Donna DeFant loves motorcycles. For decades, she hung out with Harley owners and spent her free time riding. In 2003, she started noticing weird bumps on her hands and a…
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The burden and blessing of being both patient and provider
By Jen Swisher Even though she is a medical professional and diagnoses others every day, Jen Swisher still suffered dismissals and misdiagnoses in her two-year journey to a dermatomyositis diagnosis….
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Cutaneous
By Kambiz Roghanchi Livingston, New Jersey, February: A frosty gust nipped at my skin, but the real chill crept from within. Crimson tendrils snaked up my arms, an alien map…
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TMA member and medical advisors pivotal in patient reported outcomes research
TMA is excited to announce that The Journal of Rheumatology recently published a pivotal study titled “The Dermatomyositis Disease Symptom Questionnaire (DM-DSQ): A Measure to Assess the Patient Experience of…
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Patient reported quality of life study results
No one needs to tell someone with myositis that the disease brings with it a great many physical, mental, and financial challenges. The debilitating symptoms significantly affect one’s quality of…
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