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4 events,
Virtual Event
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Virtual Event
MIHRA Foundation is pleased to host the NIH/NIEHS Environmental Autoimmunity Group who are conducting FAST for DM — the Fatty Acid Supplementation Trial for Dermatomyositis. FAST for DM is an NIH clinical trial studying whether omega-3 fatty acid (fish oil) supplementation, together with a healthy study diet, can reduce dermatomyositis disease activity and improve strength,...
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The emergency department can be overwhelming—especially when you're living with a rare disease like myositis. From missed infusions and infections to disease flares and unrelated emergencies, patients often face unique challenges that aren't always well understood by ER staff. In this session, an Emergency Medicine PA living with dermatomyositis shares both clinical expertise and personal...
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Being a care partner is a journey of love, commitment, and resilience. Join Christina Keys, CEO and Founder of Keys for Caregiving, for this virtual session focused on creating balance, practicing kindness toward ourselves, and building the connections that help us thrive. Christina will offer encouragement and practical insights to support care partners' own well-being... |
1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
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2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
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2 events,This group for all myositis diagnoses meets every other month on the first Monday at 6:30 PM ET | 5:30 PM CT | 4:30 PM MT | 3:30 PM PT. Register here. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere... Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
2 events,The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan... This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members... |
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New to MyoCon or just want a refresher? Join us for this virtual "Know Before You Go" session designed to help you feel confident and connected before you arrive in St. Louis. We'll start with a short presentation covering what you need to know before conference: what to expect onsite, how to navigate the schedule,...
Virtual Event
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Virtual Event
Join us for a live Ask the Expert webinar with Dr. Tahseen Mozaffar, a globally recognized leader in neuromuscular disease and one of the foremost authorities on myositis. Dr. Mozaffar will field your questions on all forms of myositis — including dermatomyositis, polymyositis, inclusion body myositis, immmune-mediated necrotizing myopathy, and antisynthetase syndrome — drawing on... |
1 event,
Virtual Event
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Virtual Event
This webinar is sponsored by Priovant Therapeutics. Register Here |
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3 events,
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating... 
The TMA North & South Carolina Myositis Support Group offers a hybrid meeting format, combining both in-person and virtual options, for individuals living with myositis in the Carolinas. Meeting every three months (March, June, September and December) on the second Saturday at 12:00 PM ET, this group provides a supportive environment to connect with others,... This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being... |
1 event,
Living with myositis in Tennessee? You don't have to navigate it alone. TMA's Tennessee Support Group brings together patients, caregivers, and families who understand exactly what you're going through — because they're going through it too. Come share your story, ask questions, learn from others' experiences, and build real connections with people close to home.... |
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1 event,
Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here. |
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Join us for an intimate and meaningful evening hosted by Nori’s Fight and The Myositis Association. This event will bring together physicians, researchers, patients, and community members for a thoughtful discussion focused on myositis, with an emphasis on Dermatomyositis and associated interstitial lung disease (ILD).Through expert insights and shared experiences, we aim to deepen awareness,... |
2 events,The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing... 
All are welcome. Register today! It’s not unusual to feel isolated and alone with a disease that no one has ever heard of and doesn’t understand. Being part of a myositis support group is an important way to share these feelings with people who know exactly what you’re going through. Research shows that this sort... |
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Register here! Join the TMA Hawai'i, Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai'i, Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT,... |
1 event,The TMA ID, WY & UT Myositis Support Group is a welcoming space for individuals living with myositis in Idaho, Wyoming and Utah. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether... |
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1 event,The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
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2 events,Registration is now open. Secure your spot! MyoCon: TMA's Global Myositis Patient Conference Learn. Connect. Thrive! September 24–27, 2026 Hyatt Regency St. Louis at the Arch | St. Louis, MOTMA's 2026 Global Patient Conference will take place in St. Louis, Missouri on September 24–27. MyoCon is a cornerstone of TMA's patient engagement, connection, and support - a... This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can... |
2 events,
Register Here Attend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners Living with myositis is easier with friends. TMA's support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences, find helpful resources, and gain insights on... |
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2 events,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
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1 event,
Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
0 events,
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2 events,
TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own...
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |