Cindy and Bill Ebert waited a while for Bill to get an accurate diagnosis, but that will come as no surprise to others with IBM. Neither will the Jacksonville couple’s…
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Turning Grief into Advocacy
Jamie Batiste never expected that the path to advocacy would begin in a childhood bedroom, where she and her brother Aaron spent hours pretending to host their own radio show….
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Long-time Friends Find Humor and Purpose in Difficult Journey
November is National Family Caregivers Month, a time dedicated to recognizing and honoring the millions of Americans who provide essential care for loved ones. TMA recognizes with gratitude these generous…
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Turning Grief into Purpose
By Ali Gutierrez My name is Ali Gutierrez, and I’m a registered nurse, a PhD student, and the daughter of a woman who died from complications of dermatomyositis (DM) in…
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Living in the present
By Kristin Hicks Kristin Hicks’s husband, Troy, lives with inclusion body myositis. Thank you to Kristin for sharing this snippet of life with myositis. What is a fun fact about…
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