Registration is now open. Secure your spot! MyoCon: TMA's Global Myositis Patient Conference Learn. Connect. Thrive! September 24–27, 2026 Hyatt Regency St. Louis at the Arch | St. Louis, MOTMA's 2026 Global Patient Conference will take place in St. Louis, Missouri on September 24–27. MyoCon is a cornerstone of TMA's patient engagement, connection, and support - a...
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Events
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2 events,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
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Register Here Join TMA’s Women of Color Affinity Group: Empowerment Through Support & Advocacy Founded in 2019 by Holly Jones and Kaniah Gunter, TMA’s Women of Color (WOC) Affinity Group is a vibrant support and advocacy community dedicated to uplifting women of color living with myositis. Through the powerful 3E’s—Encouragement, Education, and Empowerment—our mission is to... |
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TMA’s Worldwide Myositis Support by Diagnosis Group is open to all, especially those without an active support group in their local area. Formally known as Nationwide, this group has hosted international members since its inception in 2022. The meeting divides into breakout rooms by diagnosis, and the TMA Care Partner Affinity Group meets in its own... 
Please note there will be no July meeting to allow our volunteers to celebrate the holiday with their families. Join the TMA Care Partner Affinity Group: A Space Just for You Being a care partner to someone with myositis can be emotionally and physically challenging. Whether it’s dealing with stress, anxiety, or the weight of... |
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1 event,Γνωρίστε άλλους σαν εσάς, μάθετε, μοιραστείτε και συνδεθείτε! Συναντιόμαστε κάθε μήνα την πρώτη Δευτέρα. Εγγραφείτε εδώ |
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Register Here Join the TMA Minnesota Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group provides a valuable opportunity... |
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Register Here Thanks to the initiative of TMA’s Women of Color Affinity Group and group founders Sherrod Bundage and Mustafa Shameem in getting this off the ground, this new group now meets quarterly on the first Wednesday as a way for men of color who are living with myositis to connect, share their stories, and... 
Register Here Join TMA's Flying Solo Affinity Group: Support for Those Living with Myositis Without a Live-In Care Partner The TMA Flying Solo Affinity Group is a dedicated space for individuals diagnosed with myositis who do not have a live-in care partner. Whether you live alone, are married but your spouse is unable to provide... |
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Open to all regardless how long ago you joined TMA! Living with myositis can be challenging, but you are not alone. Please join us virtually to learn more about education and resources to help you on your myositis journey and make new friends who know, understand, and share your new normal. Connect with people like... |
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You don't have to navigate myositis alone. Register Here Whether you're living with IBM, DM, PM, IMNM, Overlap Myositis, or supporting someone who is — the TMA Southern California Quarterly Group is your community. Join us every January, April, July, and October from 10:00 AM – 12:00 PM Pacific for a space where your experiences... 
Founded in 2022, the TMA Military Veterans with Myositis Affinity Group is a dedicated space for veterans living with myositis to find support, share experiences, and engage in advocacy efforts. This group is particularly focused on working towards making Inclusion Body Myositis (IBM) a presumptive condition within the VA, and provides invaluable resources for navigating... This group for all myositis diagnoses meets monthly on the second Saturday. TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can increase feelings of belonging by up to 70% and improve overall well-being... |
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Living with myositis in Tennessee? You don't have to navigate it alone. TMA's Tennessee Support Group brings together patients, caregivers, and families who understand exactly what you're going through — because they're going through it too. Come share your story, ask questions, learn from others' experiences, and build real connections with people close to home.... |
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3 events,The HSS Myositis Support Group is open to people living with myositis, their families, and friends. If this is your first time attending the HSS group meeting, please be sure to contact the group coordinator before the meeting date in order to receive the join link. PLEASE RSVP TO SUZAN BEFORE THE MEETING DATE: Suzan... 
