It started with what I call a benign pain in my right buttock that…
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Pushing for an Answer
By Darlene Butler Throughout my nursing career, I worked with many physicians and providers. Most were kind, helpful, and patient centered. Occasionally, I would encounter a provider that didn’t give…
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Turning Grief into Purpose
By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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