NameEligibilityMore information
Adult and juvenile myositis
Adults and children with DM, PM, IBM, and related conditionsMore details;
NIH – Lisa Rider
301-451-6272
NCT00017914
MYORISK Study – Environmental risk factors for antisynthetase syndromeAdults and children with myositis, with or without ASyS autoantibodiesMore details;
NIH – Adam Schiffenbauer
301-451-6270
NCT00017914
Evaluation of clinical responsiveness of DM using cutaneous DM diseases area and severity index (CDASI)Adults with DM and skin diseaseMore details;
Victoria Werth
215-615-2940
NCT02945345
IBM disease registry at YaleAdults with IBMMore details;
Kurt Petschke
203-785-6453
IBM natural history study (INSPIRE-IBM)Adults > 40 y/o with IBM
[Active, not recruiting]		More details;
NIH – Tahseen Mozaffar
714-456-2525
NCT05046821
Myositis Patient Centered Tele-Research (My-PACER) studyAdults withall forms of inflammatory myopathies
(DM, CADM, PM, IMNM, ASyS, IBM, Overlap myositis, Cancer-associated Myositis, JM over 18, non-specific myositis)		More details;
Contact
mypacer@pitt.edu
Natural history of autoinflammatory diseases and JDMChildren and adults > 2 y/o with autoimmune disease, including JDMMore details;
NIH – Hanna Kim
301-594-6196
NCT00059748
Natural history of inflammatory muscle diseases Children and adults >12 y/o with IIM
Healthy controls > 18 y/o		More details;
NIH – Andy Mammen
301-594-6667
NCT05738824
Rheumatology patient registry and biorepositoryAdults with rheumatic autoimmune diseaseMore details;
Nicolas Page
203-737-5571
NCT04402086