Register Here Join the TMA Minnesota & Wisconsin Myositis Support Group: Connect, Share, and Find Support The TMA Minnesota & Wisconsin Myositis Support Group offers a welcoming space for individuals living with myositis to connect, share experiences, and support one another. Meeting every two months on the first Tuesday at 6:00 PM CT, this group... This group meets monthly on the second Tuesday and is a virtual support network dedicated to individuals living with myositis in Africa and beyond. Founded in 2024 with the help of the TMA Women of Color Affinity Group, this monthly meeting is designed to provide support, share resources, and create meaningful connections among English-speaking members... |
1 event,This group is for those with dermatomyositis, polymyositis, immune-mediated necrotizing myopathy, (any non-IBM diagnosis). It meets every 3 months on the second Wednesday at 1:30pm ET. Everyone from Michigan and close areas without a support group are welcome to attend, however, there is also a TMA Michigan IBM group you can join as well if... |
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Join us for a live Ask the Expert webinar focused on speech and swallowing difficulties (dysphagia) in myositis, featuring Dr. Georgia Malandraki, a member of The Myositis Association's Medical Advisory Board and an expert in swallowing disorders. Dysphagia is one of the most challenging and under-discussed symptoms of myositis, affecting communication, nutrition, and quality of... The TMA Missouri & Illinois Myositis Support Group is a welcoming space for individuals living with myositis. Meeting every month on the third Thursday at 6:30 PM CT, this group provides a supportive environment to connect, share experiences, and learn from others facing similar challenges. Register Here Whether you're newly diagnosed or have been managing... |
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Register here! Join the TMA Hawai'i, Northern California, Oregon & Washington IBM Support Group: Connect, Learn, and Find Support This group is a welcoming community for individuals living with Inclusion Body Myositis (IBM) in Hawai'i, Northern California, Oregon & Washington, although all are welcome. Meeting every month on the third Friday at 5:00 PM PT,...
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Registration details coming soon! In partnership with the Thomas family, TMA is honored to offer the Meredith C. Thomas Memorial Fellowship, funding grants for early-career researchers and clinicians focused on learning more about how best to treat antisynthetase syndrome and interstitial lung disease. Meredith Thomas was diagnosed with antisynthetase syndrome and interstitial lung disease and... |
1 event,The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn... |
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Created in 2020, the mission of TMA WomenwithIBM Affinity Group is to improve the lives of women with inclusion body myositis through virtual connections and support that transcends geography. Meets on the third Tuesday of most months at 12 PM ET | 11 AM CT | 10 AM MT | 9 AM PT. Register here. |
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1 event,This group meets monthly on the fourth Thursday at 6:00 PM ET. For all myositis diagnoses. Register here Why Attend a TMA Support Group TMA support groups are a place to connect, be understood, and feel less alone — whether you’re seeking support, offering encouragement, or somewhere in between. Research shows that peer support can... |
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MyoCon may be over, but the connections don't have to end there! Join us for this virtual reunion to reflect on the conference and keep the momentum going with the friends you made in St. Louis. We'll kick off with a 30-minute recap presentation looking back at MyoCon 2026 — highlights, key takeaways, and a... |
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Register Here Attend TMA Northeast Texas Myositis Support Group: Support for Those Living with Myositis and their Care Partners Living with myositis is easier with friends. TMA's support and affinity groups offer a community where you can connect with others who truly understand your unique circumstances. Share experiences, find helpful resources, and gain insights on... 
👉 Register here TMA Georgia Myositis Support Group meets every fourth Saturday from 10:30–11:30 AM ET, except December. Peer-led support groups matter at every stage of the journey. Even if you’re currently thriving, your presence and story can bring hope and reassurance to others who may be facing challenges. At TMA, we pride ourselves on... The TMA MD, DE, DC, and Northern Virginia Myositis Support Group is a welcoming space for individuals living with myositis in the Maryland, Delaware, District of Columbia, and Northern Virginia regions. Meeting every two months on the third Saturday at 1:00 PM ET, this group provides a supportive environment to connect, share experiences, and learn... |
1 event,TMA is proud to host the Rainbow Affinity Group, a vital support community designed specifically for LGBTQIA+ individuals living with myositis. Founded in 2022, this group offers a unique space to connect with others who share both a myositis diagnosis and a commitment to fostering inclusivity and respect within healthcare and beyond. Register Here In... |
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1 event,The TMA Men Managing Myositis Affinity Group is a supportive space for men with any form of myositis to connect, share experiences, and find solidarity. Founded in 2022 and led by Eric Rocheleau, this group offers a unique opportunity to engage in meaningful discussions about the challenges specific to men living with myositis. Each month,... |
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