MyoCon! Early Bird Pricing Ends July 1st.These downloadable Myositis Resources provide helpful tools and important evidence-based information for those who live with myositis and their loved ones.
My Myositis Tracker
TMA’s Patient Symptom and Disease Management Tool called- “My Myositis Tracker.” This tool will empower you to track your symptoms and changes in your condition in between appointments in preparation for discussion with your doctor. This tool is meant to help empower patients increase opportunities for thoughtful and meaningful dialogue with their providers about symptoms, changes in condition, or other relevant changes. It is not meant to be used as a diagnostic tool.
Resources for an Emergency
Sooner or later it’s likely you will end up in the emergency room, either for a myositis-related problem or some other medical issue. These fillable, downloadable documents, developed together with two TMA members, are important resources you can keep on hand if you ever need to go to the ER. Download and keep them on hand (ideally in your “Go Bag”) for when you need them most.
Infographics
The Basics of Myositis
Myositis is a term for illnesses that involve chronic muscle inflammation. (“myo” means muscle and “itis” means inflammation)
Cancer Screening Guidelines for Myositis
Most people with myositis will never develop cancer, but for those who do, early detection may make a big difference.
Dermatomyositis Rashes in Patients of Color
Health-care professionals have historically learned about dermatomyositis (DM) rashes from pictures illustrating mainly Caucasian patients. The paucity of dark skin in textbooks and journals has contributed to delayed diagnosis and increased morbidity and mortality in patients of color with dermatomyositis.
Medicare Part D
Two important changes have been made to Medicare Part D in 2025 that may help make the cost of your prescription drugs more affordable and more manageable.
Nutrition and Autoimmune Disease
A healthy diet can go a long way toward improving overall health, especially for those with a chronic inflammatory disease.
Rare Disease Resource Guide
For Rare Disease Day, TMA compiled a list of rare disease databases, helplines, advocacy groups, and other resources to aid the myositis community in finding information for them and other with rare diseases.
Research Grants Program 2002-2025
Every year since 2002, TMA’s research grants have provided financial support to qualified investigators and clinicians for basic, translational, and clinical research. See how successful these projects have been.
Telemedicine Tips and Tricks
As the internet enables patients and care partners to consult with experts around the world, safely from the comfort of home and without the need for expensive or difficult travel, learn how to make the most of these virtual visits by using the followings tips, tricks, and best practices from physicians and myositis experts.
TMA Service Flyer
TMA is the leading international organization committed to the global community of people living with myositis, their care partners, and family members. The nonprofit provides patient education and support, advocacy, physician education, and research funding for myositis diseases.
Women of Color
Myositis is an inflammatory disease of the muscles that can cause severe disability. Symptoms include falling, trouble climbing stairs, difficulty raising arms over the head, and unusual rashes. In adults, certain forms of myositis affect women of color more than Caucasians.